tysabri side effects liver

have you had to discontinue treatment due to side effects and if so, please describe. If currently on one of these meds are you having any troublesome side effects that are so bad they cause you to consider stopping treatment?

for quality of life he thought tysabri is the best choice for me (despite the risky side effects). I am getting a second opinion from my MS specialist (just to be on the safe side), but I've seen my MRIs and I agree with him. I will be happy to post my experiences or answer any questions that anyone had once I am on it. In the meantime, I am very interested to hear from those that are already on it and their general experiences with it.

Worth nothing is that the flu-like side effects of Avonex often are less troubling after the first few weeks or months, but I've never seen anyone suggest that the mood-related side effects dissipate.

I had my first Tysabri infusion this morning and I experienced no side effects so far at all. Over the last 2 months I have had some improvment. I still have all my symptoms but they're less intense. So here's hoping for the best. Hoping this medication works at seriously slowing this beast way down. How are things with everyone? I truly hope everyone has been well or well as can be expected. I'm learning now about the ups and downs and the good days and bad days.

Hi All, I have a question that is mostly about Copaxone. I have been on it for 7 weeks. I am feeling better overall, but have a localized reaction EVERYTIME I take a shot. Initially and for a couple of hours I have severe pain, as if I am injecting acid into my skin. Then, I develop a reddend area about 6-8" x 4-6", with a painful lump that is always about the size of a lemon. It takes 5 or 6 days for the are to completely fade and then there is often brusing.

The cardiotoxicity of Novantrone is scary to me, not that Tysabri is without its serious side effects, as you point out. You are definitely not being silly to have such concerns. For now I am holding steady since going on Copaxone three months ago. Prior to that I had a short and unsuccessful run at Rebif. Had to discontinue Rebif after only 8 weeks due to elevated liver enzymes. Since you only started Copaxone 6 weeks ago, it really hasn't had a chance to do its thing.

the new drug is called Lemtrada but it does have serious "possible" side effects involving the thyroid, skin and breast cancer. There are some hot debates on it, my neuro says you take it for 5 days the first year (in a row) and then the 2nd year you take 3 infusions and then you don't have to take any more. The possible side effects are bothering me, but then PML was quite the threat also! I'd read up on it before you consider it.

Sorry to hear that you are having Tysabri side effects. I've had 4 infusions and no ill effects at all.

Thank you for your comments. Day three now and still no side effects. I certainly don't know yet about long term effects, but will keeping having eye and liver tests. Taking daily oral pills has been a welcome relief. New Mri in 3-6months for a new check. I sat in a private exam room for 6hours with blood pressure check every hour or so. The warning label states some people may have slow or rapid heart rate in the 1st six hours.

Has anyone had an experience where Tysabri triggered old symptoms to return, or had side effects similar to this? I looked up the side effects and it sounds sort of similar, but it's just odd that what I am feeling is exactly the same as my previous relapse, just way worse. Is this a relapse? Side effects? Something I'm stuck with now? Any thoughts would be helpful! Looking forward to reading more!

Hi AG - Welcome to the group. I received 20 Tysabri infusions. I didn't have any side effects at all. Unfortunately it stopped working so I switched to RItuxan.

I'm on my 5th year of Tysabri, and have no side effects. Like Kyle mentioned, I do kind of "crash" about 4 days before my next infusion. I was diagnosed RRMS, but I wouldn't be surprised if I were SPMS in this stage of the game. Tysabri is approved for use with patients with SPMS.

m about to start Tysabri. I know there are some risks, side effects etc, but I trust my new Guru.

When I considered going off of Ty, I made a chart and put all of the DMD drugs side by side and blacked out the side effects I was unwilling to put up with, including the cost of the other drugs being Tier 4 with a 33% co-pay, and looked at what was left. I know where you are coming from! It was a scary thought to make the decision but there are risks to everything, particularly DMD drugs. Hang in there, we're all here to support you regardless of your decision!

s a side effect of the Tysabri could be possible, there are other MSers talking about hives as well as other side effects, below are some i found on a google search... http://multiplesclerosis.net/?s=Tysabri+&submit=Go www.tysabri.com/about/side-effects http://www.nationalmssociety.org/Treating-MS/Medications/Tysabri-%C2%AE Hopefully someone who's on Tysabri will chine in... Cheers.....

Glad to hear that things are going so well for you with the Tysabri, and that you are even noticing improvements! It hasn't always been an easy ride for me, but overall, Tysabri has definitely been a good thing. It certainly slowed down the parade of symptoms I was having before I started it. I go for #45 in a couple of weeks. I can't remember - were you negative for the JC virus?

If you have been on tysabri, please share your experience with me. Did you have similar side effects? Did they go away over time? How much time? I have MRIs scheduled on Friday to check for changes and I'm hoping that will help me make some decisions. Thanks in advance for your experienced!

If you would forget to take pills, for example, you need to be on an injectible. Consider the common side effects and which ones you can most readily live with. You may not even suffer the side effects, but you need to be prepared for them. I’m sorry you hadn’t had a response for 20 hours … ask questions anytime!

Hi Candy! I've been on Tysabri for almost 2 years now and I am really happy with it. I was afraid of the possible side effects too, but so far I haven't had any. I make sure I get tested for JCV regularly and feel like it really helps me. I haven't had a serious relapse since I've been on it and I've been through enough stressful situations that it could have easily brought one on.

Tysabri side effects liver

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