) when given to patients with PRIMARY hyperparathyroidism. Sensipar (Cinacalcet) is NOT approved by the FDA for treating patients with primary hyperparathyroidism. If your doctor prescribed this drug for you, you should print this page of parathyroid.com and take it to him/her. Sensipar is likely to make you feel sick, and new evidence suggests that Sensipar can make your osteoporosis worse if you take it.
I have hyperparathyroidism (secondary) and at that time my glucose levels were getting up there also. Then I went on a anti-inflammatory diet and my glucose levels dropped almost 30 points. Now they seem to be rising again. I'm taking another PTH blood test next week. Wondering now if my levels are higher. So I have the same question as you.
Also, you said you're getting surgery. Are they removing a tumor on your parathyroid?
My doctor wants me to consider Sensipar. After reading up on it am more confused than ever. I do not believe I want to take this drug. Scan was negative but from research am not holding it to be accurate. Suggestions and thoughts greatly appreciated.
Hi All, I"m wondering if anyone else was checked to see whether they had primary, as opposed to secondary, hyperparathyroidism on recheck. I've had some problems tolerating high doses of both D2 and D3 -- a possible explanation is that I'm so thin my body lacks fat storage space and the doses are simply too high. Another explanation is that I might have primary hyperparathyroidism caused by an adenoma or enlarged parathyroid gland.
oh my parathyroid. Several labs show pth and tsh are normal. I was put on Sensipar for 10 days which barely lowered my calcium. Calcium ranges from 10.3-12.8 depending on the day, and ionized calcium 6.6.... Also, LD-5 elevated, low creatine and proteinuria ....I've seen ent, endo, cardiologist, oncologist....now what? Any ideas?
Doctor, doing my own research I feel I may have secondary hyperparathyroidism since calcium is normal. The GYN took Ionized calcium and that came back a tad low. We are waiting for other results and then I need to find some educated HPT.endo's, she said.
Dr. isn't Vitamin D3 better than Vitamin D2 for getting the PTH lowered and the Vit. D raised thus shrinking the parathyroid adenoma. Can one get D3 vitamin without an RX?
After many months and lab work, it has been determined that I have secondary hyperparathyroidism. I have been prescribed 50,000 IU/week of Vit D, as well as a calcium + D supplement. I am also taking 30mg of cymbalta since January, 325 mg of iron (2 tabs/day), multivitamin, acidophilus (gallbladder removed 3 weeks ago). I have been diagnosed with depression and atrial arrythmia (sp?). I have had joint and bone pain, severe at times, and muscle weakness since summer of '08.
Secondary hyperparathyroidism is the result of another condition that lowers calcium levels. Therefore, your parathyroid glands overwork to compensate for the loss of calcium.
Factors that may contribute to secondary hyperparathyroidism include:
Severe calcium deficiency. Your body may not get enough calcium from your diet, often because your digestive system doesn't absorb the calcium you consume.
Severe vitamin D deficiency.
The levels that are high can be due to either primary-which occurs when a tumor is present(which you said you do not have) or tertiary hyperparathyroidism- which occurs as a result of chronic secondary hyperparathyroidism which is usually due to kidney failure or disease-often following renal transplant. In secondary hyperparathyroidism the phosphorous doesn't excrete properly this causes your calcium to lower and the PTH to increase, your body doesn't absorb vitamin D properly.
and PTH is high and vit D low - most commonly the PTH is high due to the low vit D --- aka secondary hyperparathyroidism. But if Ca is high-normal (10 or above usually) then early primary hyperparathyroidism is possible.
The most common mistake we see from family doctors and endocrinologists regarding the diagnosis of primary hyperparathyroidism is that the low vitamin D confuses them and they think the patient has SECONDARY hyperparathyroidism. In other words, they think the low vitamin D was the CAUSE of the high blood calcium because the low vitamin D caused the parathyroid glands to become over-active. They then think that they can fix the high calcium by giving you high doses of vitamin D.
Oops, meant for this to go in the dr's forum. But if anyone here can address it, that's great too!
I have almost all the symptoms of hyperparathyroidism but no doctor will diagnosis me because my calcium levels are not always high. Are there any other conditions that mimic the symptoms of it? Are there any tests that can be down to verify it other than calcium levels and 24 hour urine samples?
t have primary hyperparathyroidism but rather I have secondary hyperparathyroidism because my calcium is falsely elevated in the blood reports due to elevated albumin.
What do you think ?
serum ca = 10.48 mg/dl (8.10 - 10.40) (10/10/12)
pth = 61.20 (15 - 68) (10/10/12)
albumin = 4.67 g/dl (3.5 - 5.5) (10/10/12)
*CORRECTED SERUM CALCIUM* = 9.94 mg/dl
serum ca = 10.58 (8.10 - 10.40) (8/11/12)
albumin = 4.96 g/dl (3.
And if deficient, you cannot process calcium and become calcium deficient which leads to secondary hyperparathyroidism. Ionized calcium is the right test to check calcium -- not serum calcium because w/Vit D deficiency your system will leach the calcium from your bones and teeth to meet the needs of your vital organs and therefore your serum calcium will look normal or ELEVATED.
Abnormal results
When measured with serum calcium levels, abnormally high PTH values may indicate primary, secondary, or tertiary hyperparathyroidism, chronic renal failure, malabsorption syndrome, and vitamin D deficiency. Abnormally low PTH levels may indicate hypoparathyroidism, hypercalcemia, and certain malignancies.
They tell me that the drugs used for secondary hyperparathyroidism are not effective on primary hyperparathyroidism. I do have most of the symptoms of hyperparathyroidism , Very high anxiety issues, depression, bone pain, headaches, heart palpatations, forgetfulness, lack of concentration, low energy, very tired. I am afraid to have them just poke around my chest for these missing glands and yet I don't feel well and am getting worse.
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