My 16y/o daughter has UC. Has been on Lialda 2.4 g/day for 6 months. She was on prednisone for the first 4 months of the same time period. Has had significant hair loss for the last 5 months. Cortisol AM is normal. My duaghter also has ITP and is considered chronic, it usually manifests during a UC flare up. Is the Lialda a possible culprit.
s for the last 5yrs and am on 5mg of Prednisone/day as well just being switched to Lialda 2.4gms/day (from Pentasa 4gms/day) one month ago. I was started on Famvir today-500mg tid. I am leaving for Hawaii on Wednesday and am scheduled to swim with the dolphins on Thursday. I have completed my first full day's dose of medicine and will continue until the prescription is completed. I am then staying on a maintenance dose of 250mg/day until I can get the vaccine in 6mos at age 60.
I have just started taking Lialda. I previously took Asacol. I enjoy the Lialda because I was taking 3 pills three times a day with Asacol and now I only take 4 pills once a day with Lialda. I haven't been on the Lialda for very long, but so far the results are good. I'm not sure that it is better than Asacol, but I think it is easier and equal in performance. You might ask your doctor if they have any prescription cards for Lialda.
I was put on lialda when I started having an alergic reaction to sulpha drugs. I main question is that I now have a bad taste in my mouth. Is this from the lialda?
I have severe joint point pain and I have been told that Celebrex is a huge help for this. I am wondering about side effects and medicine interactions.
Has anyone else experienced weight gain around the stomach while on Lialda? I've had UC for 22 years and have been on several different medications. I was on Prednisone for 14 years and never gained a pound. In February of 2009 I was put on Lialda after a 4 year remission. I gained 10 pounds within two weeks, all on my stomach. Last November, I had another flare that lasted 4 months (I never lost a pound even though I was eating very little).
i believe that pentasa is more for management of colitis once it's under control from steroids like once the steroids bring down your flare up u will continue to take pentasa to maintain your colitis control so you could be on it for quite sometime i have never taken pentasa myself thought they have me on salofalk which i believe is for the same thing, just to keep uc under control. not sure if that helped at all but anyways good luck wishing you the best.
I am currently taking lialda 2 capsules twice a day. I basically stopped taking the lialda because it made me feel worse than I already was. My question is is there a reason why the lialda makes me have pain in my gut. Are there any other new meds out there of UC? Are there any new surgeries to cure UC?
I started taking Lialda in August, 2008, and took it (3-1g tabs once per day) for 5 months before I got better. However, I am not sure whether to credit the Lialda or the Flora-Q I began taking after three months into my treatment.
I have lymphocytic colitis so this may not pertain directly to your diagnosis, but I hope it helps.
Japan has not done any drugs trials for this and prescribed oral pentasa to me, which let to an almighty flare. They prescibed pentasa liquid enemas, then steroids liquid enemas, then oral steroids all the while I am getting thinner, but puffier (thanks steroids!), my knees were very painful and my eyesight was blurry. I flew to the UK (nightmare 12 hour flight) + few hour transfer.
I am 56 year old male, diabetic type 2, have been diagnosed a year ago with ulcerative colitis, they prescribed pentasa as medication, now after one year I for rectal bleeding again, I took pentasa 2000 mg on my own , rectal bleeding stopped, watched my diet for a few days , then I went back to my bad eating habits drinking carrot juice , and tuna with little spices, diarreha came back and today I took 2000 mg pentasa orally, after but was eating sweets , now after a few hours at night bleeding
I have suffered from Crohns for 10+ years but only diagnosed last october. My doctor put me on pentasa that I am still on and I've tried numerous times to explain to him it doesn't work. I have daily pain and diarrhea 15+ times a day yet he still won't change my meds. The only test I have had done is a small bowel series which diagnosed it. No other tests to this day. He acts like he doesn't believe me when I say I have extreme pain every day.
He was under treatment and was given Pentasa granules , T PAN (40mg), Tab wysolone and Pentasa Anema. As there was no improvement. Doctor adviced to have Exemptia (Adalimumab) injection. 4 injections (40mg 8ml) was given. Next day he was having stomach pain, tight and rigid stomach, and fast breathing. He was immediately admitted in the nearby hospital and doctor found he was suffering from megacolon (toxic colon).
hi there yes i have uc and bowel sounds are quite normal for me as soon as i eat? then i have to go on the loo !!
I had changed from Asacol to Pentasa the week before and the rectal pain had come back-significant burning pain. Went to another doctor and had more bloodwork-borderline IBD tests. Went off Pentasa for a few days in Dec and had severe RLQ pain and right hand pain. Got better after a week back on Pentasa. Had another colonoscopy-essentially negative in late Jan. I continue to have burning pain in my rectum and RLQ and right hand, general fatigue. Stress makes it worse.
I am on Cimzia and Pentasa 4grams a day, for the Crohns itself, Dicyclomine for most bowl and rectal spasms (works in calming down the need to go), and Tramodol 100mg (8 max a day) though I sometimes use more.
Strange thing, the Tramodol acts like a diuretic and with the Dicyclomine, tends to control the pain and symptoms to the point where I am functional again. Although, if it wasn't for the Pentasa and Cimzia , I would be in the hospital or going crazy from the pain and discomfort.
I tried to do the same thing with getting my Lialda medication but they never replied back to my paperwork or anything. I am going to try again this year to see if I can get it.
Like a lot of people, I probably had it long before I was forced to address the issue. I am currently on Pentasa and 6MP. All seem to be doing okay. However, recently I have been having a hard time swallowing. I can actually feel everything in my throat. Has anyone else experienced the same? I hate to go through any tests if anyone has suggestions. Wishing everyone long remissions!
This was after many different tests for different things. I was on Prednozone and Pentasa at first. I am still on Pentasa 8 times a day and many other meds. Mostly for pain, cramps and bleeding. Go to the crohns.com web site and after signing up, they will send you a wonderful book that answers many questions. I am glad to help and answer concerns. That's how we help each other. Please ask anything. It's like having a baby, all modesty is out the window.
He prescribed her half a tablet of Tryptizol every night before going to bed against nausea and one Pentasa Sachet every night before food against irritated bowel disease.
Moreover, she did a Gastroscopy which didn't show anything.
Can anyone of you help or might have had a similar experience? Is the doctor right with his treatment suggestions? She is also on the pill (Yasmine) which she started only in May though but wasn't taken while she was in Canada and the pain subsided.
i have uc 2 years ago i have no diahrea no belly pain just some time see some blood when i go to bath i take pentasa 4 pills per days for 8 mounths i i didn't see any blood from the first 10 days when i started to take pentasa i stopped to take it 7 mounths but then the bleeding back then i started to take pentasa again but since 3 months but bleeding never stop come and god ,,,i heard that vitamin D, yoghurt , banana, fenugreek,tumeric..
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