rebif discussions

lvlyladee, Hi there, Welcome to the forum. I'm on Rebif, and I have some chronic problems, and MS symptoms daily, but no large attacks like my 1st - thank god. LDN is not a disease modifier, but I have heard of some trying it. We have had a couple discussions on Gilenya and I'll dig them up for you so you can take a read. It did well in trial from what I've read. Thanks for joining us. Let us know how you are getting along if your comfortable to do so.

My husband has MS, was diagnosed four years ago, and is on Rebif. He tolerates the medication very well. It was helping him in the very beginning. But he is starting to progressively get worse. Does smoking have anything to do with MS and Progression?

Is there anyone using Rebif for MS? if so how are you getting on with this treament?

ve kicked around the CRABs here, a lot. Copaxone, Rebif, Avonex, and Betaseron are the primary four. Your doctor didn't offer Tysabri as your fifth, did he? I like the Decision Maker tool in the uk that walks you through the drugs and helps you figure what is important for you. You can access this at http://www.msdecisions.org.uk welcome to the world of drugs aand bills. I'm glad to hear you are getting treatment for your CIS. Congrats on that one.

But anyhoo she gave me two medicine to read on betaseron and rebif. Both are injections I was told they have a new pill out that is very expensive and medcaid isn't paying at this time. I'm very uneasy abt the injections. Can anyone tell me if they've taken either one and their experience with it. I want another child in a few yrs and don't want this to stop me.

This Forum is all about healthly discussions. Sharing our experiences with each other and offering comfort to those in need. We all admit to not being Neurologists, so we all follow the rule of "Check with your doctor, they know best." (Well some doctor's do...this has been the subject of much discussion about those that seem alittle on the "idiot side." Every profession has those.

Copaxone is the weakest and he did not recommend it for me. Betaseron, Rebif and Avonex are essentially the same drug, Intefereon beta, administered in different doses. My Neuro is a big believer in Neutralizing antibodies. Avonex NAB rate is around 5% Rebif around 10-15% Betaseron 25-30% NABs can bind to the active side of the interferon molecule rendering it useless. So naturally (if you believe in NABs) you would likely pick the one with the lowest NABs.

As ALex said, some docs like face to face discussions, regardless of what is being discussed. You say you feel great. That's what is important. If you had new lesions, or a progression of the disease, you would have felt it. MRI's only confirm what your bidy is telling you.

I have MS and have been taking Rebif foe 7 years. It has worked very well. I just learned that my current drug insurance plan from Humana will not cover Rebif in 2015. What plans cover at least some of the Rebif cost? My copay with Humana was about $300 per month. Would like not to exceed this amount.

Yes, I am on rebif for 11 months and must take advil liquid gels To stave off headache fever that wakes me up!

So the ins company wont pay for Copaxone or Gilynia until my daughter first tries Rebif (i guess because its cheaper for them.) I have a concern with her being on an interferon due to the possible mental health side effects. She is already on Lexapro for anxiety and mild depression. I dont want anything adding to the issue. We have dr app tomorrow to discuss Rebif but I dont want her on it. Anyone have bad side effects with Rebif??? Any advise for me?? Thank you.

Hello. Does anyone take Rebif for MS? Is it helping? How long before any improvement? Does anyone think that it's just a false hope with nasty side effects? Thanks.

I have been on Rebif for four months now, and I am not going to do another shot, I can't handle the side effects. I've tried premedicating and nothing seems to work. How many of you are in the same situation? and what did you do?

I took my first shot of Rebif today. I gave myself the shot and i thought this is great no stinging, no redness, no lump like i had with Copaxone. Then WHAM!!!! I had abdominal pain about an hour after the shot it lasted for about 6hrs The only thing i could compare it to was a 6hr nonstop labor pain. We will see what happens Monday when i take the next shot. Does anyone else get this abdominal pain on Rebif.

Is anyone currently taking Rebif? And does anyone know anything about it? I was just (finally) diagnosed with MS, though my Neuro wouln't say which kind it was... and is planning on putting me on Rebif. It's been 2 years since my symptoms started, and haven't had any kind of relapse or relief in any symptoms, they just keep coming.

When I went to get my rebif refilled last week was tokd they were out and its on border and they don't kniw when it will come in and could be a couple months. I called every pharmacy in town and got.same.story. Then called rebif and they know.if.no shortage. Is anyone else.having this problem? In meantime I am out so no shots.

Call MS Lifelines (the Rebif nurses) now. I think Rebif is contraindicated in pregnancy. If you don't have their number handy, find it on their website. Congratulations!! First baby?

I've been on Rebif for about 13 years. My insurance recently stopped covering it, but offered Aubagio as an alternative--sounded good to me! I'll be switching, but I'm worried about just stopping Rebif cold turkey (which my neurologist suggests). Has anyone had any experiences with stopping Rebif?

Rebif discussions

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