rebif injections patients

Hi, Shell. Thanks. I wondered the same thing, if I might be getting a virus or the flu. I felt pretty bad all day yesterday, and it wasn't a good day to feel bad. (If there every is one) but it was my BFF's birthday, and we met for lunch and shopping. I have a horrendous headache this morning, starting from the base of my neck.

I have been taking Rebif injections, since January 2010, and I have never missed a single one, until now. Up until January 1, 2012, I have received my Rebif injections, free of charge, due to the fact I had no health insurance. I became eligible for Medicare, on January 1, 2012, and so I have had to wait for MS Lifelines to decide whether I'm still eligible for their "free of charge" program.

I started rebif Nov/12 since being on this medication I have not felt normal,it is like the flare up that will not go away. Prior to Oct.

Do the injections hurt? Do you do the injections or does a nurse come out and give the injections? Are the injections in your legs? How often do you have to get the injections? Anything else I need to know & not thinking of about Rebif? Do you have side effects from the injections? Thanks!

I was misdiagnosed with MS in 2007. I took the Rebif injections until the first part of 2011. I have heard a lot of talk that Rebif could possibly cause cancer. Now I had an abnormal mammogram. There is no cancer in any of my family. Is it possible that Rebif could cause breast cancer?

Rebif was the first DMD I tried, in Feb 2008, a couple of months after dx. I had to go off it 8 weeks later as it was increasing my liver enzymes significantly. I went off for a bit, liver enzymes came down, went on it again and they shot back up again. Copaxone was my only first line option left, because all the interferons come with the same risk re: liver. I was in the something like 3% of patients whom this will happen to.

I tried Rebif but had to discontinue after a couple of months due to persistent elevated liver enzymes. I only made it as high as the half dose. I had no other side effects, no injection site pain. I switched to Copaxone and have been on it for the past 18 months or so. The first several weeks the shots were pretty painful, the stinging and burning lasted a long time and the big red dollar size welts were pretty bad.

He did not like Tysabri he said it has caused deaths and alot of other problems in patients that isnt widely published. Rebif is working great so he recommends staying with that. He also said there are some tablet drugs being investigated now which have great potential and eliminate injections. He said not worth getting stem cells from baby umbilical cord as they are mainly useful for leukemia patients not ms and we actually have our own stem cells in our body we can use if need be.

I HAVE BEEN USING REBIF FOR 12 YEARS NOW. I WAS VERY ANXIOUS WHEN I FIRST STARTED GIVING MYSELF THE INJECTIONS.I HATED IT.BUT THROUGH TALKING TO MYSELF, OUT LOUD AT TIMES,I EVENTUALLY RELAXED. I STOPPED THE WHOLE ICING THE INJECTION SITE AND JUST SUCKED IT UP.I STILL HAVE THE 10 SECONDS OF BURNING AFTER THE SHOT-BUT JUST RUB IT AFTER AND THAT HELPS.I ALSO TAKE 2 RR TYELNOL A HALF HOUR BEFORE THE SHOT AND DO THE SHOT RIGHT WHEN I GET INTO BED AT 10 PM.

Instead of getting better, the injections are causing me a great deal of pain. When I inject in the back of the hip, it causes pain in the nerves in my spine. Inject in my thigh, and my thigh and leg hurt so bad, I can barely walk. I cannot manually inject. I've ttied it, my hands are too shaky. I am 5'2, weigh 73#s. I really don't have much in the way of body fat. The 1st two weeks I woke with migraine headaches.

A little over a week ago I posted as my pharmacy had informed me they couldn't get rebif. Got same response from other pharmacies and neuro was no help. I called rebif nurse and really didn't get much help. Finally called neuro again day b4 yesterday and demanded they call rebif rep and find a solution. Was contacted by rebif yesterday explained what I was told by pharmacies. She said its unacceptable to and she called my pharmacy told them what they needed to.do and today I.

Tecfidera has more side effects than Rebif but not everyone gets the side effects. Also Tecfidera has not been around as long so they do not know what long term side effects there are. I would go with the one you will best follow through with if that is a pill then Tecfidera.

I am an MS patient and I have recently started taking Avonex, (I have had two injections so far) and I have been having problems sleeping.Does anyone know if Avonex causes insomnia, at all? I have read all the possible side effects Avonex may bring, but sleeplessness doesn't seem to be in the list.

ve kicked around the CRABs here, a lot. Copaxone, Rebif, Avonex, and Betaseron are the primary four. Your doctor didn't offer Tysabri as your fifth, did he? I like the Decision Maker tool in the uk that walks you through the drugs and helps you figure what is important for you. You can access this at http://www.msdecisions.org.uk welcome to the world of drugs aand bills. I'm glad to hear you are getting treatment for your CIS. Congrats on that one.

Is there anyone using Rebif for MS? if so how are you getting on with this treament?

For me, Rebif was a personal choice. My current neuro prefers Copaxone for his patients since it is made of more natural ingredients, from what I understand. However, I've read that Copaxone can sometimes mimic heart attack pain and that there's nothing one can do to prevent this rare side effect really.

This isn't a call center comment so much as a general one about all the mfgs. of these drugs.... if Bayer Health can cover the $50 per month for all of their patients on REBIF for their lifetime (new program announced last year!) why can't the others follow suit? The key here is most of us are on multiple rx's that add up over the year. My $50 copay for copaxone is $600 a year. My baclofen in $360 a year. My norvasc (heart) is $240 a year. My sanctura (bladder) is $600 a year.

But anyhoo she gave me two medicine to read on betaseron and rebif. Both are injections I was told they have a new pill out that is very expensive and medcaid isn't paying at this time. I'm very uneasy abt the injections. Can anyone tell me if they've taken either one and their experience with it. I want another child in a few yrs and don't want this to stop me.

Ok . . . so who out there has conceived while injecting with a DMD - I am on Rebif and am one month pregnant (oops). Did you stop your injections? My perinatal appointment is next Wednesday (three shots away) and am just curious if anyone had an experience:) Thanks!

what MS shots copaxone, rebif, betaseron & avonex has the smallest percentage of blood fractions

She said they are doing a study on patients taking copaxone, rebif and betaseron. I would need to go to their office and sign a consent. The they send me to a dermatologist to have a biopsy done of the injection site (same day as injection). And that is all I have to do and they will pay me for it. She said the yare doing the biopsies to see if the subQ injections are actually spreading throughout the body like they are suppose to or if they are staying at the place of injection.

Hello. Does anyone take Rebif for MS? Is it helping? How long before any improvement? Does anyone think that it's just a false hope with nasty side effects? Thanks.

Last night I proceeded to do my 4th Rebif injection and wasted an entire syringe because I stupidly forgot to remove the cap. By the time I realized what I was doing it was too late; I pulled the end off of the autoinjector and the medicine came shooting out. Aargh! This happened with my first shot when the nurse was instructing me. She also forgot to tell me to pull off the cap remover so the very first syringe was ruined.

Rebif injections patients

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