Just recently his doctor took him off the pentasa and started him on Imuran (an immune suppressant). Since his disease gets quite severe this can possibly put him in remission for a number of years. It takes about 4 months to kick in. They have proven that taking Imuran early in your diagnosis can dramatically alter the progression of your disease. Good luck!
I have suffered from Crohns for 10+ years but only diagnosed last october. My doctor put me on pentasa that I am still on and I've tried numerous times to explain to him it doesn't work. I have daily pain and diarrhea 15+ times a day yet he still won't change my meds. The only test I have had done is a small bowel series which diagnosed it. No other tests to this day. He acts like he doesn't believe me when I say I have extreme pain every day.
Hi trudie,
Thank you so much for your response, My son has been taking pentasa and as he gains weight the doctor increases the dosage.but he is still thin for his height
and he eats a lot throughout the day. He has been stable since he was diagnosed 4 years ago. I just took him to his doctor because he has been complaining of stomach acid. She gave him prilosec for GERD. But she wants him to have his stools examined
just to be on the safe side.
My name is brittney. I'm 22 and have had ulcerative colitus for about a year. On imuran once a day and pentasa 4 times a day(neither of which are working).
I know most people tend to malnurished and lose alot of weight with this disease< due to all the dhiarria and blood loss and such. I actually seem to be gaining weight. not to much, but not losing anything at all even though having the extreme pain and dhiarria.
anyone else experience this?
I have been on several different medications since then and am currently taking Imuran and Pentasa to control my disease. The Crohn's seems to be under control. For the last year, however, i have been having a pain in my lower back (actually it is more in my buttocks). My GI doctor didn't seem to think it was anything, probably a muscular thing. Went to the Chiropractor 7 times to no avail.
The pain is getting worse and I think I have been on at least twenty different kinds of medication to try and get this under control. I have tried Pentasa, Entocort, Prednisone, Nortriptyline and Imuran just to name a few. Also recently I have only been able to eat two meals a day because if I try to eat any more than that I vomit for the next two days.
My question is if this isn't Crohn's disease then could it be the fat band that is wrapped around my intestines be causing this?
My daughter also takes pentasa and WAS taking prevacid. The prevacid didn't seem to help her and our GI switched her to prilosec. My daughter has had no complaints with the prilosec. Both prevacid and prilosec have the same actions so they do the same things. The only interaction that I know of with prevacid and penicillin is with a type of penicillin called Ampicillin and it may inhibit the absorption of the prevacid.
I realize you all are busy, but I would be immensely grateful if you would give a few thoughts regarding some matters of great concern to me.
I have autoimmune hepatitis - 22 YO male. Never drank alcohol, taken drugs, or done anything that would have exposed me to hepatitis C (blood tests confirmed).
Per my biopsy of about 18 months ago, I am in stage 2 bridging fibrosis - although my LFTs have been elevated since then.
for 8 years or so. However, I am hoping to get pregnant and so my Dr. slowly weaned me off the imuran and now I am on prednisone 20mg. My last dose of immuarn was tuesday--25mg (down from 100mg). Now my dr. wants me to wait 2-3 months to start trying to get pregnant! Does anyone know anything about that--that it takes 2-3 months for imuran to get out of the body? Has anyone had any experience with trying to get pregnant and/or having a baby with AIH and being on either of these meds??
I am a 27 year old female who has autoimmune hepatitis and colitis. I have been on imuran (azothiaprine) for about 4 years and that has held my liver enzymes in complete check and I've been fine. I would now very much like to become pregnant, but my high-risk OBGYN has warned me of the risks of being on imuran while trying to concieve.
I flew to the UK (nightmare 12 hour flight) + few hour transfer. Was prescibed 1g pentasa suppositories, stopped all other meds and tapered the oral steroids and all symptoms stopped within 10 days.
I've just started a flare when in the UK for xmas (had doxy... antibiotics which I think triggered it) and doc prescribed asacol foam enemas- FX they will work. I will buy a few boxes to take back to Japan and avoid another flare.
This needs to get under control. My son is in remission right now due to first, getting things under control with Pentasa and Prednisone, and then as he is weaning off the prednision he started Imuran. He has been 1.5 years in remission. I really hate when doctors don't recognize the benefit of diet changes. There are medical studies proving that a gluten free diet helps UC. I would suggest you give that a try, perhaps even with the guidance of a Naturpathic doctor.
I'm just a bit frustrated right now. They did test my macula and said there was no problem. I was first diagnosed with iritis. I was given an injection of Depo-Medrol and things appeared to go down hill from there. I developed ulcerative keratitis 4 weeks later over 1/2 of my cornea then a few days later, I developed a large staphyloma from 12 to 2 with significant thinning at 2. The inflammation went crazy and became non-responsive.
My son recently had another flare up and they put him on the prednisone and then as it is winding down they have started the Imuran. He told me his doctor said the Imuran takes a number of months before it starts working.
I would highly recommend marijuana. My son was smoking for a year and was so healthy. When he quit he flared again. Studies have proven it helps. There is another poster not far down on the forum who has been using this successfully.
s not) and also low iron and potassium. She is now taking the prednisone, imuran, asacol, aciphex, an iron supplement, probiotics and a multi vitamin. I hope this works, but now, someone today was telling me that she also has symptoms of celiac disease (they seem to be same as UC) and I dont' know if you can have both at the same time or not...if anyone knows or has any information, I would greatly appreciate it...
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