Graves disease remission symptoms
Common Questions and Answers about Graves disease remission symptoms
graves-disease
I just went to a new doctor. I saw 2 doctors(endos) they said continue taking these meds and test in 6 weeks. They also agreed that my tests really don't fit Graves disease anymore. WHAT IS WRONG WITH ME? I had my cortisol tested in August and it was normal 17 after a fast. Maybe it's piuitary related. All I know is I don't feel well at all.
Thanks.
the author Elaine Moore, who wrote books on Graves says that normal people have no tsi or 2 percent, I think. Mine was 109 at diagnosis, even though the normal goes up to 125, that's bull! Some just don't feel symptoms till they reach that. I had an uptake scan too, which was normal but on the high side. I have heard the TRab test or the TBII is supposed to show remission. My doc argues this, he says it's just for diagnosing Graves. What was your TSI? What are your labs?
I was diagnosed with Graves disease 11 years ago. My endo prescribed Methimazole, which I was allergic to, so he told me he didn't want to prescribe me anything else because sometimes the allergy kills the thyroid. It apparently did, because all of a sudden I was hypo and I had to go on synthroid. Since then, I lost my health insurance and got handled by my PCP instead of the endo (cheaper).
I am 32, have seen my Family Dr. I was diagnosed with graves disease. I have also seen a endocrinologist who has told me is was a goiter. Im confused, I know my thyroid is getting larger. I have several symptoms but can not get a solid answer. What is the differance between a goiter and graved disease? What are the treaments for both?
The symptoms of Graves Disease would be those of hyperthyroidism, such as sudden weight loss, sweating when others are comfortable to cool, diarrhea, hand tremors, heart palpitations (these can be present with hypothyroidism as well), rapid heart rate, irritability, mood swings, fatigue and many others.
75mcg, I have recently been taken off the synthroid because the endo thinks my Graves disease is coming out of remission. What does this mean? My last TSH on 27Oct12 was <0.01L nad my T4,FREE is 1.2. The endo has repeated the TSH, T4,FREE and also ordered the T3,FREE nad TSI. I haven't received those results yet. Is it possible I have Thyroid Cancer now, or is the Grave's disease just coming out of remission and what should my next steps be.
I ended up with two thyroid storms from graves/hyper, NOT fun at all. I did the RAI, but the graves/hyper was to far advanced for it to help me. I ended up having to have surgery anyway after the RAI.
My heart rate was 140 sitting down, my eyes bulged out, I was down to 88lbs despite eating non-stop. Trust me get it treated before it gets worse. Thyroid storms are not any fun...
But you can always get a second opinion from an endo if it puts your mind at ease.
I believe I was diagnosed with graves based on my symptoms and on the positive trab antibody results which were up around 3.45 u/l in December... If it's negative now do I still need to be on methimizole? Am I technically in remission? And i do feel pretty sluggish lately and everything looks unreal to me.... I'm guessing these are hypo symptoms?
Graves is an auto immune disease which likely in your case your TPO antibodies are attacking your thyroid. Eventually if this is the case - your thyroid will stop working or will not produce well enough without medication.
It would be interesting if you could post your actual thyroid blood panels here to see the ranges you are at and were at.
Graves never goes away as stated . It only falls in and out of remission.
Graves Disease is never cured BUT it is managed better without a thyroid or after RAI.
You still have the antibodies but no thyroid for it to attack.
As for meds, you swap one lot for another.
You go from anti-thyroid meds to a T4 medication so basically you are on meds for life.
The thyroid regulates every organ in your body and if no thyroid, meds have to do the job.
Hyperthyroidism is a lot easier to manage without a thyroid.
I am currently taking PTU to help with my Graves' Disease but was wondering if anyone had any suggestions I could do to help? Changes in lifestyle, dietry changes, vitamin supplements etc? My aunt is a GP and a trained herbologist, she recommended chrysanthemum tea as a way of correcting my metabolism. Maybe we could compile some kind of list of things that help either Hyper or Hypothyroidism?
Thanks so much.
At first my endocrinologist was reluctant to prescribe more than a token amount of levosynthroid, although I was becoming symptomatic with hypothyroid symptoms. She feared Graves disease returning. I see her every 6 weeks and get blood drawn, and she has gradually raised the synthroid every time so that I am up to 112 mg per day. Obviously, every time I get labs done, I am thyroid-deficient. The last TSH level was 9.5.
9.5 is high, but not super high. Nonetheless, I feel exhausted.
Graves is an autoimmune disease. AI diseases are like roller coasters with highs and lows. Think of other AI diseases like rheumatoid arthritis, lupus, diabetes, etc.....they have times when they "flare" and times of "remission" where they are in active. It seems very plausible to me that you very right and probably are in remission -- just makes sense! But, the question is, like the other diseases, how long will it last? I hope a good long, long time!!! Congratulations!
I really thought I was losing my mind, I have had this for about 4 yrs and just now was diagnosed with Graves disease. My Dr put me on Methimazole and after 3 weeks had a severe reaction and was covered head to toe with a horrible insanely itchy rash. Mr Endo told me I have a couple options radio active iodine or somthing else which he did not tell me what. My question is how has the radio active iodine worked for others?
So unless your Graves' has gone into remission, stopping the Methimazole would eventually only put you back to square one: hyperthyroid. Seems like a reduction to 5 mg would be the better idea.
I have read that nearly half of patients who take antithyroid medications for their Graves' disease go into remission.
I was disgnosed with Graves when I was 14 years old and I am now 20 years old. I had general symptoms of Graves disease such as; Heart palpatations, goiter, tremors, weight loss, and sweats of my hands. I was first put on Atentol for my heart and Methmazole twice daily for my thyroid. Within a month I was off of my heart medicine and was still on Methmazole twice daily. Then probably within 3 months I was down to the dose which I still take today, one 10mg tablet of Methmazole at bedtime.
T3 Uptake is a different test, and it's considered obsolete and virtually useless. Despite its name, it's actually an indirect measure of T4. So, we have no idea what your T3 is doing.
T3 and T4 are the two primary thyroid hormones. T4 is made exclusively in your thyroid. It's the "storage" form of the thyroid hormones. However, cells cannot use T4 directly; first it has to be converted to T3, the "active" form of the hormones.
Once you have Graves' disease, you have it for life. Antibodies may go into remission, but they never go away completely. Symptoms will come and go if your antibodies go into remission.
Your endo will probably do a TSI test (thyroid stimulating immunoglobulin), which is the definitive test for Graves' and will confirm it. In addition, he should test your free T3 and free T4, which are the actual thyroid hormones and much more indicative of thyroid status than TSH.
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