Hi Rosie and Welcome to our Forum! I am sorry to hear that your daughter has been diagnosed with MS but at the same time, being surrounded by so many here on the forum that have not been able to get a diagnosis I am glad that your daughter will be able to start the disease modifying drugs that are so important to all of us with MS.
The last I heard, the drug companies are estimating "sometime in 2008" as to when some of the drugs may be available in pill form.
I started it following two pretty bad attacks, the second of which landed me in the hospital and on steroids. In all the time on Avonex I have not had any exacerbations and have remained stable. I also have no side effects from the drug and self-injecting is little more than a minor inconvenience. In my case there is no doubt that Avonex has worked. I expect to remain on Avonex indefinitely unless it stops working. At this time I would be fearful of going off it.
She took the below medicines in the order given :
AVONEX
INTERFERONE
COPAXONE
TYSABRI
At this point she is continuasly tired she has pains on her spine, she hardly feels
anything below her knees she feels like electricity passes through her feet , she feels pressure
around her belly and breast, headaches and she can hardly walk.
She is in a dilemma to either use the Fingolimod pill or the Fitoxantrone therapy.
Excellent news Francy!!!
Happy for you :) I hope Avonex is the one for you :) And, your MS is stopped in it's tracks!
I've been using an Avogrip to help inject Avonex for many years. For reasons I'm unable to explain, I sadly have lost mine and am looking to find a replacement. Biogen Idec has not been any help, and I recently discovered the groups like MSWorld disallow postings along these lines.
It's just a little bit of plastic, and it helps me quite a lot! Seems more than silly that it would be so difficult!
Thanks for your help!!!
I recently was DX in May 2010 with RRMS and I was given Avonex for treatment; which I stopped using in Dec because I just had panic attacks each time I gave myself the shots even though they don't hurt and I was okay with the side effects. I just grew a fear of the needles after a while until I couldn't do them.
I see they now have a pill approved and wanted to know if anyone is using it yet?
Can I request this treatment?
How much is the cost after insurance so far?
I have been on Avonex for 6 weeks with no problems. Last night I fell asleep before I took my shot so I took it around noon after I got out of the shower. That was a a BIG MISTAKE! I was okay for most of the day, but I started feeling crappy (nauseous) around 4 or 5, by 8 pm I was making repeated trips to the toilet!
I won't make this mistake twice!
My doctor offered me AVONEX for that and I used AVONEX for almost 1 year. But about 6 months back, I felt some slight disability on my left side. I cannot move my left leg properly after about 15 minutes walk now. I don't now it is again symptom for MS or not. Is there any body here to help me. I really appreciate any answer. BTW, I am right handed.
Hi!
I'm an MS patient. I was diagnosed at 22 and am now 28. So, for 6 years I've tried a lot of MS therapies. I've done the Rebiff, Betaseron, and 1 other that I don't even remember the name of. Anyways, I started taking Avonex. This coming up week will be my 5th injection. I have suffered through the fever, the body aches, let me make that severe muscle pains, abdominal pains, and the list goes on. The one side effect that is really worrying me is the depression.
Hello, I got diagnosed with ms at the end of July this year and I've been hospitalized ever since. Had tingling in my feet that rose up until my waist, couldn't walk properly for several weeks. I can now. But I still feel like I'm not stable and I think it got worse after I had my first Avonex injection (got allergic, so stopped after that).
Can I carry on my perscription pill form & labled in my name (controlled substances) in my purse or carry on bag?
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