tysabri opinions

m 18 and not sure which medicine to choose. I have narrowed it down to Copaxone and Tysabri, but am not sure which one to choose. I have a phobia of needles that I have been trying to overcome so giving myself a shot wouldn't be optimal but I could manage. I was also worried about developing PML with Tysabri but my doctor made it seem as if he would check my bloodwork regularlly and it wouldnt be an issue. I just wanted to know anyones personal experience or opinions on the two.

s neuro appt as I am sure he is either a) going to try to talk me into staying on Tysabri (noooooo as I hide under the covers) or asking me what my 2nd choice is (???) but am clueless. I KNOW I don't want anything with the word NAUSEA associated to it in any way. Anyone want to give me their experience. I'm not shot shy, have given too many of those, just being whimy and wanting as few side effects as possible.

at this point are going to be Tysabri or Gilenya. Both sound awful. Details later, this is not what this post is about. I "agreed" to a course of Solumedrol this past Thursday. Home Health care is supposed to start coming tomorrow. I got the delivery on Friday night (10:00 in a blizzard) poor delivery man. Well, this weekend I pretty much slept the entire time. I am feeling better and Ha vent had any double vision since Saturday. Do you think I should cancel the steroids?

This person was previously on Tysabri for 3 years, and was JC positive. There is no information yet as to how long of a wash out period they had before starting Gilenya, how long they were on Gilenya before getting PML, what kind of symptoms they were experiencing, or any info yet about the condition of the patient.

I was diagnosed with relapsing a remitting ms 1 yr ago. I had a very aggressive doctor that put me on Tysabri infusions even though I had never tried anything else. After research and being so terrified of the brain infection which causes severe disability or death I changed doctors! I have been on Aubagio, the new pill, for 1 month and have not had any problems. I emptied my hair brush the first day to see if I would have hair loss, which there is nothing out of the ordinary.

Now, based on the last MRI, he has officially diagnosed me and is recommending that I go on Tysabri infusions. From what I can tell on this forum, it seems like he's hitting an ant with a sledgehammer. It seems very unusual for people to be prescribed Tysabri right off the bat. I am very confused as to what drug to go on, if any. His first choice for me is Tysabri, followed by Gilenya, followed by Copoxone.

Well I saw my neuro today and after a lengthy discussion with both him and the nurse, the subject of UTI did not come up! There was so much else to cover, I completely forgot to ask and they apparently did too. Argh. Why didn't I write it down? No 12 year old resident this time lol so it was nice to get to know my neuro better. We had a long discussion about changing treatment.

They found out the reason people contracted PML was because they were taking Avonex/and the other MS medications with Tysabri. I think the Tysabri has given me a second chance at helping slow my disease progress, but with out it I would be on no MS medications to slow the disease. I did alot of research before I decided to start the medication and the one resource that helped me make my decision was reading the Tysabri diaries on line. www.msrc.co.uk/index.cfm?

Hi all, I recently went from 143lbs to 119lbs.... In a very short space of time, probably from so many relpases and probaly from the stress of a diagnosis. Shortly after Christmas my neurologist discontinued Copaxone becuase the injection sites almost as if it was not being absorbed. I had incredibly angry looking itchy patches. I stayed off a DMD for almost 3 months and thats how long it took for this flair up to go down.

So, are you driving 4 hours each way once a month for your Tysabri? I am sure you can find a infusion site closer to your home. Just go on the Tysabri website and it will show you a list of sites and also, neuros that are already a part of the TOUCH program. Here is the link, you can put in your zip code and it will give you a list of doctors and if you look at the links to the left, you will see one for infusion sites too. http://www.tysabri.com/tysbProject/tysb.

I have had MD for 18 years. Been on Avonex, Betaseron, Tysabri, and now Tecfidera. Unfortunately, I'm also on lots of other medications, mostly due to terrible central pain. My neurologist made me stop the Tysabri after 24 infusions because of safety concerns. I felt my overall best while on Tysabri and have asked him if and when I might be able to go back on the monthly infusions. He does not have an answer for me at this point.

Are any of you on Tysabri? My doctor has suggested that I consider starting Tysabri treatment. His neurology practice runs a TOUCH infusion center. I've been on Copaxone for four years and have just had my first flareup. My recent MRI shows progression of MS with T2 hyperintense white matter lesions in the pons of the brainstem and the frontal lobe. Several of the older lesions have increased in size. Five years ago I was on Avonex. I had multiple flare-ups the whole year on this med.

I would like some information/details from anyone who has had (or seen) the rash you can get from Tysabril and/or PML?? I have been on Tysabri 10 years so far without any major issues. I was outside after my treatment for 10 minutes or so. After taking my shirt off, my husband gasped and asked what was wrong with my back.

I've been tested twice in the last year, and they were both negative. Since you can acquire JCV at any time, I opt to have my status tested once a year since I'm on Tysabri. There is also a Tysabri antibody titre available, now. I plan on doing that once a year, too, although development of Tysabri antibodies is relatively rare.

My new neuro suggested Tysabri based on increased lesions on Interferon (Rebif). Any persons out there on Tysabri that could share their experience?

He feels that Tysabri is the way to go. I know that there are others here on it or used to be. I would love some insight on what to expect, how long it takes, etc... Thanks!

I will start tecfidera in 3 months I hope I dont have the rebound effect I have heard about after stopping tysabri. Tysabri has really changed the way I feel was using a walker now nothing and I do Zumba too. I hope I stay like this but having doubts. anyone using tecfidera? How was your experience.?

So now he wants to take me off of the Copaxone, I have been on for a month and a half, and put me on Tysabri. I started the application process and now waiting for them to call me and get the ball rolling on that. Now he mentioned that this is the top of the line MS medication so that does give me some relief. P.S. I did test negetive for the JC Virus. Any thoughts, experiences etc on this Tysabri??!!

The research side of my MS Practice has identified a CSF biomarker for disease activity. The research is featured on the cover of this month's Multiple Sclerosis Journal. http://tischms.org/news/tisch-ms-breakthrough-biomarker-research-featured-cover-article-october-2013-issue-multiple I'm a beneficiary of this discovery. I had been on Tysabri for 20 months. At 18 Months I converted to JCV +, and we discussed switching from Tysabri to Tecfidera.

side effects for each other medicine and now this with tysabri. Has anyone else been on tysabri and developed c. Diff from it? If so, what did they do to help it? Stop tysabri? Any information would be greatly appreciated.

Dear Mrs Davies, I am really shocked that you could argue about any consideration concerning gender. A doctor cares about his patients regardless any particular or personal point either gender or religion or origin. You just CANNOT write and even think about that. I perfectly explained to you the importance of the new lesions in the spinal cord. These lesions are at high risk of developping paraplegia in the following months.

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