rebif cis

after 9 months i've been dx with cis...my doc gave me a list of 5 different meds to choose from...after reviewing them briefly i noticed that they all had some bad sideffects...

So for now I am going off Rebif - but I can go back at any time if I choose. She is keeping my dx of CIS and I will meet with her again in 6 months. I am going off the Rebif because I think the shots may be making me more tired and depressed. And until I see more proof that this is MS - I will sit tight.

The medscape link certainly brought up a lot of questions about attitudes toward treating RIS and CIS. It was fascinating to actually hear them banter back and forth. I hope everyone in this situtation can take the time to either read or listen to this webcast. Please look into financial support programs for your DMD. I hate to think of you not being on something, strictly because of the insurance. But I hate to think of all the folks out there who are in the same boat.

HOWEVER, seeing as how my MRI and CSF were extremely abnormal, he put me on Rebif, a stronger Disease Modifying Drug. During this time, I had several neurological symptoms lasting for more than 24 hours in a time of approximately 3-4 months. None of these was serious or life threatening, but nonetheless they were neurological symptoms of the kind seen in patients with M.S. According to the McDonald criteria, each episode classifies an “attack”.

Hi Jen, We've not met. I'm Shelly and I'm on Rebif. You'll be contacted to receive your Rebif script, and a nurse covering your area will contact you to find a time to come visit (will also make sure you received the meds - which you'll keep in the fridge). He or she will teach you and whoever else you want to learn the injection techniques. The nurse will also talk to you about your MS, the meds and possible side affects, etc.

m seeing the neurologist on Thursday for a follow up and he told me to be ready to discuss which DMD I will start. I had been hanging between a CIS and and official diagnosis which I was given after this last MRI in the hospital.

Is anyone currently taking Rebif? And does anyone know anything about it? I was just (finally) diagnosed with MS, though my Neuro wouln't say which kind it was... and is planning on putting me on Rebif. It's been 2 years since my symptoms started, and haven't had any kind of relapse or relief in any symptoms, they just keep coming.

The local neuro had recommended I see the Specialist in the first place, the local neuro thought is CIS or RIS, and he also said no DMD yet, however prior to seeing the Specialist the local neuro had suggested maybe I should consider Copaxone. What changed his mind? I guess my gut feeling is they are waiting for more time since the DX was based on the MRI'S and some clinical evidence, & the VEP.

I am currently on REBIF (after initial CIS diagnosis) and realize that if this is a CIS, then I should be on a DMD forever. And they're pretty heavy duty drugs....SO of course I don't want to be on them if this isn't CIS! I am doing very well (compared to others who have MS!) but still can't go back to teaching (too tiring and confusing) and my exercise like I used to do is getting harder and harder. But - I have good days and bad days.

Hi. In the process of getting 2nd opinion - original dx possible MS and on REBIF. 2nd opinion neuro thinks he is leaning away from MS because my first MRI shows 13 brain lesions and repeat MRI done 9 months later shows same - no new lesions and the largest active one is shrinking a bit. Latest MRI report: Stable cerebral white matter changes randomly throughout the cerebral hemispheres and a small 4mm focus within the deep white matter of the right cerebral hemisphere.

There was a thread on this recently - seems like most that are already on meds are staying with them if they are working. Are you on any disease modifying meds at all right now? I am dx CIS and am on REBIF. It's the thinking of my neuro's office that they want to wait on prescribing Gilenya until it's been around for a while and they see long term effects. I wonder why your neuro thinks you are a good candidate for this new drug? Good luck to you!

The FDA has approved the use of several drugs, including Copaxone and Rebif for cases of CIS. It is well proven that the earlier you begin treating MS, the better the end result will be. If you need the references to print out and take to your doctor, please let us know. A DX of CIS is enough to begin treatment.

s (disease modifying drugs) which is what Rebif is, then usually you already have a dx of MS, or at the least CIS (clinical isolated syndrome) and then again its still rare to get put on a DMD with CIS, hence my confusion. There must of been clinical and MRI evidence beyond having a family member with MS, to suspect you may have MS.

am anticipating a call from my neuro tomorrow and though technically the PA couldnt give me a diagnosis at my last appt cuz the doctor was not available I am about 99% sure of what he is going to say...He's already had me research the different DMD's and told me at my 1st appt he wanted them started right away though I never really got an "official" diagnosis. I am leaning towards rebif and thats the one they suggested for me..

I believe there is an 80% chance of developing clinical MS in a few years if you have CIS and lesions, however if you have CIS without lesions the percentage is lower. I have only had sensory symptoms to date. What about you?

I have been diagnosed with CIS recently after optic neuritis. Mri showed lesions and had positive LP. My question is has anyone ever experienced head pain which I can only describe as feeling a burning inside head? Should I report these symptoms or just keep note of anything till my next appointment?

The follow up appointment she had with an MS clinic (2 hours away) was in May, so she transferred her appointment to a local neurologist who saw her two weeks ago. He diagnosed her with CIS, which in his own words is essentially pre-MS. I know from reading the results the hospital faxed her that she did have brain lesions (and a declining lymphocyte count for each day in the hospital, and a low IgA level).

I am looking for peoples opinion of clinically isolated syndrome. I have posted a thread on the MS society forums and I got the response that I shouldn't class myself as having this. What I can't understand is the definition of CIS is this; "A clinically isolated syndrome (CIS) is an individual's first neurological episode, caused by inflammation or demyelination of nerve tissue.

I've just posted regarding my appointment with an MS specialist today. Basically, I was referred for an MRI & LP in Oct following an attack of optic neuritis. MRI shows scattered lesions in 'classic' areas of brain and LP shows o.banding. I have also had other symptoms since (numb or burning bottom lip, weakness, tremor, noise distortion & vibrating sensation in my ear) Anyway, I thought I was going to get a diagnosis today but the doc talked about a cis instead.

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