rebif and ldn

Rebif - so far, so good. Blood, LFTs and Thyroid are good.

Kellost, Hi Kel, Belated welcome to you. Ren gave you the best advice. To answer your question about LDN and interferon, No. LDN is not. It's not a disease modifying drug for MS at all. I'm on Rebif too - so please feel free to ask anything. I hope you do get back what you lost - it's very possible. And, even when you get back a little, it feels great and lifts your spirits. HOw are you doing otherwise? Thanks for joining us!

After at least of 5 weeks of worsening effects from Copaxone and 8 weeks total, it's all over between us. I truly tried. Almost went to counseling. Arbitration was an option, and so on. The bottom line is that I had terrible allergic reactions that snowballed. I tried several kinds of antihistamines, plus Singulair, and a bunch of different creams. All I got were hives, bruises, welts, rashes and misery.

lvlyladee, Hi there, Welcome to the forum. I'm on Rebif, and I have some chronic problems, and MS symptoms daily, but no large attacks like my 1st - thank god. LDN is not a disease modifier, but I have heard of some trying it. We have had a couple discussions on Gilenya and I'll dig them up for you so you can take a read. It did well in trial from what I've read. Thanks for joining us. Let us know how you are getting along if your comfortable to do so.

I would love to see more studies done on LDN and not just anecdotal evidence. When I search clinicaltrials.gov to trials on LDN, there are 16 current clinical trials listed. Unfortunately not a single one of them relates to MS. Lala, was this person an MS patient or a different type of disease? Just wondering.

I know the sort of HE** that your husband and you and the whole family for that matter has been through and in following your story I have to say that I am so incredibly happy for you all! Craig has basically dealt with the same sort of doctors that I am dealing with and I am so happy that you have finally found someone that has allowed Craig to continue with his life! I hope that he continues to reap benefits from the LDN but he isn't on any dmd's is he?

Someone mentioned as to whether or not you have considered LDN. I have been using LDN since the middle of march and just within the last two weeks have been feeling better. I mean, I am having more good days then before. The following information is written by a medical doctor Dr. Bob Lawerence, who himself has MS and uses LDN. What is Low Dose Naltrexone? Naltrexone is a drug called an opiate antagonist.

Include me in on the fast diagnosis (kind of). I had a bout of ON January 20th, had appointment with opth on the 25th, MRI on the 26th, started IVSM on the 27th. Within the next 3 weeks I had all the bloodwork and LP done and was offically diagnosed on the 4th of March. I had my meds the same day because Kaiser has them in their pharmacy but it did take 2 weeks for the nurse to come out to show me how to do it.

I had several lesions on brain and both spines, complete sensory numbness from the chest down including hands, so I am a classic MS patient. As of now, I refused MS drugs and am taking LDN at 4.5mg and several supplements like NAC and ALA. I do not plan on taking MS drugs like Copaxone anytime soon, but after my most recent relapse, it's making me think. On my very first MRI I had "numerous" lesions. The second MRI 6 months later I only had 9 new lesions.

When we hear that 100 people have been treated with a method, say LDN, and they all say they have benefitted greatly, it sounds wonderful. A hundred people got better. This is great! But, if we think about it, we have to think about what we don't know. Is it possible that actually 1,000 (or 10,000) people tried this method? Of course it is. All of these things are in the internet with glowing reports of how well people have done.

Not really, my skin is a bit dry and my finger nails are brittle and weak. I have a slight sensitivity to cold but that is about it. What is your opinion of LDN therapy? Is it effective in reducing antibodies? Should I increase my Nature=Throid again by another 16.25.

I've been on LDN in the past and it did nothing for me. Some people it does wonders for. Everyone is different, so it maybe an option you want to try.

The use of LDN is relatively new in the medical community (within the past 20 years) and many doctors are unaware of the link between the body's own opioid receptors and the immune system, as well as how opioids and opioid antagonists can influence (either positively or negatively) the immune system. From my experience, most conventional doctors are unaware of Low Dose Naltrexone (LDN) benefit.

LDN is used to treat many autoimmune diseases. My husband has MS and takes LDN with great sucess. The original dose of the full dose start at 50mg whereas the low dose version is usually 4.5mg.

Mike Thanks for the info. I researched LDN and was impressed with the clinical trials in Nov 08. There seems to be a strong disagreement from the group who wants to kill the virus and the group that wants to protect against it. I don't have a clue. Using LDN and Alpha Lipoic Acid is a new one on me.

Go to about the 42 minute mark and watch from there to skip the parts about fibro and just watch the part about LDN....complete with caveats to NOT get too excited, etc. This is NOT a plug for LDN, I promise. https://www.youtube.com/watch?v=jtc2JARVpPw Which brings me to my actual question. I've read somewhere around here that LDN may boost immune response? Could anyone here elaborate or clarify that?

There is a LDN forum and website and the members are very willing to talk to you about their LDN experiences. It is www.LDNers.org. The group also has their own convention each year where they discuss the latest developments on LDN. Best Wishes to you and your sister. Elaine And yes, Copaxone and LDN can be used together.

For the last 4 years the ME has worsened and I also now have the additional diagnosis of Fybromyalgia too. I am now on LDN which I have managed to get prescribed by my specialist and GP via a NHS prescription, it appears to be helping me. Is anyone else is taking this?

So, he went off LDN and his feet are less painful. He went and had his legs stretched by a therapist (we pay cash for this) and his legs hurt less. He is able to walk more. I hate to say this, but I think alot of Craig's recent problems with spasms may have been the result of the LDN. Just a thought. As heartbreaking as it is, Craig is off the LDN.

So I did a lot of research about this and it seems that by changing your diet to AIP ( Autoimmune Paleo) and taking a safe drug called LDN (Low dose Naltraxon) you might be able to get into remission and lower the antibodies against your thyroid. Looks like LDN is used by many patients with autoimmune disorders and some say it saved their life. But it wold be different from person to person and you need to try it to find out.

They were high, so at that point my neuro instructed me to go off all meds and supplements, and no alcohol, stayed on Rebif and they remained high when test was repeated. Went off Rebif, stayed off other meds and alcohol, they returned to normal, and remained so after I started other meds again and consumed alcohol again. This is how we could be certain it was Rebif causing the prolem.

I have read some postings that sometimes it is good to reduce LDN if it does not seem to be working so I have gone from 2.75ml to 2.0ml daily and that may be the reason for the renewed energy... There are just so many variables which I will try to go into in a longer post to re-introduce myself as soon as I do have the time - right at the moment have so much going on it is mind boggling! but that seems to fall on many of us...

Common Questions and Answers about Rebif and ldn

rebif