tysabri used

He feels that Tysabri is the way to go. I know that there are others here on it or used to be. I would love some insight on what to expect, how long it takes, etc... Thanks!

I have been on Tysabri for almost two years now and have been very happy with it. There have only been a couple of times that I'm really tired after and go to bed early that night. I think it's really kept me from having another bad flare. Stress used to wreak havoc on me and since I've been on Tysabri I haven't had any major issues. Usually about a week before I realize that I' m ready for the next one. Hopefully that helps!

This was an old post, but it took me several months to get used to Tysabri. My neuro used Decadron IV at first and then we went to PO for longer effect in the body. Don't cancel but do let your neuro know asap that you are having problems.

I am referring to the total deaths that have occurred among the confirmed cases of PML in patients who have used Tysabri since it became available for prescription in July 2006. The National Multiple Sclerosis Society website has an Update on Tysabri and PML as of August 15, 2012. This gives the total number of confirmed PML cases since July 2006, as well as how many of these patients have died. (In truth, these are actually the numbers as of July 3, 2012.

m still OK Tysabri wise speaking. My neuro likes to reevaluate Tysabri use at 24 months. I had infusion # 18 last week. He thinks I would be an excellent candidate for Tecfidera. He said that if DMD'd were ranked from 1-100, in terms of 'power' Tysabri would be 100 and Tecfidera would be 75/80. As my MS seems to be pretty well under control. I may have needed Tysabri to get it under control. but Tecfidera should be able to keep it under control.

Nancy, I have never heard of using steroids to prevent a relapse. I thought they were used to help lessen the symptoms of a flair. I used them monthly for over a year with Rebif. I also was not given a taper dose. I began with three infusions every four weeks then went to three infusions every four weeks. Nothing slowed my symptoms down. I did use five days of Actar Gel but it didn't work for me. I guess my body just began rejecting the steroids. Long story short I began Tysabri.

That is a great website, with the diaries of the people who are taking Tysabri! I used it alot also, when I was doing my research and trying to decide whether or not to jump into the Tysabri pool... :) A number of the people who have posted their Tysabri diaries also have email addresses listed, and you can write to them personally.

I've been on Tysabri since 2012 and tested + before I started. Some months I feel better, some I don't.

Are any of you on Tysabri? My doctor has suggested that I consider starting Tysabri treatment. His neurology practice runs a TOUCH infusion center. I've been on Copaxone for four years and have just had my first flareup. My recent MRI shows progression of MS with T2 hyperintense white matter lesions in the pons of the brainstem and the frontal lobe. Several of the older lesions have increased in size. Five years ago I was on Avonex. I had multiple flare-ups the whole year on this med.

About 100,000 patients have taken Tysabri at least once. The drug, which is used mainly to delay the progression of multiple sclerosis, has been on the market since 2006. It originally went on the market in 2005 but was removed due to medical problems that some patients encountered, Bloomgren said. Tysabri is expensive, costing about $40,000 a year. It dampens the immune system, potentially reducing the inflammation that is a major part of multiple sclerosis.

I can't speak to Copaxone, because I've never used it. I have, however used both Rebif and Betaseron, and the injections aren't bad, at all. It's done subcutaneously (just under the skin), and around slightly fattier areas, I hardly felt it at all. Unfortunately, I'm allergic to Rebif. My symptoms were progressing at a fairly rapid clip, so my neuro got me onto Tysabri. I've had some 20 infusions, now, and for me, it's great!

Thanks for the excellent info. In addition, my Neuro said the majority of PML cases were in Europe where the "Touch" program is not used to follow patients. She also said that usually another DMD was being used concurrently with the Tysabri and that further lowers the body's immunity. There are a couple of deaths related to liver problems, however, I read those patients were alcoholics, so there was already an ongoing health issue.

t know anyone with ms or ms variants so I want to know more about Tysabri from people who are on it or have used it. What is your experience? Pros/cons? I have read about side effects but I want to hear your thoughts & how it made you feel.

OK guys I need info..... anybody here on Tysabri? Anybody been on it previously? Any first hand input is helpful, as well as any info in general. My neuro tossed it out at the appt today - COMPLETELY blew me out of the water. Never saw it coming. The Rebif makes me sick and he's concerned that things keep advancing and I've never really had the elusive remission... :) He explained alot about Tysabri - truth vs hype.

Friday I called my neuro to find out if they want me to do a washout period on Tysabri, as they are considering me for the new drug out in March. I've ben on Tysabri almost a year and JC+ from the start The nurse told me my test showed 1.03. which means nothing to me. Anyone know anything about this test?

I had been on Tysabri for 22 month's and just recently stopped. I was wondering if any new info. is out there on the drug Rituxan for MS? I have SPMS with RRMS. I was in a study 3 yrs. ago at UCSF and did really well on Rituxan. However, Rituxan is not an approved drug for MS and at that time my insurance would not cover it so I had to discontinue taking it. Or should I just take a break for awhile and not take any ms med"s?

I'm signed up to start Tysabri in the next couple weeks. My doctor really recommended it as he thinks it would be a good option for me. It's just kind of difficult for me to wrap my mind around because it seems like it's used more as a last resort rather than a first line of defense. This will be my first DMD, and I'm a little nervous. Is anyone else using this as a first DMD? What kind of side effects can I expect?

Hi BL- Welcome to Our Merry Band :-) I was diagnosed 2 years ago, at age 51, with SPMS. My first, and up until a week ago my only, DMD was Tysabri. When I was diagnosed we were able to connect seemingly random events over the previous 20 years. What seemed completely unrelated was related. All were symptoms of MS. Because I'd had MS for so long my doc thought I was out of reach of the injectables. At the time the orals were just starting to come on the market.

He asked me whether I was interested in being in the Tysabri study. I am only 37 and have only had one relapse. I know I will be deciding on a treatment and not sure what direction to go. This neuro is big in research and he spent a lot of time talking with me about MS. He mentioned a JC Virus and took my blood to look for it. If I don't, I would be a good candidate for Tysabri. It has 67% reduction in relapses but also risks getting PML.

Over the last 12 years he has been on all the ABC drugs. Now he is completing the 2 year mark of using Tysabri. Dr Appointment in 2 weeks assume he will stop infusions. I wonder what is next???? How are others doing after all these treatment and now what do they take???

Only Tysabri has shown the abilty to cut relapses and lesions by 2/3s. Tysabri is relatively new and is still has some issues. In fact no one knows what it does after 2 years. The more std. MS drugs, which are primarily interferons by the names of Avonex, Rebif and Betaseron cut MS activity by about 1/3. And thats if you have Relapsing Remitting MS. The drugs are all injected. A new drug that is oral "finglomod" is in phase 3 clinical trials.

Common Questions and Answers about Tysabri used

tysabri