at first it was just like spotting but now its aot like a period (as of today). I am on betaseron and I didn't know if it could mess with your period like tha or make your breasts sore.. (fatigue is a normal ms symptom tho so that doesn't concern me except its been worse lately). Plus.. I have been noticing that its harder for me 2 hold it when I have to pee and smetimes it leaks (which again could be ms related). I'm just worried and really can't do a test yet..
ve been on Betaferon (I think it is called Betaseron in the US) for a little over a month now. I have all of the classic flu like symptoms that I anticipated, as well as some really nasty looking red spots at the injection sites. Sometimes they bruise and form knots under the skin. Anyway, my Neuro said that is all normal and should subside within the next 2 months. However, I was speaking with my sister in law who is an RN.
I started on betaseron (betaferon here in UK) 2 weeks ago, so have so far injected 7 times. On nearly all the injection sites I have a slightly raised red area, approx 1 1/2 - 2 centimetres in diameter, not at all itchy or bothersome in any way. Where I did the first 2 injections I now only have very small marks, more like tiny bruises.
I suppose I am looking for someone to tell me it is ok to ignore this. I don't want to go to the doc or MS nurse and risk the drug being stopped.
avonex, rebif, betaseron, copaxone) Wich is the better chice?
(I read some arcticles, and posts and I find now the better choice the natalizumab (if you hav JC-), or fingolimod, but this drugs have only the second line, if the drugs of the first line not enough effective.)
So what would you recommend us??
Have nice day!
Take care!
I really hate how all this is happening, because i never had a relapse/attack that took that long. I am taking Betaferon injections, but it doesn't seem to work that well!
What can i do? without talking those 1 gram injection for 5 days in te hospital?
Another question, is that new medicine Fingolimod (FTY720) any good?
Thanks alot for listening guys.
I've been on Betaseron since a year after I was diagnosed in 2000. On August 20th, I quit taking Betaseron cold turkey when I finally received my new oral medication Tecfidera. For the last few days I have been dealing with horrible body aches, diarrhea, cold sweats & the inability to eat (not feeling sick, just not being hungry or interested in eating). I do not have a fever, a cough, allergies or anything else I can conclude to be at fault for these annoying symptoms.
My Neuro wants me to switch from Rebif to Betaseron. I have been taking Rebif since March 09 and have had to do one round of Solu Medrol in May and will find out tomorrow if I have to do another. I also have pretty bad injection site reactions which is why the Neuro wants the switch. I guess Rebif has acid in the injection and it makes the site reactions worse?
My question is, I am under the impression that Betaseron is not pre mixed and also that there is not an auto injector?
I have been taking Betaseron for over 14 years, with no substantial side effects. I was told I would have to switch over to Extavia after the first of the year. ???????????
I have a couple problems with the Extavia, One being it looks to me that Extavia may be trying to save some money ,[[ At the patients expense ] one--a possible cheaper syringe???
The specialist at UCSF is switching me to Tysabri and has told me to go ahead and stop my Betaseron. It has now been 2 shots that I missed (well didn't take) and for the past 2 days I have been feeling like someone beat the crud outta me.
My husband is insisting it is cuz I am not taking my shots. I don't see how that can be. We went to UCSF Monday night (4 hr drive), had my Dr appt Tues which took 4 hrs.
It must be frustrating, the NHS doesn't make it easy for us.
All I can say is to make sure that you know the McD criteria and the criteria for being prescribed a DMD inside out and hopefully you will eventually get the drug.
It does worry me that maybe they diagnose CIS so they don't have to prescribe the expensive DMDs. If not CIS they seem to say "mild" MS a lot.
That was my diagnosis many years ago but it certainly isn't mild now.
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