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Avonex and headaches

Common Questions and Answers about Avonex and headaches

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Avatar n tn The lesions in an MRI are not definite diagnosis for MS. You need to have all symptoms of MS along with an MRI which would be the way of daignosis. Without clinical symptoms only lesions in the brain cannot confirm MS, that is the reason i think your neurologist has suggested you to stop the medicine and the neurologist wants to diagnose your case properly. AVONEX® (Interferon beta-1a). is the best treatment for MS and if your neurologist is not sure he cannot prescribe Avonex.
Avatar f tn I will chime in my two cents too - I have been on Avonex since February and I too have had minimal side affects -- The ibuprofen or aleve and water are a must . Forget them and you will feel kind of icky - I personally get killer headaches if I forget! Used pre-filled syringes and the pain was minimal - The pen is a little more but still not bad Hopefully it is doing its job - will find out in October with follow-up MRI's!
462771 tn?1358355843 I have Multiple Sclerosis and use Avonex. My side effects do Not include Depression or Headaches. They include Fever-like symptoms, Muscle aches/pains, and Fatigue. All at a High level. I've come to realize in time, that the Only thing that helps Me is Medicine. Other Medicine that I take like : Hydrocodone, Alprazolam, and Imipramine. Without Overdosing of course, i've felt that these are all that helps.
Avatar f tn I have had many times in my life - out of the clear blue - that I had the headaches, shaking chills, aches and such and after 3 to 7 days it went away and I never had a clue. When I was younger I had at least one a year. If I had been on Avonex I would have likely blamed it. But, You are putting the interferon in and it is readily absorbed into the body. There would be no good explanation for a delayed reaction. If it was a viral syndrome then a flare following makes sense.
587890 tn?1295473081 I have had MS for 10 years and I just stopped my AVONEX so I can try and get pregnant I know it sounds stupid but there is no studies on avonex and pregnancy so I just thought I would ask if any one else has been on some treatment or off to get pregnant? and how long were you off your meds ?
Avatar f tn After at least of 5 weeks of worsening effects from Copaxone and 8 weeks total, it's all over between us. I truly tried. Almost went to counseling. Arbitration was an option, and so on. The bottom line is that I had terrible allergic reactions that snowballed. I tried several kinds of antihistamines, plus Singulair, and a bunch of different creams. All I got were hives, bruises, welts, rashes and misery.
Avatar f tn ) and still have a safe and fulfilling sex life. Your best bet is to discuss this with your doctors and possibly and Infectious Disease Doctor. The doctors may recommend vaccinating your partner. They may also consider the risk of contracting HPV to be a low risk exposure and do nothing. Most people with MS can be vaccinated with "non-live virus" vaccines. Gardasil is a VLP (Virus Like Partials) vaccine (so it is safe) protecting against infection by HPV types 16, 18, 6, and 11.
Avatar n tn I hope you're not having side effects! I'm having headaches, but when I read the literature and did some research, this is not common. I've had headaches for a long time, so I think it's probably caused from the stress of being diagnosed and starting a new medicine. One time I had a reaction that was peculiar. My face turned bright red and my ears burned, but was gone after about 30 minutes or so. I didn't have trouble breathing or anything major like that.
Avatar n tn I started out on Avonex and gave up on it after 9 months. The side effects were too debilitating for me (flu-like symptoms). I then switched to Copaxone and stayed on that for about three years. I then quit that because I didn’t like the indentations in my skin. Next on the list was Betaseron. I withstood the side effects for two years before I finally decided that the headaches and fatigue were too much to bear.
Avatar n tn I wrote earlier today to someone else, it might be trial and error until you find the right timing. We know Avonex has some flu-like symptoms for most people and you need to time your injections Most people also take it on the weekend so no to interfere with the work week but maybe you would rather feel good on the weekend to do other things and take the shot on a week day? It's lots to talk about with the Avonex nurse.
Avatar f tn Last night I had my first Avonex injection. I had a lot of hesitation about going on any drug, but figured I need to fight MS. The injection did not hurt at all. After the medicine was in it stung just a little bit. I woke up at 2:30 in the morning with the chills and by 5 I had the full flu like symptoms. By 3 in the afternoon, I felt pretty good except for a headach, but I've been having frequent headaches lately anyway.
Avatar f tn Hello Everyone :) I haven't been around on the forum or a while due to a string of horrible bad luck, but things are starting to look up so here I am :). I have a question about DMDs I have been on Avonex now for 5 weeks and have noticed a huge difference in my muscle spasms. It's as if the off switch got flipped! I went from having them literally 24/7 literally. My neuro said she hadn't really seen anything quite that severe she could see muscle spasms everywhere during my exams.
233622 tn?1279334905 Does Avonex cause a lot of leg weakness and aching? Or is that something more associated with MS itself?
462771 tn?1358355843 The sole purpose of Copaxone, Rebif, Avonex and Betaseron is to slow the progression of the disease and reduce the number of relapses. If you look at the studies, people on these CRAB's still have relapses, they just don't have as many relapses as people who are not on a CRAB. So it should not be a surprise to any of us on a DMD when we do have a relapse. The CRAB should be making it less intense and shorter in duration, hopefully.
2063887 tn?1337829746 I've had terrible headaches and looking back, I think they might be caused by the Copaxone. I called Shared Solutions and the nurse agreed and told me to call my Neuro. I skipped my injection and surprise...No headache!! They've been killing me and new neuro told me not to take anything for them, but keep a journal for two months. I haven't been able to function so finding out that the Copax is probably the culprit was awesome.
649926 tn?1297657780 The Cleveland Clinic Doctor Wants to start me on Avonex in the next couple of weeks and follow me here in Cleveland from now on. She feels that all of my problems are either MS or various meds that the doctors have given me in the past. No Sjogren's etc. ? Wow I was on Copaxone and it didn't work but am willing to try anything if it will stop this progression. 3 neuro's in the last 5 months with 3 different opinions. Rituxan, IVIG & now Avonex.
Avatar f tn When I asked my Dr about it he said that headaches and eye pain were a common symptom of interferon which both Rebif and Avonex are. I went off of Interferon completely and started looking into Tysarbi the once a month IV medication. Well... I recently read quite a bit about a brain infection that Tysarbi patients sometimes get and die from... oh yeah and Vanginitis... Mmmm Mmmmm sounds fun. Oh Yeah I forgot to say this... I am on Provigil. My anto fatigue drug.
Avatar m tn Well Avonex is a lot like beta. Got a fever of 102 and feel like death. It hit me within 3hrs after the shot. Well at least it's just once a week.
Avatar f tn I DONT GIVE MYSELF THE INJECTIONS EACH WEEK, MY HUSBAND DOES BUT THEY ASSISTANCE PROGRAM AVONEX HAS IS GREAT. WE PAID 10 A MONTH AND WHEN HE CHANGED JOBS AND WE LOST INSURANCE I HAVE BEEN GETTING IT FOR FREE. I DO STILL GET ACHY, EMOTIONAL BUT FEEL LIKE I AM ADJUSTING TO THE MEDICATION. GOOD LUCK WITH YOUR CHOICE. HOPE THINGS GO WELL WITH YOUR INSURANCE.
Avatar f tn so in 2002 you got ms do you take any thing for the ms. i take avonex can you walk and do things you like to do every day .
Avatar m tn i mean the Flu feeling and that is what it is probably, but maybe something to help w/ the headaches and Muscle aches?? I really hope that you can find a PEACE on this and do what you think is "Best' for you!
Avatar f tn //www.rxlist.com/avonex-drug.htm) and, like other proteins, can only work within a very small range of conditions (ie pH, temperature). As the stomach is a fairly acidic environment, proteins will denature (fall apart) and so Avonex would be rendered useless. That said, there is a therapy available in pill form (http://www.sciencedaily.com/releases/2009/04/090429205613.htm). Called "cladribine", it may very well be the first treatment for MS that does not involve regular injections.
Avatar f tn But when first diagnosed with no medicine my relapse was an easy one for probably 3 months than straigh to pain and headaches than started AVENOX oct 1 and has a relapse the same day ( that was just ironic not the avenox) and that one put me down for about 7 to8 months(that was the big one. But the time period btw the two was only a month and a half with no meds/avenox..
97654 tn?1214348650 t affect your spirits, even though I think depression is listed as a side affect. I have been on Avonex for about a year and a half and have found that my right side reacts better when injected than my left. I also inject in the early evening, then take 2 tylenol and two naprox about an an hour later. Usually I wake up pretty free of the yucks next morning.
1168718 tn?1464983535 t have your rx yet, that tells you the problem goes back to your neurologist and the Avonex reps and you can deal with them on Monday. It is so frustrating to know that you are so close, but then have to wait and wait some more to start treatment. I know from my own personal experiences.
Avatar f tn I am sorry you suffered the side effects. I was on Avonex for 15 years and found that if I started ibuprofen around 4:00 in the afternoon and took it every 4 hours or so, and took the shot around 8 pm on a Friday night, I felt okay by Saturday afternoon. I also put ibuprofen next to my bed in case the side effects woke me up during the night. I wish you all the best. Just remember HANG IN it will get easier.