tysabri journals

If you go to youtube and type in Tysabri you will find a young woman that journals about her journey with Tysabri and how much it has helped her. The drug sounds scary but her results have been nothing short of a miracle considering the condition she was in before starting it. I know the infusion center I go to, the nurses have nothing but good things to say about the results of those using Tysabri. I am still in the middle of the road on a decision to begin it or not. I wish you the best.

Just FYI... I was on the Ovarian cyst forum and noticed the "addiction" entry.. The same entry is on this journal site as well .. I don't think anyone is deliberately posting over here or there. I 'm wondering if it shows up on ALL community journals in which you have membership. Try it yourself and you'll see.. I put a journal entry on the OVCyst form and here it is--- over here as well.. I didn't enter it here...curioser and curioser...

I disagree. Journals aren't the problem. It's how they are used. Used right and they can be a helpful resource. (please check my earlier journals about autism and my dad's (MJthewriterdad) journals). But true, some journals and notes are better off as personal messages, espcially some of the comments.

I suggest before you blast my journals you take a look back your own and the moods,, that you guys have put up, are you saying you have not done the same....thats a stretch guys and you know it .I suggest that all here look at some of the journals if they are still there .,hypocritical .

Sine you just updated, now I cannot add anything to my journals. What am I doing wrong?

Hola, desde la última actualización, no puedo acceder a mis "journals", ni escribir en ellos. ¿Cómo puedo abrirlos?

They found out the reason people contracted PML was because they were taking Avonex/and the other MS medications with Tysabri. I think the Tysabri has given me a second chance at helping slow my disease progress, but with out it I would be on no MS medications to slow the disease. I did alot of research before I decided to start the medication and the one resource that helped me make my decision was reading the Tysabri diaries on line. www.msrc.co.uk/index.cfm?

I have had MD for 18 years. Been on Avonex, Betaseron, Tysabri, and now Tecfidera. Unfortunately, I'm also on lots of other medications, mostly due to terrible central pain. My neurologist made me stop the Tysabri after 24 infusions because of safety concerns. I felt my overall best while on Tysabri and have asked him if and when I might be able to go back on the monthly infusions. He does not have an answer for me at this point.

Are any of you on Tysabri? My doctor has suggested that I consider starting Tysabri treatment. His neurology practice runs a TOUCH infusion center. I've been on Copaxone for four years and have just had my first flareup. My recent MRI shows progression of MS with T2 hyperintense white matter lesions in the pons of the brainstem and the frontal lobe. Several of the older lesions have increased in size. Five years ago I was on Avonex. I had multiple flare-ups the whole year on this med.

I would like some information/details from anyone who has had (or seen) the rash you can get from Tysabril and/or PML?? I have been on Tysabri 10 years so far without any major issues. I was outside after my treatment for 10 minutes or so. After taking my shirt off, my husband gasped and asked what was wrong with my back.

I've been tested twice in the last year, and they were both negative. Since you can acquire JCV at any time, I opt to have my status tested once a year since I'm on Tysabri. There is also a Tysabri antibody titre available, now. I plan on doing that once a year, too, although development of Tysabri antibodies is relatively rare.

My new neuro suggested Tysabri based on increased lesions on Interferon (Rebif). Any persons out there on Tysabri that could share their experience?

From a google search I saw a post that copied a quote from "Ryan's journals" about benzodiazepines. Are his journals still available to read? I could not find them through the search function.

I've kept a pregnancy journal with each of my pregnancies (this one is no exception) and as I'm reading through them I'm realizing a few things. First, I didn't feel truly sick until I was 8-9 weeks with my first daughter, and closer to 10-11 weeks with my second daughter. I hope this gives some of you a measure of hope as I know some of you haven't felt ill yet and want the assurance that things may be okay! Second, writing things down HELPS!!!

He feels that Tysabri is the way to go. I know that there are others here on it or used to be. I would love some insight on what to expect, how long it takes, etc... Thanks!

I will start tecfidera in 3 months I hope I dont have the rebound effect I have heard about after stopping tysabri. Tysabri has really changed the way I feel was using a walker now nothing and I do Zumba too. I hope I stay like this but having doubts. anyone using tecfidera? How was your experience.?

So now he wants to take me off of the Copaxone, I have been on for a month and a half, and put me on Tysabri. I started the application process and now waiting for them to call me and get the ball rolling on that. Now he mentioned that this is the top of the line MS medication so that does give me some relief. P.S. I did test negetive for the JC Virus. Any thoughts, experiences etc on this Tysabri??!!

The research side of my MS Practice has identified a CSF biomarker for disease activity. The research is featured on the cover of this month's Multiple Sclerosis Journal. http://tischms.org/news/tisch-ms-breakthrough-biomarker-research-featured-cover-article-october-2013-issue-multiple I'm a beneficiary of this discovery. I had been on Tysabri for 20 months. At 18 Months I converted to JCV +, and we discussed switching from Tysabri to Tecfidera.

side effects for each other medicine and now this with tysabri. Has anyone else been on tysabri and developed c. Diff from it? If so, what did they do to help it? Stop tysabri? Any information would be greatly appreciated.

There is an alogirthm for the chances of contracting PML while on tysabri. I believe it is on the tysabri website among other places. I will see if I can find it for you and report back.

Tysabri journals

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