rebif treatment

I had an appointment with my Neuro today, and he thinks (and after reading about MS, I completely agree) I better start treatment. I have a Clinically isolated syndrome with two inactive lesions in my MRI. We talked about treatment options, and he thinks that at this stage Avonex or Copaxone might work, but he told me to seek more information and decide which drug I want to choose. What should I take into account to choose one drug over the other?

She is around an 8 on the Expanded Disability Status Scale and has been on multiple interferon-beta1a treatments, including Rebif and Avonex and nothing seems to be helping. What course of treatment would you recommend?

Have MS but only on sx control - currently Gabapentin - but live in UK so nothing unusual.

I have been on Rebif for four months now, and I am not going to do another shot, I can't handle the side effects. I've tried premedicating and nothing seems to work. How many of you are in the same situation? and what did you do?

I was diagnosed with MS at the beginning of this month and my Neuro wants me to start a DMD treatment as soon as possible. (Not a surprise...) I have currently refused until I am fully off the prednisolone given for a recent optic neuritis attack, and have been 'clean' for a month or so. (This is so I can tell exactly which drug I am getting a reaction to when I start taking it!

I have just started a 5 day infusion course and I have a really dumb question. Should I continue with Rebif during treatment ? Dx 1988 but it's been at least 10 yrs since last steroid infusion...

BabyBoy1016 I have been diagnosed with RRMS as well and my first treatment was Rebif. I was on it for 6 months and I had rampant side effect as well as a HUGE increase in my depression. When I notified my Dr. he immediately took me off Rebif for 30 days, and started me on Copaxone. Copaxone has had numerous studies and all the studies proved that Copaxone doesn't increase anxiety. I urge you to let you Dr.

Hi all. I have been on REBIF for a year now. I am due for a follow up MRI at the end of this month, and will see my neuro in Feb. I have been very tired and feeling very emotional - off and on - for this past year. But so much has happened - my dx, having to leave my job due to symptoms - not being able to exercise like I used to - (my running always helped me keep all things in perspective!) But I'm wondering if some of my feelings of depression could be caused by the Rebif.

Hello all! I started the Rebif about 4 or 5 months ago. I had medicaid which was the only reason I was able to get the Rebif. Medicaid just droppped me. They said the 250.00 a month in child support we recieve is too much money to qualify for medicaid. I have 2 kids and they say if a 3 people family recieves more than 188.00 a month than I won't qualify. I don't work right now, I live with my parents and kids.

Is there anyone using Rebif for MS? if so how are you getting on with this treament?

Hi all, my daughter was diagnosed with MS at the age of 14 and she is now 17 and has started with Rebif about 9 months ago. The is on rebif 44 and has no real side effects from the injection any more. But she had to have her gallbladder removed 2 months ago. She has also picked up 15 kilos since she started on rebif even though she is eating healthy and is doing swimming and spinning...no matter what she does she cant drop the weight. Is there anyone else who is having this problem?

I had 4 relapses within a year because I was not allowed to start Rebif treatment. I was taken off prednisolone pills end of July and had my most recent relapse at its peak early October. Since end of September, I had alread told my neurologist of increasing tightness and loss of sensation on my feet and body to the extent that I didnt feel when I stepped on broken glass or when I sat on a pair of pointed scissors.

I switched to Rebif from Copaxone about 3 months ago (due to a pretty rough relapse while on the Copaxone, my neuro wanted to switch me to a more aggressive treatment.) I've had muscle aches, redness & bruising at the shot sites, and burning with the shot, but I've been ignoring those because I feel the pros of the medicine far outweigh the discomfort from the shots. I've always bruised pretty easily because I'm very pale-skinned.

Since you are in danger of discontinuing treatment PLEASE call your injection training nurse or the Rebif toll-free phone number. Sometimes a review of technique in those first weeks after starting injections helps tremendously. We can take in more information once we've had a little experience and practice!

Earlier Phase 2 studies showed that treatment with alemtuzumab reduced the accumulation of disability and the frequency of relapses in people with early relapsing-remitting MS, compared to Rebif® (interferon-beta-1a-rebif/index.aspx, interferon beta-1a, EMD Serono, Inc. and Pfizer, Inc.). (New England Journal of Medicine 2008 359;17:30-45) Rebif is a registered trademark of EMD Serono, Inc. and Pfizer, Inc. http://www.nationalmssociety.org/news/news-detail/index.aspx?

That is too bad - I was hoping after your long wait you would have good luck with the first one and being able to stick with it. It is in the back of my head that I heard a doctor put Avonex as the less potent of the interferons, but I may be wrong. If that is true, I think I would step up to Rebif. Did your doctor offer any ideas or can you schedule an appt with the MS nurses and discuss it further?

Good morning. My daughter just started Rebif. She has only had two doses so far. After her second dose in her thigh, she has noticed swollen lymph nodes in her groin area. They are sore to the touch. Is this common? Thank you.

I had wanted to wait to start treatment until after seeing the specialist but my current neuro strongly urged me to go ahead and start treatment based on my mri. He said that if the specialist wanted to stop the rebif and start something else that it would be fine but to go ahead and start it. I intend on completely switching to the new doc if he seems like a good doctor after i see him for the first time. I haven't been very pleased with my current doc and his office/nurses so far.

So the ins company wont pay for Copaxone or Gilynia until my daughter first tries Rebif (i guess because its cheaper for them.) I have a concern with her being on an interferon due to the possible mental health side effects. She is already on Lexapro for anxiety and mild depression. I dont want anything adding to the issue. We have dr app tomorrow to discuss Rebif but I dont want her on it. Anyone have bad side effects with Rebif??? Any advise for me?? Thank you.

They were high, so at that point my neuro instructed me to go off all meds and supplements, and no alcohol, stayed on Rebif and they remained high when test was repeated. Went off Rebif, stayed off other meds and alcohol, they returned to normal, and remained so after I started other meds again and consumed alcohol again. This is how we could be certain it was Rebif causing the prolem.

Thanks, i just started rebif and the iching is driving me nuts

Rebif can cause flu-like symptoms - are you currently running a fever? How long have you felt sick? Of course, it's very important to talk to your regular doctor about any symptoms. It may not be the Rebif that's causing your vomiting and shortness of breath. A month or so ago, I had serious pain in my right leg. I thought it was an escalation of my spasticity - turned out it was a blood clot! I waited three weeks before seeking treatment.

Hi all, Well, as some of you may know I recently started Copaxone but was taken off the treatment within a week due to an adverse reaction. This was my only real choice of dmd so I am really upset that I can't continue. Today I saw the neuro and for once he was really helpful and sympathetic! He has suggested I give Rebif a try next and if it isn't for me, I'll be switched to Gilenya. I am sooooo scared now!

The other thing is ias you know i came of the rebif last year i had a eight month break and then went on beteferon but have had to stop again due to difficulty in breathing still waiting to hear from hospital wether i can go back on it or not. How ever i have gone down since being on these treatments feed back from any one out there who have experienced the same would be great please .

Rebif treatment

Common Questions and Answers about Rebif treatment

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