My symptoms include, diarrhea, bloating, abdominal pain, mucus/white tissue in stool, mucus in stool, some blood in stool, loss of appetite, passing out, sweating (especially if i get up and do stuff), fatigue, joint pain (especially in my knees & hips), head ache, increased frequency of stool. I'm in jeopardy of losing my job due to attendance and I'm getting really frustrated. I'm also a mother of a 3-year old, so its interfering with my relationship with him.
i believe that pentasa is more for management of colitis once it's under control from steroids like once the steroids bring down your flare up u will continue to take pentasa to maintain your colitis control so you could be on it for quite sometime i have never taken pentasa myself thought they have me on salofalk which i believe is for the same thing, just to keep uc under control. not sure if that helped at all but anyways good luck wishing you the best.
Thanks for your reply. She is already taking Ciproflaxin,plus Flagyl, Pentasa and Welchol.
In assition, She was presecribed the steroid enemas to combat ulcers which fomed between the pouch and her anus; which is so contracted (possibly from the lack of solid stool for 20 years?) that with the constant irritation of liquid stool, cleansing and shrinkage she says it too painful to insert the tip of the enema bottle.
I have been hospitalized four times in last two years. Finally I met a doctor in UK who prescribed Asacol Foam Enema. I was unable to get into remission for last so many years with all drugs, however, with this foam enema, I got in full remission in just few weeks. I was surprised to find that drug industry that makes Enemas for UC has been dominated by company that makes Rowasa Enema (Israeli Company). I am shocked to find that Rowasa has complete monopoly over this industry.
I am 56 year old male, diabetic type 2, have been diagnosed a year ago with ulcerative colitis, they prescribed pentasa as medication, now after one year I for rectal bleeding again, I took pentasa 2000 mg on my own , rectal bleeding stopped, watched my diet for a few days , then I went back to my bad eating habits drinking carrot juice , and tuna with little spices, diarreha came back and today I took 2000 mg pentasa orally, after but was eating sweets , now after a few hours at night bleeding
I went back to my doctor about a month after the diarrhea began and had my stool tested in a lab. All lab results came back negative for everything including C. Diff. The lab tests did find Aeromonas Hydrophila for which my doctor prescribed me Bactrim, which didn't help, problem made my diarrhea worse. So I went to a Gastroenterologist who told me the lab test was very thorough but he still thought I should take another round of antibiotic for C. Diff.
Sorry to hear that. Pentasa is certainly the lowest level prescription drugs that can be prescribed. As you go up in drugs, the impact and potential side effects go up (e.g. next step would be something like Imuran, then Humira). Have you gotten any blood tests recently? C-Reactive counts, Sedimentary rate, and White Blood Cell counts can be markers of imflammation or a change in something. Vitamin D will probably be low if you're not absorbing anything in your gut (i.e. frequent diarrehea).
He was under treatment and was given Pentasa granules , T PAN (40mg), Tab wysolone and Pentasa Anema. As there was no improvement. Doctor adviced to have Exemptia (Adalimumab) injection. 4 injections (40mg 8ml) was given. Next day he was having stomach pain, tight and rigid stomach, and fast breathing. He was immediately admitted in the nearby hospital and doctor found he was suffering from megacolon (toxic colon).
Went to another doctor and had more bloodwork-borderline IBD tests. Went off Pentasa for a few days in Dec and had severe RLQ pain and right hand pain. Got better after a week back on Pentasa. Had another colonoscopy-essentially negative in late Jan. I continue to have burning pain in my rectum and RLQ and right hand, general fatigue. Stress makes it worse. Do I have crohn's, lupus, what????
i was having severe headache,some times knee pains,eye becomes red and pains.iam using pentasa ,budeg-cr and pantodac.after started using medicines am bit free of almost all symptoms except headache.the severity of headache is reduced but i get it frequently.if it comes it doesnt go in a short times some times a day or 2days its coming constantly.my doctor is saying headache is not because of crohn's .if any body with crohn's is having the same symptom? or is it because of anything else?
Teak believe me i am loosing weight in some part of my body ( legs, arms, face) and gaining in other parts
Pain in legs and arms and specially today pain in shoulders, i feel like skin of shoulders is burning :(
I am convinced now that i have hiv :(
I guess that my test didnt catch it or it was later than 3 months due to my drugs i take since 3 years ...
Like a lot of people, I probably had it long before I was forced to address the issue. I am currently on Pentasa and 6MP. All seem to be doing okay. However, recently I have been having a hard time swallowing. I can actually feel everything in my throat. Has anyone else experienced the same? I hate to go through any tests if anyone has suggestions. Wishing everyone long remissions!
They started with testing in November of 07 and finally performed the right blood test for Crohns in Feb 08. This was after many different tests for different things. I was on Prednozone and Pentasa at first. I am still on Pentasa 8 times a day and many other meds. Mostly for pain, cramps and bleeding. Go to the crohns.com web site and after signing up, they will send you a wonderful book that answers many questions. I am glad to help and answer concerns. That's how we help each other.
At the start of all of my problems I was just passing white mucous in my stool, the stools tended to be skinnier than normal, with a white mucous coating covering the stool. I called my Dr and asked if her I should be seen once I noticed that I had some presence of blood too. She said to come in and she treated me for diverticulitis, and also did a stool sample to check for e coli, and other infectious type strains, It all came back ok, so she told me to continue with the Cipro.
Hello all. My mother was diagnosed with Crohns two years ago. She is in her mid 50s. It came out of the blue and she was bed-ridden for months. I moved home to take care of her. She got significantly better and stopped her meds. She has not had any issues, except some mild discomfort and diarreah from time to time.
I schooled myself hard to make good choices for her. She is not taking any meds at all now and I am just waiting for the other shoe to drop.
t know how she got it. Ever since the pancreatitis she has been in pain just about every day (and missing quite a bit of school). It doesn't seem to make a difference as to the types of food she eats. She has tried going without milk for 4-5 days and without wheat for about a week. She was tested for food allergies also, which came back negative. The most pain she has is in her abdomen area, running horizontally from side to side and it is tender to press on.
The only thing to watch is not to get constipated. When her stool seems to be getting hard on larger dose, introduce fibre or stool softner into her diet. It's a matter of trial and error and her GI isn't with her every day to adjust her doses. Just make sure she doesn't drop her Asacol below what she normally takes now or the bleeding could restart but she has to get off that Prednezone every day.
I was diagnosed with Crohn's in October of 2008. However I had been diagnosed with IBS in about 1997. Even for a short while before my diagnosis I was having this itching problem on my legs. When I would get out of the shower my legs would be EXTREMELY itchy. It was worse when I shaved but still there when I didnt. Every now and then i would be on my upper arms as well.
hi guys im 6 weeks pregnant and have uc / im currently on azathoprine/ pentasa granules/ doc says these meds are safe in pregancy? has anyone else been in my situation?
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