rebif problems

Last year I got diagnosed with MS in the states , now I was supposed to get my treatment back home , however im having problems with my insurance here.. When I was there I heard that if I did some kind of couse in the country for at least 6 months I could get the treatment. I ll apreciate if anyone knows anything about this subject in Maryland or DC ..

Hi all, my daughter was diagnosed with MS at the age of 14 and she is now 17 and has started with Rebif about 9 months ago. The is on rebif 44 and has no real side effects from the injection any more. But she had to have her gallbladder removed 2 months ago. She has also picked up 15 kilos since she started on rebif even though she is eating healthy and is doing swimming and spinning...no matter what she does she cant drop the weight. Is there anyone else who is having this problem?

I've just started Rebif. I'm taking it because I need to try to halt the progression of the disease. I've been Dx'd for 23 years, and don't know whether it's remitting/progressive or secondary/progressive now. I do, however, love a glass or two of wine at night. I realize that ultimately Rebif has a problem with increasing the ensymes in your liver, but a little can't be that bad. Are there immediate bad side effects initially?

This is a very interesting article about rebif - it doesn't mention heart problems, but does note that your thyroid and liver should be regularly tested. Thyroid out of whack can cause all sorts of symptoms - has yours been checked lately? The article is here - ms.about.com/od/treatments/a/rebif.

Hi! I am not sure if we have met. Welcome! I feel like Dorothy in the Wizard of Oz so often here. "People come and go so quickly here!" Mostly they come and stay, thank goodness! If you've been here long, I apologize. My sister-in-law has a terrible time with vaginal yeast infections, to the point that she has gone out of state to see specialists.

So the ins company wont pay for Copaxone or Gilynia until my daughter first tries Rebif (i guess because its cheaper for them.) I have a concern with her being on an interferon due to the possible mental health side effects. She is already on Lexapro for anxiety and mild depression. I dont want anything adding to the issue. We have dr app tomorrow to discuss Rebif but I dont want her on it. Anyone have bad side effects with Rebif??? Any advise for me?? Thank you.

Ive not had liver problems on Rebif but did have low WBC counts once - took a break from it and then all returned to normal after re-starting.

Hello. Does anyone take Rebif for MS? Is it helping? How long before any improvement? Does anyone think that it's just a false hope with nasty side effects? Thanks.

I took my second Rebif shot tonight. No problems.

I have been on rebif for 9 months -and have not had any of the problems you describe, and in my reading up on rebif, I think the symptoms you describe are not usual side affects, but we're all different! I assume your neuro has been checking your blood for liver problems since you started rebif. I wonder if it would be worth discussing the possibility (if your blood work all comes back OK) of going off the rebif and trying another MS drug to see if that helped with all your problems?

When I went to get my rebif refilled last week was tokd they were out and its on border and they don't kniw when it will come in and could be a couple months. I called every pharmacy in town and got.same.story. Then called rebif and they know.if.no shortage. Is anyone else.having this problem? In meantime I am out so no shots.

I don't take Rebif but I think I do remember reading that a small percentage of PwMS who use Rebif develop thyroid problems - - I just don't think it was clearly in either the hypo or hyper direction. If problems sometimes start with Rebif use it makes sense that a status change could also be prompted. Was this test done by the same lab that normally processes your thyroid function studies? It's not uncommon for reference values from various labs to vary some.

My neurologist recommended Copaxone or Rebif. I have choosen Rebif mainly because apparently I have an active lesion in my neck and he said that Rebif has been shown to be quicker in "healing" the lesion. I have read about Rebif and and its side effects and starting to get really nervous. Any comments, pro or cons?

Hi jen I am on REBIF and have problems with muscle stiffness, but I had it before I started on the REBIF. I feel best when I exercise - walk,run,light weights, stretching, balance exercises.

hi db, I was diagnosed in 2003 and was on rebif since jan 2004. I also had problems with elevated liver function. They reduced me to a half dose and then bumped me back up to a full dose. I again had problems with elevated liver function. My neuro then decided to keep me on a 1/2 dose (my specialist felt that a 1/2 dose of rebif was roughly equivalent to a full dose of copaxone), which I have been on since late 2004.

I have been on both Rebif and Copaxone. I was on Rebif for about 5 years, and I have been on Copaxone for two. I didn't have any problems with the Rebif except for the high liver functions. That is why I am on Copaxone. I think there is no difference in the injection pain. They both were very minimal. My worst pain was in my arms for some reason. The daily injections aren't bad, especially since you don't get sick.

Is it something I am doing differently and just not realizing I am doing it? I recently switched from Rebif to Copaxone but I was having the problem with Rebif before I switched about 50% of the time now it seems to be increasing.

Is there anyone using Rebif for MS? if so how are you getting on with this treament?

That is the best outcome. Rebif, nor any of the other three firstline meds, are considered cures. Rebif is an excellent med with a good reputation. And therer are other meds that are coming along soon that will be in pill form, but it remains to be seen who will do best on those versus using the shots. Now, the reality is that a good proportion of people with MS will need some aid for walking and other activities (like a cane or wheelchair) within about 20 to 25 years after diagnosis.

Is anyone currently taking Rebif? And does anyone know anything about it? I was just (finally) diagnosed with MS, though my Neuro wouln't say which kind it was... and is planning on putting me on Rebif. It's been 2 years since my symptoms started, and haven't had any kind of relapse or relief in any symptoms, they just keep coming.

Hi all, just wondering if anyone has experienced cardiac problems , ie increased BP and angina type pain, when they were on Beta interferon injections?

I've got the nurse coming out tomorrow to take me through my first Rebif injection but this morning I've woken up with cold sores covering almost my entire lower lip....is it still ok to go ahead with starting rebif or should I put it off til I'm less run down? sorry if this is a silly question but I want to get off to a good start being as I have waited so long to start a dmd!

Common Questions and Answers about Rebif problems

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