Hello Mrs A
A forum where limbolanders can meet is long overdue, well done.
My MS was discovered nearly ten years ago so that is what we consider my official diagnosis date.
HOWEVER, we suffered through limbo because the neurologist I was with for years, whom I trusted, subscribed to the archaic notion that patients should not be told and didn't tell us.
We have since discovered that this was a common scenario decades ago but, unbelievably, is still happening today and not just to us.