tysabri infusion effects

My sister has been using tysabri for 10 months and is doing extremely well! I can ask her any questions you want.

Tysabri is a tightly controlled drug because of its black box warnings - that means some people have died from tysabri side effects. You absolutely have to take it at an infusion center. Good luck with the transfer.

So I just finished my 2nd infusion about a week ago and was wondering what people's side effects were from that. My body felt like I had a severe flu for like 3 days :( . How long also does it take to notice the drug is working for you .

If you have been on tysabri, please share your experience with me. Did you have similar side effects? Did they go away over time? How much time? I have MRIs scheduled on Friday to check for changes and I'm hoping that will help me make some decisions. Thanks in advance for your experienced!

Hope everyone is well. I just wanted to give an update. I had my first Tysabri infusion this morning and I experienced no side effects so far at all. Over the last 2 months I have had some improvment. I still have all my symptoms but they're less intense. So here's hoping for the best. Hoping this medication works at seriously slowing this beast way down. How are things with everyone? I truly hope everyone has been well or well as can be expected.

Hi - Next month I will have Tysabri infusion #12. I have had no side effects from the drug. In fact, my infusions are a complete non-event. I have not had any relapses since starting Tysabri. It's the only DMD I have ever taken.

s a side effect of the Tysabri could be possible, there are other MSers talking about hives as well as other side effects, below are some i found on a google search... http://multiplesclerosis.net/?s=Tysabri+&submit=Go www.tysabri.com/about/side-effects http://www.nationalmssociety.org/Treating-MS/Medications/Tysabri-%C2%AE Hopefully someone who's on Tysabri will chine in... Cheers.....

I was changed to Tysabri and had my first infusion yesterday and everything went great, no reactions or side effects. However, I could swear I have more energy today. I have not been shopping for months and today I was able to go shopping. Is this my imagination? Just a rare good day? Or could the med already be having an effect on my fatigue? FYI, all other symptoms are pretty much the same.

Hi Miche- Welcome to the group :-) Tysabri is a Disease Modifying Drug (DMD). It is given to help slow, if not stop, the progression of MS. It is not geared towards relieving current symptoms. It is supposed to help prevent new symptoms from developing or current symptoms from worsening, but not making existing symptoms better. That's the official story. Many Tysabri users report a performance boost just after infusions and a drop off in performance just before the next infusion.

Thanks guys! I will bounce it off of my neuro in May then and ask him to line me up. I'm back to looking for a new infusion center and have missed my January infusion. So, I'm ok in the summer but in the winter, its heck to settle new infusion sites, takes at least a couple weeks, at least around here! I could live with flushing and a upset stomach, I get the upset stomach anyway!

m starting tysabri - first infusion tomorrow. After going through a nightmarish war with my insurance (you probably know that...) it was finally approved. So tomorrow if THE day. I think I'm slightly nervous after all (thought I wouldn't be). I'd love if you could share your post-infusion experiences - should I expect any awful side effects? If so, how long do they usually last?

I am having a side effect from , I think, from my 1st Tysabri infusion 3 days ago. About 15 minutes into the infusion, I became extremely nauseous. It got really bad, and I needed a bucket. Got better, and has been coming in waves ever since. I spoke with NP at neuros office yesterday. Called in an anti-nausea medication. That is giving me a bad bad headache. The NP told me she had never heard of nausea as a side effect. She thinks it is coincidental. Has anyone here experienced that?

Had my first Tysabri infusion this morning! I wasn't sure it was ever going to happen, but it finally did! The nurse had me take Tylenol and Benadryl. Is that something you have to continue to do every time? I don't mind, just wondering. So far I'm not having any issues, but it might be because I took the meds.

I also had a headache and joint pain right after the infusion. Will Tysabri help with tiredness after a few infusions?

I will hope along with you - may tysabri do good things for you. I have my 7th infusion on Monday. It will take a couple months before you feel the difference.

That is when I asked my Dr. about Tysabri. This is a monthly infusion that last 1 hour. My first infusion made my heartbeat a little fast, but I was nervous. I went straight home after the infusion because I expected to be sick. I wasn't! As the day went on I started to feel like I had more energy, but I was afraid if I got up and started doing things I might end up sick so, I just rested that day. The next day I woke up feeling great...

My sister had her first Tysabri infusion today and all went well! I was so anxious for her, but for no reason--she sounded great. She had to start the Tysabri because she was getting this terrible-looking, itchy rash which hurt which her neuro (actually our neuro) had said was probably a reaction to her Rebif. She also was progressing in her disease.

I have been on Tysabri for 7 months and after I had mt first infusion......things started to work again! The closer it got to the second treatment things started to come back, My neurologist said I needed three months of medication to build up a steady level in my blood. I have tried all the other medication and failed them, so having a once a month infusion at the Oncology clinic is great. I am not sick after the treatments, just really tired. The next day I am fine.

Hi Kat - I will get my 11th infusion in about 10 days. I have had no issues of any kind in conjunction with Tysabri. From the follow up MRI's I've had Tysabri seems to be doing the trick. No new lesions or relapses since I started. You will be tested for the JC virus prior to starting.

It is taken, not because of my MS, but because of my reaction to the Tysabri. I have side effects and the Decadron takes care of that nicely. So, that said, the steroid is not treating the MS, it is treating the side effects. Hope that helps explain what I originally said......sometimes cog fog gets in the way.

My neurologist told me that after the first infusion I would feel good and then the closer it got to the end of the month I would feel bad again. She after the third infusion I would have a level amount of Tysabri in my blood. I guess she was right because I don't feel sick any more after the infusion....just very sleepy. Hang in there and remember there are alot of people praying for you. Keep us updated on your prgress.

Tysabri infusion effects

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