I just joined this forum and have a question regarding my EBV tests and Valcyte. My doctor wants me to start Valcyte for my elevated HHV6 and EBV antibody levels. I will post them and if anyone here has any thoughts on them I would very much appreciate it. I know this isn't an HHV6 forum but I will post the test results as well.
HHV6 Ab IgG 21.44 (range 0.1-1.
s (Stanford University) Valcyte trial. Fortunately... he was one of the lucky ones. The first Valcyte trial was a success, but I've heard (without seeing the results) that the second trial wasn't. One woman claimed on the internet that she became worse after taking Valcyte. Of course Valcyte is a nasty drug and this trial and many physicians won't prescribe it unless you are disabled.
CMV is the most common infection is post transplant patients which is why we recipients are prescribed Valcyte for a period of months after our transplants as part of the anti- fungal, anti-bacterial and anti-viral regime of meds along with out immunosuppressants.
In the vast majority of patients, CMV disease responds to treatment with intravenous Cytovene/ganciclovir.
However after about a week and a half to two weeks the pain went away. I was started on Valcyte about 2-3 weeks after all this. I also had a blood vessel rupture in my eye towards the back making it almost impossible to see anything when I went to try and find out what was going on (Have been seen by three different optometry clinics). I Have also been using Predisonal 4-6 times a day and Cyclopentalate 2 times daily.
s office - mn gastro just called to say that Target/Triessent cannot supply this med as the manufacturer does not have it. I am terrified - need the procrit to complete last 12 weeks of tx -- can anyone help me out with this?
Why do that when we have Valcyte (also a little bit frightening, but probably not as bad as the chemotherapy treatment) ?
I do plan on adding Ampligen to the list of CFS treatments. I also need to add that Valcyte trial. But of course... some of these treatments for CFS are risky. I want to include my personal thoughts on that as well (and anyone elses).
Antivirals suppress the immune system and as jason said, "keep the bugs at bay". There is one antiviral, Valcyte, that apparently is either curing or putting some CFS patients in remission... but the risks involved with Valcyte are too risky for me.
(about Valcyte: http://www.drpodell.org/chronic_fatigue_syndrome_hhv6.
The only two treatments that I am aware of that has apparently cured some CFS patients would be the antibiotic protocols (I listed some of them in the health pages) and Valcyte, a very powerful anti-viral drug. The co-founder of PetsMart was on the original study and he is now jogging again. He said he had CFS after a flu-like illness and I believe he was disabled when he participated in the study. I believe Dr.
It is working, although it takes years and can make you feel worse. But it is intended to cure CFS... just like the drug Valcyte. But Valcyte is an immunosuppresant and has some very toxic and possibly deadly side effects.
If you have any questions for Dr. N... zip them my way before 5 PM (Pacific Time) today. Send them via PM or note.
The other viruses showed latent infection controlled by the immune system. I was given Valcyte 450mg a day for 4 months.. after that 2x1000mg valtrex (valacyclovir).. my CMV titers fell down the half and i stopped the medicine.
Now im thinking.. that all the time, all my problems are caused by the ebv virus.. and i think im right because all other things.. like:
vitamins (also vit D, B12 .....)
Infections (really all kind of Infections.. babesia, bartonella, toxoplasmosis...
Thanks Teak
It was taken in Hong Kong but test description only says-Hiv1/2 Ag/Ab (by CMIA), hence I wished to enquire about manufacturer. Not sure if any one other than Abbott manufactures 4th generation CMIA test
The test was done from old and well known lab prescribed by my doctor.
Can changing the manufacturer on your medicine cause them to lose effectiveness or how they are making you feel? Our insurance changed, and when it did I had to go to mail order meds. Since I've had to change, I have been struggling with my moods like I did before medication. (not quite as severe, but it's been a few years since my moods have taken such a severe dive)
Any advice or thoughts would be so welcomed. I cannot handle feeling like this much longer.............
I have been with the same manufacturer of metoprolol succinate for 2 years and had no problems and now they went out of business and the new manufacturer of the same medication isn't working for me!
My son is 16 and was diagnosed with mono February of 2012. He has had neurological difficulties and a steady cognitive decline. His HHV-6 IgG was 1:1280 and his DNAse B antibody was 448. His doctor wants him to start Valcyte. Does anyone have any thoughts on this.I'm not sure how this will effect him while going to school.
If so, what manufacturer makes it? Muscle weakness from Baclofen has been very difficult for me and I am injuring muscles more. In the past, Northstar and Upsher made pills that didn't weaken the muscles as much, but then they changed the formula. Now they weaken muscles far more. Or if you take Baclofen from another manufacturer that does cause significant weakness, tell me which one that is.
The problem comes in when pharmacies buy from different manufacturers. They changed the manufacturer of my T3 med, once and I went downhill in a hurry. I had tell them, which manufacturer I will accept T3 med from, so they flagged my account accordingly.
As MichyDevon said, each manufacturer uses different fillers/binders to which you could react adversely. If you find one that you do well on, there shouldn't be any reason not to take it, so long as your doctor is okay with it.
Please refer to the testing instructions included with your test by the manufacturer. Since no one would ever bother running the test without swabbing, this question is hypothetical. If you have questions about whether you followed all instructions, you can review the instructions, contact the manufacturer of the test, or discuss with your physician.
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