This link goes through a lot of the available procedures.
http://www.umanitoba.ca/centres/cranial_nerves/trigeminal_neuralgia/manuscript/index.html
A good neurosurgeon or facial pain specialist should be able to give you information about all the procedures available and what would be recommended in your sister's case.
Another good site is http://www.fpa-support.org/ -- the Trigeminal Neuralgia Association.
i have been treated for tmj for 5 years with no relief and then i had an arthrocentesis done and still no relief. now my doc tells me i have trigeminal neuralgia and is going to give me an injection into that nerve. what i want to know is there side effects of this injection? and can trigeminal neuralgia cause pain in the back of the head where the skull meets the spine. i have had continuous pain there worse then ever. i am now on neurontin and baclofen and it helps extremely.
Trigeminal neuralgia symptoms can be scary, causing anxiety, rising your heart rate. Follow up with your doctor for what you describe to make sure that there are not other conditions involved, I agree that your described conditions do not seem commonly related to the diagnosis alone.
Does anyone out there have neuralgia pain along with their TMJ or TMD pain??? I've been tested for trigeminal neuralgia several times and they are telling me I don't have it, or facial neuralgia, yet it fits the description according to the pain I am having. My pain is extreme, and I am taking various meds that are making me sick... Wondering if anyone else is in this position..
seekandfind46..
Hello all. My neuro has never actually said I have trigeminal neuralgia, he's treated my imaginary facial pain with various anti-seizure meds, recently I have used the diabetic med, lyrica, which works.
Question I have is, if bilateral trigeminal neuralgia is only common in ms, why can't THAT be a diagnostic aid, much like optic neuritis?
Should I have asked him to NAME my facial pain? To get him to admit something is up with me?
I've only had trigeminal neuralgia since Dec 17, 2008 and am 47 years old. I was told I'm "fairly young" for this disease, but I also have multiple sclerosis, so that may have been a contributing factor. Your son is much younger than me and that may be a big factor in what a doctor may advise.
My advice is that your son find a doctor who specializes in TN, preferably at a teaching hospital in the nearest big city.
//www.fpa-support.org/ -- the Trigeminal Neuralgia Association. They sell a book on their site called "Striking Back" that has a lot of good information.
Best of luck!
I am a 51 year old woman suffering from vagal glossopharyngeaal neuralgia (its much like Trigeminal Neuralgia but much less common. The pain comes from irritation of the 9th and 10th cranial nerves) My pain has become nearly constant and spikes whenever I am talking, eating, riding in a car. Neurotin, Tegratal, and Lyrica do not help. I have seen four neurosurgeons. The concensus seems to be that I need skull base surgery to cut the 9th nerve and a couple strands of the 10th.
duh to me, sorry, I don't know how I missed that I gave you the same name.
But I did find this doctor at www.endthepain.org, the trigeminal neuralgia association website. You can search by state at the top under "Health Care Providers".
Neurosurgeon in Orgeon:
Dr.Francisco X. Soldevilla, MD
Northwest Neurological Associates, LLC
19250 SW 65th Avenue, Ste. 260
Tualatin, OR 97062
USA
Tel: 503-885-8845
Fax: 503-885-8946
Web Site: http://www.providence.
The Facial Pain Association (formerly known as the Trigeminal Neuralgia Association) has a page on their website where you can look up health care providers by state. http://www.fpa-support.org/providers/index.html
You can also call TNA directly at 1-800-923-3608 or 352-331-7009.
Also, if you look at their Medical Board of Directors -- it lists various doctors in different areas of the country.
Carbamazepine (Tegretol) was first used to treat trigeminal neuralgia in the 1990s. Because of its success in treating that painful condition (which is very difficult to treat), it was then used to treat all kinds of neuropathic pain.
While it may be useful, there are more modern medications that may help if you have a neuropathic pain problem -- for instance, Neurontin (gabapentin) and Lyrica (pregabalin).
I have had symptons from trigeminal neuralgia for the past 5 years. Last April ina a 2 week period, every day the pain escalated. I lost 9 pounds. I am on carbomazapan, which stopped the lighteninglike pains from shooting down my face, but when I touch near my right eyebrow or put moisturizer and or makeup on and even brush my hair it is still painful. I am constantly pressing on my nose to try to relieve the pain.
The Facial Pain Association (formerly The Trigeminal Neuralgia Association (TNA)) is a 501(c)(3) non-profit voluntary health organization, serving patients worldwide who suffer from neuropathic face pain, including TN, their families, and the physicians, dentists and healthcare providers who treat them.TNA receives no Federal or State monies. Our primary sources of funding are contributions, membership fees and revenue from the sale of our books."
I find it very helpful.
Did you ever get a reply? Sounds like Trigeminal Neuralgia Type 1 or Atypical. There is help for this! Same needs used for seizures help condition and pain attacks. Tegretol is one but many more. Thank you
Neurologist treats TN. Studies happening now.
Presently taking gaba pentin for trigeminal neuralgia. As many of us struggling with issues, I have been doing a lot of research online. One thing I discovered was a 2013 study on people with Hashimoto's who also have trigeminal neuralgia. A woman on another site stated that after switching from synthroid to the natural form of thyroid meds, her numbness and pain has ended. I wanted to keep this short, so it's just the basics.
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