By ATN -- do you mean Atypical Trigeminal Neuralgia? If so, there are 5 different types of surgery. There are also medications -- mostly anti-seizure medications normally used for epilepsy -- that are used to control the pain. Problem with the drugs is, they can cause other problems (kidney/liver) and regular blood tests are necessary.
A facial pain specialist is the best doctor to seek out or a neurologist.
I've only had trigeminal neuralgia since Dec 17, 2008 and am 47 years old. I was told I'm "fairly young" for this disease, but I also have multiple sclerosis, so that may have been a contributing factor. Your son is much younger than me and that may be a big factor in what a doctor may advise.
My advice is that your son find a doctor who specializes in TN, preferably at a teaching hospital in the nearest big city.
From my research, sometimes MRIs don't show the nerve compressions. Was it a "thin-slice" MRI? Was it T-3 magnets? Both of these items help make the MRI more accurate.
The drugs are annoying -- there are many different types -- some have less side effects than others. There are also things you can do to counteract the nausea and fatigue.
I am a 51 year old woman suffering from vagal glossopharyngeaal neuralgia (its much like Trigeminal Neuralgia but much less common. The pain comes from irritation of the 9th and 10th cranial nerves) My pain has become nearly constant and spikes whenever I am talking, eating, riding in a car. Neurotin, Tegratal, and Lyrica do not help. I have seen four neurosurgeons. The concensus seems to be that I need skull base surgery to cut the 9th nerve and a couple strands of the 10th.
duh to me, sorry, I don't know how I missed that I gave you the same name.
But I did find this doctor at www.endthepain.org, the trigeminal neuralgia association website. You can search by state at the top under "Health Care Providers".
Neurosurgeon in Orgeon:
Dr.Francisco X. Soldevilla, MD
Northwest Neurological Associates, LLC
19250 SW 65th Avenue, Ste. 260
Tualatin, OR 97062
USA
Tel: 503-885-8845
Fax: 503-885-8946
Web Site: http://www.providence.
Hi all, small question for you, i had no symptoms for 5 months, which was wonderful, and then i got this urinary infection , and the next thing i knew i had severe face pain, particularly in my nose, where it feels lie i have been bashed in the face with a pan, i have buzzing in my ears, and just a general tightness in my neck and shoulders,
i got my eyebrows tattooed also, could this have caused trigeminal neuralgia ? or would it have been the infection, ?
I have had symptons from trigeminal neuralgia for the past 5 years. Last April ina a 2 week period, every day the pain escalated. I lost 9 pounds. I am on carbomazapan, which stopped the lighteninglike pains from shooting down my face, but when I touch near my right eyebrow or put moisturizer and or makeup on and even brush my hair it is still painful. I am constantly pressing on my nose to try to relieve the pain.
The Facial Pain Association (formerly The Trigeminal Neuralgia Association (TNA)) is a 501(c)(3) non-profit voluntary health organization, serving patients worldwide who suffer from neuropathic face pain, including TN, their families, and the physicians, dentists and healthcare providers who treat them.TNA receives no Federal or State monies. Our primary sources of funding are contributions, membership fees and revenue from the sale of our books."
I find it very helpful.
Did you ever get a reply? Sounds like Trigeminal Neuralgia Type 1 or Atypical. There is help for this! Same needs used for seizures help condition and pain attacks. Tegretol is one but many more. Thank you
Neurologist treats TN. Studies happening now.
I am a 38 year old female who was just recently diagnosed with trigeminal neuralgia. Back in 2003, I had brain surgery to remove a pinealoma and had a shunt placed less than a month later due to meningitis and hydrocephalus. My question is whether trigeminal neuralgia could be caused by scar tissue from the brain surgery. I understand that the trigeminal nerve begins at the base of the skull which is where my incision began for brain surgery. I have an appt. with a new neurologist on Nov.
Thankfully the Trigeminal neuralgia only lasts a few seconds at most. But I do have an appointment with a new neuro in August.
I know it could definitely be other things, I just wanted to hear that I'm not the only person that feels things everyday that no one can see.
I have been to see so many specialists over the years and the closest i hav gotten to a diagnosis is possible atypical neuralgia. Now I have noticed a small pea sized lump on my jaw just in front of my earlobe. It is hard and semimoveable when i do move it it makes my eye twitch or sends a shock to my ear. is it possible that is what is causing my pain as I have this lump on both sides of my face.
Thanks.
Traumatic trigeminal neuropathy is generally not associated with trigeminal neuralgia. However, both entities may be responsive to pharmacologic intervention. Seeing a neurologist or orofacial pain specialist misadvised.
Does anyone out there have neuralgia pain along with their TMJ or TMD pain??? I've been tested for trigeminal neuralgia several times and they are telling me I don't have it, or facial neuralgia, yet it fits the description according to the pain I am having. My pain is extreme, and I am taking various meds that are making me sick... Wondering if anyone else is in this position..
seekandfind46..
I have been living with trigeminal neuralgia since 2004 when it was first diagnosed. I am taking carbamazepine, occasional lamotrigine and have recently been advised by my neurologist to add pregabalin, 2 daily. At present, my TN has shifted from the usual position from the left side of my face and down the left side of my nose to a new and very painful path from the scalp (front forehead) and down the left side of my nose. I cannot bear to touch my scalp without bringing on a spasm.
I suffer from trigeminal neuralgia and am currently taking BACLOFEN to help with the pain. I was treated with the Gamma Knife about a year ago without success. A friend also had TN and was treated with an alcohol shot to the face that had to be repeated about 4 weeks later. That was over 10 years ago and he has had NO pain since. I can find only passing references to the alcohol shot to the face. My question is where can I go to get this alcohol shot to the face?
Recommended
