has suggested a diagnosis of Trigeminal Neuralgia. I am on a wide host of medications but not getting relief. I have had MRI, CT scan, etc... What do you suppose I do next. Does this sound like a likely diagnosis?
Hi,
I would suggest you to try alternate treatment like acupuncture. Acupuncture has shown good results in drug refractory trigeminal neuralgias.
Please check the link below.
http://www.liebertonline.com/doi/abs/10.1089/acu.2007.0535
In some cases of refractory occipital neuralgia CT fluoroscopy guided nerve block have produced good results.
http://www.ajnr.org/cgi/content/full/24/10/2105
Hope this helps!
Traumatic trigeminal neuropathy is generally not associated with trigeminal neuralgia. However, both entities may be responsive to pharmacologic intervention. Seeing a neurologist or orofacial pain specialist misadvised.
I have tried many medications, physio, acupuncture, chiro. I have been told it is not MS or Trigeminal Neuralgia even though a lot of my pain patterns seem to follow branches of the TN nerves or nucleus from brain, into tmj joint, face, teeth and nucleus at cervical spine. I have had three neurologists rule on trigeminal neuralgia. However, couldn't there be nerve impingement somewhere along the trigeminal nerve path?
I have a recent dx of Trigeminal Neuralgia from Primary Care and have been referred to Neurology for further evaluation. The pain distribution is unilateral and follows the sensory distribution of cranial nerve V at the maxillary area. History of previous trauma (neuroplasia) dates to 1997, though asymptomatic to current presentation. There is no prior history of TMJ, aneurysms, tumors or other common precipitants. I am 61 years old, consistent with typical onset.
Your symptoms do not exactly match the clinical picture of trigeminal neuralgia but you should continue with the treatment and do notgo in for complicated details.The treatment consists of medicines, surgery, and complementary approaches.
For more information refer http://www.ninds.nih.gov/disorders/trigeminal_neuralgia/detail_trigeminal_neuralgia.
Do you think this can still be Trigeminal Neuralgia? Is a neurologist the best type of Doctor to seek treatment from?
Thank you again.
I was diagnosed with trigeminal neuralgia yesterday and have been prescribed oxcarbazepine also hydrocodone for pain. I know I can trigger the attacks by movement of my head but I also get attacks by putting various foods in my mouth. I really don't even get a chance to taste them since I go into pain immediately. Do you have a list of triggering foods available?
i have a reaserch on mangment of trigeminal neuralgia , but i cann't know until now which the best medical or surgical treatment and i couldn't found which have high rate of recurrance.
I wasted thousands on a chiropractor. More on an acupuncturist.
Hello,
I would like to know if any one out there has TMJ like symptoms along the jaw area, along with their neuralgia. I have been told it is not trigeminal neuralgia, but the symptoms seem to be more like atypical trigeminal instead.. It is consistent, and very painful and the pain medications are making me so sick, I can't function.
Does Trigeminal Neuralgia worsen with age. I've tried Tegretol but the pain has some back agaiin after about a year and is very, very intense. It is like a needle made of glass penetrating the right side of my nose and going into my head. What is the best treatment for this and can it be cured completely.
This discussion is related to <a href='/posts/show/894401'>Trigeminal neuralgia more help</a>.
Hello,
In your case, I think that it can be trigeminal neuralgia. Trigeminal neuralgia is very painful swelling (inflammation) of the nerve (trigeminal nerve) that delivers feeling to the face and "surface" of the eye. Trigeminal neuralgia causes severe, short-lasting (only a few seconds) facial pain on the side of the affected nerve even by slight touch. Mostly affects elderly females. May be caused in multiple sclerosis also.
Does anyone know an Acupuncturist who specializes on the relief of pain from Trigeminal Neuralgia in the UK/ France/Germany?Brussels?
Any feedback on this appreciated.
Hello,
From your symptoms the possibilities of trigeminal neuralgia and temporal arteritis need to be ruled out. Trigeminal neuralgia is painful swelling (inflammation) of the nerve (trigeminal nerve) that delivers feeling to the face and "surface" of the eye. Trigeminal neuralgia causes severe, short-lasting (only a few seconds) facial pain on the side of the affected nerve even by slight touch. Mostly affects elderly females. May be caused in multiple sclerosis also.
Trigeminal neuralgia can come and go but your statement suggests that you probably had some type of nasal surgery or what is called percutaneous stereotactic radiofrequency rhizotomy, an effective treatment for trigeminal neuralgia and one with lasting benefit. Thus the pain that you are now experiencing is unlikely to be related to the trigeminal neuralgia, as you yourself suggest.
org/posts/Multiple-Sclerosis/Attack-of-trigeminal-neuralgia--OMG/show/2646953#post_12856616) I moaned about it, but I have to say it was excruciating. Fine now, at least from that standpoint.
The standard treatment is Tegretol (carbamazepine). It turns out I can't tolerate that, as a reasonably effective dose wiped out my balance and had me staggering all over the place. It also almost destroyed my platelet count, which was down to 23.
i have been treated for tmj for 5 years with no relief and then i had an arthrocentesis done and still no relief. now my doc tells me i have trigeminal neuralgia and is going to give me an injection into that nerve. what i want to know is there side effects of this injection? and can trigeminal neuralgia cause pain in the back of the head where the skull meets the spine. i have had continuous pain there worse then ever. i am now on neurontin and baclofen and it helps extremely.
Symptomatic trigeminal neuralgia is usually caused by multiple sclerosis or by tumours arising near the trigeminal nerve root.
Differential diagnosis of trigeminal neuralgia:
Cluster headache - Longer-lasting pain; orbital or supraorbital; may cause patient to wake from sleep; autonomic symptoms
Dental pain (e.g.
There is a chance of a misdiagnosis here if Tegretol is not working. It is the gold standard for treating trigeminal neuralgia. If it is not working, it may possibly be pain of some other cause. The neurologist may be able to help you sort this out.
In all probability, you are suffering from trigeminal neuralgia. For medical treatment of trigeminal neuralgia several types of drugs are tried either singly or in combination. These are anti-epilepsy drugs such as valproate, carbamazepine, lamotrigine, phenytoin, gabapentin, and pregabalin; muscle relaxants such as clonazepam and baclofen; tricyclic antidepressants such as carbamazepine, amitriptyline, and nortriptyline.
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