rebif support

Hello all! I started the Rebif about 4 or 5 months ago. I had medicaid which was the only reason I was able to get the Rebif. Medicaid just droppped me. They said the 250.00 a month in child support we recieve is too much money to qualify for medicaid. I have 2 kids and they say if a 3 people family recieves more than 188.00 a month than I won't qualify. I don't work right now, I live with my parents and kids.

Hello. Does anyone take Rebif for MS? Is it helping? How long before any improvement? Does anyone think that it's just a false hope with nasty side effects? Thanks.

s been my best friend and biggest supporter throughout my journey with MS, but I am at a loss on how to gain her support regarding my decision to take a DMD to combat this disease. I had the nurse over yesterday morning for my training and first injection. The nurse really stressed the possible side effects, and I think inadverdantely reinforced my wifes concerns that the side effects outway the benefits.

Is anyone currently taking Rebif? And does anyone know anything about it? I was just (finally) diagnosed with MS, though my Neuro wouln't say which kind it was... and is planning on putting me on Rebif. It's been 2 years since my symptoms started, and haven't had any kind of relapse or relief in any symptoms, they just keep coming.

My insurance denied my claim for betaseron, as I stated in a previous post. They would prefer I take rebif. I have read that rebif is acidic. How bad is it? I've never injected myself with anything- so I'm pretty nervous about it.

http://www.mslifelines.com/rebif/guide/side-effects.

The other thing is ias you know i came of the rebif last year i had a eight month break and then went on beteferon but have had to stop again due to difficulty in breathing still waiting to hear from hospital wether i can go back on it or not. How ever i have gone down since being on these treatments feed back from any one out there who have experienced the same would be great please .

She has put me on Rebif, vitamin b-12 injections, and nuvigil. Still nothing for pain, stiffness or anxiety. She has also said that I have high blood pressure and a nodule on my thyroid that I need to see my PCP for but he has said that if she wants it treated than she will have to treat it. I go back November 9th. The flu like side effects of the rebif have kinda gotten me down, I guess that will go away in time as I adjust to the medications.

Hi Molly! I was diagnosed with RRMS last yr in May. I started taking ribif at that time. I have no complaints! I have been doing so well and have had no new lesions. The leasions that I did have that were active are no longer active. I feel good on a daily basis. So much better than I ever thought I would. I'm so glad I chose this dmd with the help of my Neuro! So glad! Good luck with evertyhing!

Hi Jen, We've not met. I'm Shelly and I'm on Rebif. You'll be contacted to receive your Rebif script, and a nurse covering your area will contact you to find a time to come visit (will also make sure you received the meds - which you'll keep in the fridge). He or she will teach you and whoever else you want to learn the injection techniques. The nurse will also talk to you about your MS, the meds and possible side affects, etc.

Don't give all the credit away Kat. Keep some for yourself and give treatment a chance. You waited so long for this. It doesn't often come quickly or easily. It IS worth it. I hope your neuro won't let you talk yourself out of treatment after all the years you spent hanging in for a diagnosis. I take Copaxone but it is also a subcutaneous injection DMD and must sit at room temp at least 20 minutes before injecting. Like Mike, I keep several days worth of doses unrefrigerated.

That is the best outcome. Rebif, nor any of the other three firstline meds, are considered cures. Rebif is an excellent med with a good reputation. And therer are other meds that are coming along soon that will be in pill form, but it remains to be seen who will do best on those versus using the shots. Now, the reality is that a good proportion of people with MS will need some aid for walking and other activities (like a cane or wheelchair) within about 20 to 25 years after diagnosis.

Another thought --- have you tried calling the Rebif patient support program to tell them about the hives? Perhaps they have heard from other patients with the same problem? Good luck to you.

The entire time I relied on this site and the many pages for support of my symptoms. In November I had another round of MRIs. This time not just my brain but also C-spine and T-spine. 3 days before Christmas I got the results I have MS. Still not a matter of my brain but my spine looks bad to say it simply. I have started Rebif, so far so good, I have been taking baclofen, gabapentin, etc for a long time already.

I know this is not a question just looking for support and hugs to get to through till 4pm tomorrow.

Yes, I am on rebif for 11 months and must take advil liquid gels To stave off headache fever that wakes me up!

The doctor still has not said what type of MS he has but since being dx in Feb 2008 he has had 4 flare ups and is currently taking Rebif 3x week and solumedrol for 3 days every month. Can anyone help with the info from the MRI?

But anyhoo she gave me two medicine to read on betaseron and rebif. Both are injections I was told they have a new pill out that is very expensive and medcaid isn't paying at this time. I'm very uneasy abt the injections. Can anyone tell me if they've taken either one and their experience with it. I want another child in a few yrs and don't want this to stop me.

So the ins company wont pay for Copaxone or Gilynia until my daughter first tries Rebif (i guess because its cheaper for them.) I have a concern with her being on an interferon due to the possible mental health side effects. She is already on Lexapro for anxiety and mild depression. I dont want anything adding to the issue. We have dr app tomorrow to discuss Rebif but I dont want her on it. Anyone have bad side effects with Rebif??? Any advise for me?? Thank you.

I have been on Rebif for four months now, and I am not going to do another shot, I can't handle the side effects. I've tried premedicating and nothing seems to work. How many of you are in the same situation? and what did you do?

I took my first shot of Rebif today. I gave myself the shot and i thought this is great no stinging, no redness, no lump like i had with Copaxone. Then WHAM!!!! I had abdominal pain about an hour after the shot it lasted for about 6hrs The only thing i could compare it to was a 6hr nonstop labor pain. We will see what happens Monday when i take the next shot. Does anyone else get this abdominal pain on Rebif.

Is there anyone using Rebif for MS? if so how are you getting on with this treament?

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