My husband has pulmonary fibrosis. When the weather is damp and rainy it is terrible to see him choking and gagging trying to bring up and spit out thick horrible white mucus. I am sorry to sound so gross with this description but there is no other way. Does any one know if this mucus is part of this terminal disease? He does not want any of us (his family) to call and ask his pulmonary doctor this question.
Mel
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But, my mother had idiopathic pulmonary fibrosis. Idiopathic means cause unknown. And many times, doctors cannot tell a patient, what caused the pulmonary fibrosis. My mother had a lung biopsy. Even with the lung biopsy, doctors could not determine, just what had caused her lung disease. She had worked around metal dust for 15 yrs. They could not determine, if that caused her pulmonary fibrosis. According to my research, many things could possibly cause pulmonary fibrosis.
This machine dries up the eyes and nasal passages which causes irritation, burning and sneezing. However pulmonary fibrosis cannot be due to CPAP use. Alternatively uses of CPAP mask in pulmonary fibrosis can cause claustrophobia like symptoms.
Lung scarring occurs due to pathological deposition of fibrous tissue. This is a progressive disease usually and hence needs frequent periodic monitoring.
But well, somehow pulmonary fibrosis has even a more special spot in my heart. Little is known about pulmonary fibrosis. But, this lung disease is gaining fast attention nationally. And I am thrilled about that. There is also the Coalition for Pulmonary Fibrosis. I am a member. You may want to check them out as well. The Coalition has been trying for several yrs. to get legislation passed, for more research money into pulmonary fibrosis.
t enough to make a determination of Interstitial Pulmonary Fibrosis. A CT coupled with blood lab panel as well as full pulmonary function tests will make a far better determination in diagnosing this.
I routinely perform pulmonary function tests on patients that have early and chronic IPF/ILD. Pulmonologists will rely heavily on the CT and lung volumes/DLCO (obtained from PFT's) to track the disease and make treatment changes.
My questions are,
Can I still be diagnosed with asbestosis, or pulmonary fibrosis without any signs (fibrosis, scaring, damage, inflammation, ect) on my xray or HRCT?
Can my health complaints above be early symptoms of asbestosis or pulmonary fibrosis that cannot be seen on chest x-rays or HRCT?
Can I be diagnosed only by my long term exposure to asbestos, my symptoms, pulmonary function tests? Should I ask for early treatment?
A related discussion, <a href="/posts/Respiratory-Disorders/How-does-pulmonary-fibrosis-differ-idiopathic-pulmonary-fibrosis/show/2332273">How does pulmonary fibrosis differ idiopathic pulmonary fibrosis</a> was started.
//www.mayoclinic.
Scarring, that can resemble interstitial fibrosis, can occur with chronic obstructive pulmonary disease (COPD), but COPD and interstitial pulmonary fibrosis (IPF) are 2 different diseases. Smoking causes COPD. The cause of IPF is unknown, and at this time, there is no proven effective treatment for it. Asbestos can also cause scarring, but unlike COPD and IPF, it frequently involves the membrane that encases the lungs, called the pleura.
I have Pulmonary fibrosis, Pumonary Hypertinsion (40), Mitrial valve prolapse, CAD, a Pacemaker and an ayneurism on my left main coranary artery. I see a Pulmonologist and (2) Cardiologist. I folloMy Doctors advise and take my meds. but I hsve problems with the phiym and sleep plus shortness of breath. What more can I do?
My father passed away at 58 yrs old from Idiopathic Pulmonary Fibrosis. I have heard that this is a fancy way of saying he has a life threatening lung disease but they have no name for it. Through researching online I have seen a few studies published indicating that this may be hereditary. has anyone else gone through this, is anyone going through this? Maybe we can share info? I am scared not only for me but for my two young children.
Thank you.
This is good news. The so-called "normal values" are average values and, as with all averages, there is a range of truly normal values both above and below the "normal value." With pulmonary fibrosis, the crucial values are forced vital capacity (FVC) and, if performed total lung capacity (TLC). You should seek further clarification from the lung specialist about the significance of your values, with special attention to the diagnosis of pulmonary fibrosis.
My mom got dx with Pulmonary Fibrosis 5 yrs ago. Besides a chronic cough, she has not experienced remarkable symptoms. Her pulmonologist visits thru this January have not revealed any significant changes or concerns. Her O2 sats were 95% in Jan.
She went on vacation to florida the beginning of March for 3 weeks. She played shuffleboard for hours and went on long walks, no acute SOB.
The heart and pulmonary vessels are normal in size. There are no infiltrate, effusion, or lymphadenopathy. There is subtle prominence of interstitial markings that extends to the subpleural surface of both lungs. This finding could represent underlying mild fibrosis, and may indicate a smoking history.
Impression: Subtle findings suggesting interstitial fibrosis, but with no infiltrate or other abnormality identified.
I am 43 Male and have never smoked a day in my life.
MD put me on this after quadruple by-pass for AF - which was present before the surgery for approximately one month. My questions are - is it safe? What is the risk of pulmonary fibrosis and does the risk go up with dosage and duration of use? Will I be able to do triathlons (sprints) again after recovery?
i have suffered pulmonary tuberculosis last 2006....i have taken medicines for 6 months two times now...but after ive taken my x ray....the finding is fibrosis on left upper lung...is there a possibility that this fibrosis will be treated or be gone permanently? thank you..
In the diagnosis it had Postinflammatory pulmonary fibrosis. He never told me I have this! A few years ago 2 to be exact I had my 6th rib removed due to a growth on it. The growth was benign thankfully. I ended up with pnuemonia after the surgery and not knowing anyone including my son. I had aphasia so horribly that I would start a sentence and not be able to find the word I wanted and then start over again sometimes a dozen or so times until someone would thankfully change the subject.
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