Tysabri infusion cold

Common Questions and Answers about Tysabri infusion cold

tysabri

Avatar f tn Hopefully it is something else, and not really the Tysabri. Has this happened every time you have had an infusion? You mentioned you were on antibiotics - if you've been sick or had an infection of some sort, that could definitely be a big part of how you are feeling. I know the longer I'm on Tysabri, it seems I get sick easier - and when I do, it hits harder and lasts longer than it used to.
Avatar m tn From your question I am not sure if you are talking about the cost of the Tysabri or the cost of the infusion center (or wherever you get your monthly IV's done). Have you talked to the BioGen folks about assistance with this cost? You could also maybe apply to NORD, but I understand that is a time consuming process. Before you make a final decision, please go to your neurologist and have this discussion with your doctor.
Avatar f tn After waiting for insurance to approve and waiting for rebif to clean out of my body I had my first tysabri infusion on June 3rd, 2014. By the next day I could tell that it was easier to get up and my balance seemed better. I didn't notice anything else but was excited about what improvements I would have in the future. I felt the same after infusion #2 but was hoping for more. After my third infusion I had a bad headache for 2 days and didn't feel any improvements.
294425 tn?1288528395 My neurologist told me that after the first infusion I would feel good and then the closer it got to the end of the month I would feel bad again. She after the third infusion I would have a level amount of Tysabri in my blood. I guess she was right because I don't feel sick any more after the infusion....just very sleepy. Hang in there and remember there are alot of people praying for you. Keep us updated on your prgress.
1760800 tn?1406753451 He feels that Tysabri is the way to go. I know that there are others here on it or used to be. I would love some insight on what to expect, how long it takes, etc... Thanks!
Avatar n tn Hi I was diagnosed with MS in May of 2001. My neurologolist wants to me to try Tysabri. I have already tried the shots for ms and they don't work to well with me. But I already have most of the side of effects that go with tysabri. Please help me.
Avatar f tn A day before the infusion they call me and tell me it is going to cost me 1200 to get the infusion - payment up front or at least some form of pay plan. ?????????????? what happened to $400? They tell me that that was the medicare price and someone quoted my price wrong. I'm like " three different times someone gave me the wrong price?" I cry. I yell at a lot of people. I tell them they are ripping me off.
Avatar f tn I was changed to Tysabri and had my first infusion yesterday and everything went great, no reactions or side effects. However, I could swear I have more energy today. I have not been shopping for months and today I was able to go shopping. Is this my imagination? Just a rare good day? Or could the med already be having an effect on my fatigue? FYI, all other symptoms are pretty much the same.
1831849 tn?1383228392 As I type my 12th Tysabri in fusion is flowing into me! It's hard to believe that it's been a year since my diagnosis. I've learned more about MS and life with a life long disease. I've made a few minor changes to accommodate it, but fortunately my life is largely unchanged. Believe it or not, learning I have MS has explained a lot of seemingly unrelated issues. In that sense my DX came as something of a relief :-) Here's looking forward to 12 more Tysabri juice boxes!
Avatar f tn So I just finished my 2nd infusion about a week ago and was wondering what people's side effects were from that. My body felt like I had a severe flu for like 3 days :( . How long also does it take to notice the drug is working for you .
645390 tn?1338555377 I am having a side effect from , I think, from my 1st Tysabri infusion 3 days ago. About 15 minutes into the infusion, I became extremely nauseous. It got really bad, and I needed a bucket. Got better, and has been coming in waves ever since. I spoke with NP at neuros office yesterday. Called in an anti-nausea medication. That is giving me a bad bad headache. The NP told me she had never heard of nausea as a side effect. She thinks it is coincidental. Has anyone here experienced that?
Avatar f tn Hope everyone is well. I just wanted to give an update. I had my first Tysabri infusion this morning and I experienced no side effects so far at all. Over the last 2 months I have had some improvment. I still have all my symptoms but they're less intense. So here's hoping for the best. Hoping this medication works at seriously slowing this beast way down. How are things with everyone? I truly hope everyone has been well or well as can be expected.
1394601 tn?1328032308 I will be having my fourth Tysabri infusion on Monday. I have been keeping a journal ...It is called "Hoping for a Miracle"...lol...At any rate, I had my first infusion a bit too late and landed in the hospital for thirty days. The day I was released I had my second. Now infusion two and three seemed to give me three weeks of great hope.
738075 tn?1330575844 If your first infusion is next week, then I would try and hold off the steroids as long as possible, othersise your Tysabri infusion will have to be delayed. With the TOUCH program they are really careful. Way to go with your gig in S.F - hope it goes well for you.
1896537 tn?1381900009 Hi all, I haven't logged in for ages but hope one of you will be able to answer a question for me. I've had eight infusion's so far of Tysabri and am doing really well on it. I'm coming up for a whole year with no relapses and I don't feel bad after my infusion. However, I have started to notice a couple of issues. The first is that around a week after infusion I develop big hives if I sit in the sun (not such a problem in the UK since it's rarely sunny!
738075 tn?1330575844 My symptoms all magnified, and getting through a day of work was monumental. I guess it was all a matter of time before I flared. My last Tysabri infusion was on 11/2/13, and it took my new neuro and new infusion site two months to get their stuff together. The day before yesterday (1/8), I finally got a Tysabri infusion - Halleluiah!!! Hopefully, this flare will subside soon. I'm not one to go for IVSM unless I absolutely have to.
6738741 tn?1384288433 I feel very tired for a few days after I receive my Tysabri infusion. Is that normal or is it in my head?
1088527 tn?1425313375 My question is I am on tysabri and know that prednisone dont mix next infusion in 2 weeks I am gonna call my neuro on mon and ask and tell her what happened with the baclofen and see what else we can do for pain I take lyrica and klonopin not much help she ordered new mri due to increase in symptoms and I got those results yesterday at the er there was some slight changes from last mri done 7/12 so dont know if she will want me to stay on tysabri or what will ask monday.
252144 tn?1227422620 That is when I asked my Dr. about Tysabri. This is a monthly infusion that last 1 hour. My first infusion made my heartbeat a little fast, but I was nervous. I went straight home after the infusion because I expected to be sick. I wasn't! As the day went on I started to feel like I had more energy, but I was afraid if I got up and started doing things I might end up sick so, I just rested that day. The next day I woke up feeling great...
429700 tn?1308007823 My sister had her first Tysabri infusion today and all went well! I was so anxious for her, but for no reason--she sounded great. She had to start the Tysabri because she was getting this terrible-looking, itchy rash which hurt which her neuro (actually our neuro) had said was probably a reaction to her Rebif. She also was progressing in her disease.