i believe that pentasa is more for management of colitis once it's under control from steroids like once the steroids bring down your flare up u will continue to take pentasa to maintain your colitis control so you could be on it for quite sometime i have never taken pentasa myself thought they have me on salofalk which i believe is for the same thing, just to keep uc under control. not sure if that helped at all but anyways good luck wishing you the best.
Japan has not done any drugs trials for this and prescribed oral pentasa to me, which let to an almighty flare. They prescibed pentasa liquid enemas, then steroids liquid enemas, then oral steroids all the while I am getting thinner, but puffier (thanks steroids!), my knees were very painful and my eyesight was blurry. I flew to the UK (nightmare 12 hour flight) + few hour transfer.
I am 56 year old male, diabetic type 2, have been diagnosed a year ago with ulcerative colitis, they prescribed pentasa as medication, now after one year I for rectal bleeding again, I took pentasa 2000 mg on my own , rectal bleeding stopped, watched my diet for a few days , then I went back to my bad eating habits drinking carrot juice , and tuna with little spices, diarreha came back and today I took 2000 mg pentasa orally, after but was eating sweets , now after a few hours at night bleeding
I have suffered from Crohns for 10+ years but only diagnosed last october. My doctor put me on pentasa that I am still on and I've tried numerous times to explain to him it doesn't work. I have daily pain and diarrhea 15+ times a day yet he still won't change my meds. The only test I have had done is a small bowel series which diagnosed it. No other tests to this day. He acts like he doesn't believe me when I say I have extreme pain every day.
He was under treatment and was given Pentasa granules , T PAN (40mg), Tab wysolone and Pentasa Anema. As there was no improvement. Doctor adviced to have Exemptia (Adalimumab) injection. 4 injections (40mg 8ml) was given. Next day he was having stomach pain, tight and rigid stomach, and fast breathing. He was immediately admitted in the nearby hospital and doctor found he was suffering from megacolon (toxic colon).
I had changed from Asacol to Pentasa the week before and the rectal pain had come back-significant burning pain. Went to another doctor and had more bloodwork-borderline IBD tests. Went off Pentasa for a few days in Dec and had severe RLQ pain and right hand pain. Got better after a week back on Pentasa. Had another colonoscopy-essentially negative in late Jan. I continue to have burning pain in my rectum and RLQ and right hand, general fatigue. Stress makes it worse.
I am on Cimzia and Pentasa 4grams a day, for the Crohns itself, Dicyclomine for most bowl and rectal spasms (works in calming down the need to go), and Tramodol 100mg (8 max a day) though I sometimes use more.
Strange thing, the Tramodol acts like a diuretic and with the Dicyclomine, tends to control the pain and symptoms to the point where I am functional again. Although, if it wasn't for the Pentasa and Cimzia , I would be in the hospital or going crazy from the pain and discomfort.
Like a lot of people, I probably had it long before I was forced to address the issue. I am currently on Pentasa and 6MP. All seem to be doing okay. However, recently I have been having a hard time swallowing. I can actually feel everything in my throat. Has anyone else experienced the same? I hate to go through any tests if anyone has suggestions. Wishing everyone long remissions!
This was after many different tests for different things. I was on Prednozone and Pentasa at first. I am still on Pentasa 8 times a day and many other meds. Mostly for pain, cramps and bleeding. Go to the crohns.com web site and after signing up, they will send you a wonderful book that answers many questions. I am glad to help and answer concerns. That's how we help each other. Please ask anything. It's like having a baby, all modesty is out the window.
He prescribed her half a tablet of Tryptizol every night before going to bed against nausea and one Pentasa Sachet every night before food against irritated bowel disease.
Moreover, she did a Gastroscopy which didn't show anything.
Can anyone of you help or might have had a similar experience? Is the doctor right with his treatment suggestions? She is also on the pill (Yasmine) which she started only in May though but wasn't taken while she was in Canada and the pain subsided.
i have uc 2 years ago i have no diahrea no belly pain just some time see some blood when i go to bath i take pentasa 4 pills per days for 8 mounths i i didn't see any blood from the first 10 days when i started to take pentasa i stopped to take it 7 mounths but then the bleeding back then i started to take pentasa again but since 3 months but bleeding never stop come and god ,,,i heard that vitamin D, yoghurt , banana, fenugreek,tumeric..
Did the doctor take her off the meds? If it was antibiotics then yes she would be off. However, since she was so sick I can't imagine why the dr doesn't have her on pentasa or some other meds to prevent flare-ups.
If she just stopped the meds herself and it was a pentasa type of med and not just antibiotics she is asking for trouble.
hi guys im 6 weeks pregnant and have uc / im currently on azathoprine/ pentasa granules/ doc says these meds are safe in pregancy? has anyone else been in my situation?
and the medication i believe she is on it pentasa or sothing like that if that helps you i stil am very worried. also there are certain things she cant use like the coil because of her age she is only 16.
pentasa, then prednisone, then she went through nearly a year of imuran which did nothing for her.
Her Crohn's issues are the illeum, constipation (as opposed to diarrhea) abdominal cramping, anal fissure (being treated with cipro/flagyl & polysporin) loss of appetite is a big issue as well as headaches, joint aches and lack of absorbtion (nutrition).
My doctor said it could cause some hair loss, but not like Pentasa, that I have been on for years. I feel like a shedding dog. I guess you just learn to live with it. As long as I feel better, I will live with the hair loss, and after 5+ years, I haven't notices thinning...YET! Good luck.
Sean,
Of course you do remember in my previous threads that I have Ulcerative Colitis and on Pentasa 500mg x 4 pills per day for almost 18months. So hope your answer is still certain despite my autoimmune disease and Pentasa.
Thank you in advance Dr. Sean and promise I would never bother you any longer.
Now he is 12 years old he has been doing very well on pentasa. I worry because all the medicine he takes at such a young age. He is getting tired of taking so much medicine. I would like to know if anybody knows of a natural diet that works for ulcerative colitis?
i was having severe headache,some times knee pains,eye becomes red and pains.iam using pentasa ,budeg-cr and pantodac.after started using medicines am bit free of almost all symptoms except headache.the severity of headache is reduced but i get it frequently.if it comes it doesnt go in a short times some times a day or 2days its coming constantly.my doctor is saying headache is not because of crohn's .if any body with crohn's is having the same symptom? or is it because of anything else?
hi there i have u/c and get lots of bleeding!! im currently on pentasa ! i was on eight tabs aday now im on 4 aday / but mine seems to be playing up since ive cut dwn on them? hope you get it sorted?
The attacks have stopped for now, he is taking 500mg of Pentasa 4 times a day and Nexium 2 times a day. He will have a camera endoscopy next week. I have a copy of his records and am not sure what the biopsies are saying. I wanted to see if anyone understood.
Duodonum Biopsy:
Fragments of small bowel mucosa with chronic active duodenitis and foci of villous blunting Intraepithelial lymphocytes are seen in surface epithelium.
Recommended
