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Topamax and rsd

Common Questions and Answers about Topamax and rsd

topamax

913054 tn?1242955793 only thing it made me was extremely irritable and my hands, where rsd is became much more sensitive and painful..needless to say I am no longer on it. Feel better !
Avatar n tn I've had RSD for 4 1/2 yrs. Been through injections, nerve blocks and failed attempt for a SCS and I've tried many medications that usually have some allergic reaction. I'm on a couple that don't take the pain all way but my system tolerates. My new doctor wants to try and do 3 stellate ganglion blocks for my arm. The other blocks 4 yrs. ago didn't help. I asked him about nerve blocks for my feet because it is a fairly new area that the RSD is spreading into.
Avatar f tn I have RSD and hey have done so many spine shots trying to stop this RSD to no avail.............at this time there is NO cure for RSD and its very painful. I just hate being tied to a pill and want off them. Thanks for listening.
Avatar n tn I saw a new ENT and he said that I probably had RSD. I saw a pain specialist yesterday and she put me on Lyrica, and agreed that I have RSD. I'm going to see her again next week. I've read that RSD is treatable if one goes after it early. Is there anything else that I should be doing? Additional medicine? Injections? I do not want to have this terrible burning for the rest of my life, and any advice would be greatly appreciated. Thank you.
Avatar f tn I am glad you are at least getting the support of a Celebrate Recovery group, but am sorry you are not able to get "formal therapy" right now. It's really great though that you are taking the initiative to go to that group though. That's a big step in itself that you are doing it for yourself you know? Do you have insurance by chance? I know that's a bit of a personal question but insurance does usually help with therapy and such.
Avatar f tn Thanks for your reply... unfortunately my orth.since I talked to his assistant hasn't wanted to communicate with me at all since I let them know about rsd...i'm seeing a dr. who specialized in pain management, and rsd. I've found alot of dr's have no experience and extrememly limited knowledge of rsd..which is unfortunate. I've been told if caught early ( which it generally isn't) is much more easily treatable.
523707 tn?1212468941 I just happened to notice the mention of RSD on this site and was wondering if there is any person suffering from RSD that had a sudden onset of fluid retention that has never gone away. After going through so many workups and blood tests and scans and seeing so many doctors only to hear that they just don't know why I suddenly put on 15 lbs. of fluid while on vacation in 2005 and to this date it hasn't gone away.
Avatar f tn I am on topamax now and some side effects are hard to deal with. my dr is decreasing my dosage. my side effects are that my arms and legs are numb and tingling like pins and needles and I am very tired I have diahreea alot. you have to stay in contact with your doc while on the medication.
Avatar f tn ve has RSD since 2000 when I went into the hospital for a kidney infection and ended up on the RSD nightmare road. I've done nerve blocks, narcotics, denial, counseling. I am very lucky to live in an area that has doctors who understand and are sympathetic to RSD. I finally found a pain care facility that actually cares about their patients not just the money. I agree with the statements that stress worsens the condition, I am living proof of that.
5857909 tn?1375628784 I have reduced quite all my medication and I feel like slowly back to being the person i used to be I am currently taking only 50mg of Topamax and I can say that the pain disappeared almost completely and the goal is to be free of this medicine at year end. Also I have feelings of anger, because I think I've been taking Topamax for over 10 years without any sense. I think I have found what was the source of all my chronic pain and Topamax was not helping me at all.
975514 tn?1324997938 I've been taking Topamax for about 2.5 months and since then noticed some issues with my left eye. Within a month of being on Topamax my left eye seemed very dry, so I thought I was suffering from allergies (which I do have). I purchased some over the counter allergy eye drops, which caused my left eye to dilate, which scared me. Being cautious, I went to see a optician for a basic check up because I know about the possible Glaucoma complication with Topamax as well.
Avatar f tn Has anyone ever responded to the original questions posted in 2010? I am curious. I have been taking 300 mg Wellbutrin and 200 mg Topamax since May 2016 and have lost approx 30lbs. I wasn't aware of the side affects and my doctor said as long as I feel fine there is no reason to run tests. I just want to make sure others are having this same significant weight loss.
Avatar f tn Oh and vistaril too.
Avatar n tn All of a sudden, I have experienced joint pain and stiffness. I found out that topamax can lead to these side effects. however, I have gradually gone off the topamax and have quit taking it for approximately 4 - 5 days. Today I am still stiff (shoulders, knee, wrist and ankles) and my ankles are swollen. Do you think this is still a side effect of Topamax in my system?
Avatar m tn post laminectomy syndrome with significant ridicular component in both upper extremities and RSD with the primary focus in the left upper extremity and cervival facet arthropathy." The report also indicates I have severe occipital neuraligia. I also have abnormalities bi-laterally in the bracheil plexus, carpel and cubital tunnel as well as remainng buldging and herniated discs. I recently moved from the Phila area where I was being treated to NW PA.
Avatar m tn Many of your symptoms are those of patients who suffer from RSD (Reflex Sympathetic Dystrophy), now called CRPS (Complex Regional Pain Syndrome), especially the burning, the shooting and stinging pain, or what many of us who have RSD, call stabbing pain. We also have aching pain. I fractured my shoulder four years ago, and when I went to use the computer after finally having surgery on the shoulder, I never realized just how related our hand typing was related to the shoulder.
Avatar m tn s. I have done research on possible help and any form of relief of this and came across the AMA and it saying that medical marijuana was very helpful with patients suffering from RSD. Please help or tell me if this is correct and also any other form of help that might work.
Avatar f tn , surgeon refused to see me for ongoing complaint of pain and swelling and discoloration in arm and hand, filed a complaint about pt guy, refused any further service from medical clinic... another clinic has taken me in, rx of RSD... now what??? any advise is welcome... still have swelling and bluish hand, numbness, weakness, cramps... however i do have fairly good range of motion....
Avatar n tn I am unsure what to do here, or to think. This has got me pretty worked up. I have spoke to drs. and nurses and they say it will heal and be fine. And my arm feels kind of weak.
4312556 tn?1352642436 My mom developed RSD last November after she fell in a restaurant and hurt her knee, tibia, and ankle. Is there anything out there she can do to ease ANY of the pain without taking a bunch of narcotics?
Avatar m tn yes , i broke my tibia in 2000 and had two surgeries to repair it. my doctor diagnosed it as crps-rsd but the break thru pain is terrible. have you ever been on oxycontin or anything else that has worked for you.
Avatar f tn t do that so, I just want to let you know that I did contact that other forum member with RSD. I know she has some things going on for the next couple of days and I haven't heard from her. But I did leave her a message about your post. Good Luck and I'm glad you're back!!!
Avatar n tn My RSD was diagnosed in, 2006, and then 2007 diagnosed with diabetes, now I have been diagnosed with gastroparesis, and on a waiting list for a gastric pump. I'm always hurting with my RSD, which makes me very weak and can't do much. The gastroaresis is painful as well. The medications do help, but without the medication, I would not be here today, the pain would be to bad. I see a pain management Doctor, and another Doctor for my gastroparesis.
Avatar m tn The doctor says I have RSD and has explained this disorder to me, telling me that it may never go away and may get worse. Is there a better treatment than just opiates and Lyrica?
Avatar f tn However, my doctor thinks that due to having so many back surgeries in so many places, shoulder surgery, wrist surgery, and due to also having Arachnoiditis, when RSD flares up on me, sometimes I can barely stand a sheet to be on top of my legs. Once I went for an ultrasound therapy (at physical therapy) and when the therapist put the ultrasound thing on my back I thought someone had hit me with a 2 by 4 wooden post!!!