avonex users

For all you Avonex users can you share on how long these lumps last after injection. When I used copaxone my nickname was lumpy. Their injections are daily so constantly stayed lumpy. I thought I would get a break with Avonex since it's weekly. The lumps are still there. My legs are actually sore. I don't know if ice or heat would help. I'm open for suggestions...... Thank you, Francyna.

this is great news for all of our avonex users. The injction pen and the new dosing schedule should provide relief from so many of the intramuscular injection problems.

Results showed that 14% of the placebo group reported depression, while 18% of the Avonex users experienced this effect. So yes, Avonex can cause depression, but that's not really the question. If this study is to be believed (and I don't know who conducted it, surely not rxlist.com), then more than 4 out of 5 Avonex users did NOT experience depression. Quite a difference from the 100% rate LA's neuro postulates.

//www.medhelp.org/posts/Multiple-Sclerosis/DMD-Users-Past--Present---Copaxone--Rebif--Avonex--Betaseron--Tysabri--other/show/1193746 The search feature is a beautiful thing - If you do not want to copy the links individually, just type "past and present" in the search feature - it will bring them all up for you.

After more than seven years on Avonex I tried Gilenya about a year ago, hoping to put a life of needles behind me. After 19 days I stopped (and later resumed Avonex) because the side effects were dangerous for me. However, I would not discourage anyone else from taking it. Just be cautious if you have any kind of heart condition, even if it is a seemingly trivial condition. I don't think many folks reading this forum are Gilenya users.

Hope this helps http://www.medhelp.org/posts/Multiple-Sclerosis/Our-Tysabri-Users---Past-and-Present/show/658918 http://www.medhelp.

but im supposed to get it in a few weeks. I am the one who originally posted about avonex pen inquiring if anyone else has used it. I did get a few people who had responded. Im not sure how to tell you to look for that post, but I think they responded favorably. Be sure to post after your first experience with using it!

It was just approved in late winter and is slowly getting into the users' bag of tricks to make this better. If you are on Avonex you definitely want to ask about ti.....

I have used Avonex for years, and I consider it a “success” because my condition has not deteriorated and I haven’t had a relapse in years. But you will find Copaxone, Rebif, and Betaseron users that will tell you the same thing. On the other hand, others take those medications and still face significant disease progression and/or find the drug side effect intolerable. Many users of newer oral drugs also find success, although those drugs have not yet stood the test of time.

She summed up that I was having more issues with Avonex than MS. She recommended that I switch from Avonex to Gilenya. I like the fact that it is oral, but I would like to hear opinions from others. I don't know much about Gilenya because my old neuro said that it was not for me. I am in the process of reading all the stuff the neuro gave me. Please respond and let me know what you think.

org/posts/Multiple-Sclerosis/DMD-Users-Past--Present---Copaxone--Rebif--Avonex--Betaseron--Tysabri--other/show/1193746 -Shell

t find much about this as a side effect on-line) or am I in that lucky 4% of Avonex users who have hair loss. If it is the Avonex, will it stop as my body gets used to the drug? Good God I hope so! Any insight is appreciated, as this is really stressing me out.....which can also cause hair loss!!!

An MSWorld user "zeldaz" lost her Avogrip, a plastic piece that clips to an Avonex syringe and makes it easier to handle. Apparently they are no longer available from Biogen. The draconian forum admins there deleted offers to send "zeldaz" a new, unopened one. If "zeldaz" sticks her nose in here, send me a PM.

ve kicked around the CRABs here, a lot. Copaxone, Rebif, Avonex, and Betaseron are the primary four. Your doctor didn't offer Tysabri as your fifth, did he? I like the Decision Maker tool in the uk that walks you through the drugs and helps you figure what is important for you. You can access this at http://www.msdecisions.org.uk welcome to the world of drugs aand bills. I'm glad to hear you are getting treatment for your CIS. Congrats on that one.

Hi! I am sorry for all of you that are also suffering hair loss. As if we don't have enough to deal with! My family thought that I was making a big deal out of nothing until I washed my hair and ran my hands through and came away with a full hand of hair. We are not talking your usual hair loss here!

s the official story. Many Tysabri users report a performance boost just after infusions and a drop off in performance just before the next infusion. I received 20 Tysabri infusions and didn't really feel much of either one. The good news was that I did not feel any obvious progression of my MS. Secondary Progressive MS is the eventual landing spot for 85% of people diagnosed with RRMS. I am among them.

It is the lone injectable that is not an interferon and so acts differently to modify the disease. (Avonex, Rebif, Betaseron = interferons. Copaxone is Glatiramer Acetate.) I'll be honest, another reason I gave it a miss was the possibility of welts and lipoatrophy. What can I say? I'm vain! However I do think the latter is significantly lessened with vigilant injection site rotation.

I don’t always follow my own advice, but over time my body has acclimated to the Avonex effects, so those things are not as important. Many Avonex users report milder side effects after the early injections, and that was the case with me. Unfortunately, the effects are too strong with a few patients, and they can’t continue. I hope you end up being one of those with even fewer side effects than I have. Ask questions anytime!

org/posts/Multiple-Sclerosis/DMD-Users-Past--Present---Copaxone--Rebif--Avonex--Betaseron--Tysabri--other/show/1193746 Welcome, and tell us how you feel comfortable to share.

How many of you using Avonex, never injected yourself but had help from family members? Also, what is your opinion of the new pen?

It really does depend on what works out best for you, your life style, and how unmanageable the side effects are. Most Avonex users prefer just before going to bed to sleep off the side-effects but there are no requirements to remain awake, sitting, standing, etc that I was ever told about or experienced. It is only preferable to try to take each injection about the same time. It does get easier, Hang in there!

LOWER LIMBS ALMOST STOPPED WORKING, STIFFNESS IN BODY AND URINE N STOOL CONTROL FINISHED. I M TAKING AVONEX ONCE A WEEK. THIS SITUATION IS SINCE 10 JUN 2012. I HAVE BEEN ADVISED TYSABR. S IT OK? PLEASE HELP ME REGAIN SOME OF MY STRENGTH.

Common Questions and Answers about Avonex users

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