avonex and fatigue

I am so tired, my Provigil isn't even helping that much. On my trip to the beach, I took a whole Provigil daily ($15 each) and it barely helped. We were on the third floor, no elevator, and could only sometimes park so we only had to walk up one flight of stairs. I know I'm deconditioned from having less energy to exercise, but this was rough. We unloaded that car on the bottom level and hauled stuff up all those stairs, and it wiped me out.

I DONT GIVE MYSELF THE INJECTIONS EACH WEEK, MY HUSBAND DOES BUT THEY ASSISTANCE PROGRAM AVONEX HAS IS GREAT. WE PAID 10 A MONTH AND WHEN HE CHANGED JOBS AND WE LOST INSURANCE I HAVE BEEN GETTING IT FOR FREE. I DO STILL GET ACHY, EMOTIONAL BUT FEEL LIKE I AM ADJUSTING TO THE MEDICATION. GOOD LUCK WITH YOUR CHOICE. HOPE THINGS GO WELL WITH YOUR INSURANCE.

I have been on Avonex since the fall of 2009 to treat my MS. My symptom of fatigue is troubling and my heart vs my head attributes this to my medication more than the illness. Is this correct? Will the fatigue subsist with time?

If avonex doesn't thrill you, then tell your doctor you want to discuss other treatments. The studies show that the DMD's are all pretty much the same in effectiveness rate. It is their delivery method that is so radically different. Don't worry about questioning your doctors - that is important that you are a key part of all these discussions.

I have had MS for 10 years and I just stopped my AVONEX so I can try and get pregnant I know it sounds stupid but there is no studies on avonex and pregnancy so I just thought I would ask if any one else has been on some treatment or off to get pregnant? and how long were you off your meds ?

MS Patients using AVONEX pls share your expereinces with me after using it.. Is it benefitting you or are you having any prroblem or side effects of it..? Pls do tell me the Pros and cons of AVONEX.. Also share other things you people do to cure yourself of MS. Thanks......

Yes Jaw fatigue is symptom that I had intially and when I am flarring my eyes and jaw are the first to go. Not an uncommon charcteristic of MS.

The Cleveland Clinic Doctor Wants to start me on Avonex in the next couple of weeks and follow me here in Cleveland from now on. She feels that all of my problems are either MS or various meds that the doctors have given me in the past. No Sjogren's etc. ? Wow I was on Copaxone and it didn't work but am willing to try anything if it will stop this progression. 3 neuro's in the last 5 months with 3 different opinions. Rituxan, IVIG & now Avonex.

For those that take Avonex, how bad have the flu like symptoms been for you? I had been on Copaxone and just recently stopped because I have had it with the huge welts and lumps the size of eggs. I am tempted to just take a see how it goes attitude since my MS seems to be mild and not do the DMD's for the time being. My neuro brought up Avonex and told me about the flu like symptoms and I don't know if that or the welts and lumps are worse?

) and still have a safe and fulfilling sex life. Your best bet is to discuss this with your doctors and possibly and Infectious Disease Doctor. The doctors may recommend vaccinating your partner. They may also consider the risk of contracting HPV to be a low risk exposure and do nothing. Most people with MS can be vaccinated with "non-live virus" vaccines. Gardasil is a VLP (Virus Like Partials) vaccine (so it is safe) protecting against infection by HPV types 16, 18, 6, and 11.

Anyways my point is this week Utah got 5 days above 100 and I am feeling it... they just raised my core body temp one degree 1 degree!.. and they are doing research so we know and they know but in the meantime what tips and tricks do y'all have for dealing with the heat? One of mine is that I carry an ice pack that I got with my rebif or avonex anda washcloth. I leave the ice pack in my purse with the washcloth and at stop lights I drape it on my neck.

I started out on Avonex and gave up on it after 9 months. The side effects were too debilitating for me (flu-like symptoms). I then switched to Copaxone and stayed on that for about three years. I then quit that because I didn’t like the indentations in my skin. Next on the list was Betaseron. I withstood the side effects for two years before I finally decided that the headaches and fatigue were too much to bear.

I have relapsing remitting MS and am on Avonex too, for the past 5 years. MS began 14 years ago and I ignored it until a serious episode of optic neuritis made me seek medical help. I absolutely agree that depression is a major side effect of MS and Avonex use. I too am irritable, cannot multi-task well, and have a rather blunted affect. My husband and I have separated.

I just started Avonex - the only side affects I have are skin sensitiivity (like if you touch your skin it kinda hurts or feels scratchy), mild body aches and fatigue. It is barely noticeable if I take 600mg of ibuprofen when I take the shot. It is gone by morning.

and included numbness in everything from my ribs to my toes, plus dizziness and fatigue. After exams and MRIs of the brain, cervocal and thoracic spines, my new neurologist diagnosed me with RRMS. He talked with me a little, gave me 3 manufacturers' DMD booklets and said I should read them over and decide on a DMD and go on it as soon as possible to slow down future exacerbations and deterioration.

i was taken avonex for 3 yrs and i am only speeking on and about my story of taken avonex all pll are diffrent,, my exsperiance with avonex and im sorry to say SUKS literally 3 hours after injecting it into my musscle i was done with ackes cramps chills somtimes fever and definatly fatigue and it lasted 2 days feeling like crap was forcing myself to due it today i have not been doing my shoy now for 2 months now and not taking any medicine to treat my ms...

Hello Everyone :) I haven't been around on the forum or a while due to a string of horrible bad luck, but things are starting to look up so here I am :). I have a question about DMDs I have been on Avonex now for 5 weeks and have noticed a huge difference in my muscle spasms. It's as if the off switch got flipped! I went from having them literally 24/7 literally. My neuro said she hadn't really seen anything quite that severe she could see muscle spasms everywhere during my exams.

However as the week went by I noticed that my fatigue started to return and increasing got worse. I figured it was because the medication was leaving my system. Friday I took my second dose. (1/2 dose) I didn't get the same boost in energy that I had the first week. I am more tired than I was last week. (I slept until 1 Saturday and 11 after 11 Sunday) and I think my brain fog is returning. I am also on Provigil. 100mg/day. I don't think it helps at all. Is this pretty much normal.

Does Avonex cause a lot of leg weakness and aching? Or is that something more associated with MS itself?

The sole purpose of Copaxone, Rebif, Avonex and Betaseron is to slow the progression of the disease and reduce the number of relapses. If you look at the studies, people on these CRAB's still have relapses, they just don't have as many relapses as people who are not on a CRAB. So it should not be a surprise to any of us on a DMD when we do have a relapse. The CRAB should be making it less intense and shorter in duration, hopefully.

Hi guys hav'nt checked in lately, I've been having quite a few flair ups since I last checked in. Question for my MS family; I would like to try avonex hope I'm spelling it right any feed back good /bad just the expierence of people who has tried it before or is currently on.....presently using copaxone...

After more than seven years on Avonex I tried Gilenya about a year ago, hoping to put a life of needles behind me. After 19 days I stopped (and later resumed Avonex) because the side effects were dangerous for me. However, I would not discourage anyone else from taking it. Just be cautious if you have any kind of heart condition, even if it is a seemingly trivial condition. I don't think many folks reading this forum are Gilenya users.

When I asked my Dr about it he said that headaches and eye pain were a common symptom of interferon which both Rebif and Avonex are. I went off of Interferon completely and started looking into Tysarbi the once a month IV medication. Well... I recently read quite a bit about a brain infection that Tysarbi patients sometimes get and die from... oh yeah and Vanginitis... Mmmm Mmmmm sounds fun. Oh Yeah I forgot to say this... I am on Provigil. My anto fatigue drug.

Well Avonex is a lot like beta. Got a fever of 102 and feel like death. It hit me within 3hrs after the shot. Well at least it's just once a week.

ve been struggling so much with fatigue!!! Our heath pages on fatigue, weakness and understanding relapses vs pseudo's maybe informative to you........ http://www.medhelp.org/health_pages/Multiple-Sclerosis/Fatigue-in-People-with-MS/show/63?cid=36 http://www.medhelp.org/health_pages/Multiple-Sclerosis/Weak-vs-Feeling-Weak/show/1146?cid=36 http://www.medhelp.org/health_pages/Multiple-Sclerosis/Relapses--Pseudo-Relapses-and-Remissions/show/372?

Avonex and fatigue

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