I was on Prednisone for 14 years and never gained a pound. In February of 2009 I was put on Lialda after a 4 year remission. I gained 10 pounds within two weeks, all on my stomach. Last November, I had another flare that lasted 4 months (I never lost a pound even though I was eating very little). The doctor quadrupled my dose of Lialda, and again more weight gain around my stomach and nowhere else. This is very frustrating.
I have just started taking Lialda. I previously took Asacol. I enjoy the Lialda because I was taking 3 pills three times a day with Asacol and now I only take 4 pills once a day with Lialda. I haven't been on the Lialda for very long, but so far the results are good. I'm not sure that it is better than Asacol, but I think it is easier and equal in performance. You might ask your doctor if they have any prescription cards for Lialda.
I am currently taking lialda 2 capsules twice a day. I basically stopped taking the lialda because it made me feel worse than I already was. My question is is there a reason why the lialda makes me have pain in my gut. Are there any other new meds out there of UC? Are there any new surgeries to cure UC?
as he puts it, it is the only med that keeps me in remission. As far as I understand current IBD protocols, steroids are only used short term to bring about remission, but we need an immuno-suppressor drug (Remicade, Humira, Cimzia) for maintenance of remission. I do know what I am talking about and steer clear of well-meaning people who advocate stopping prescribed meds and using alternative medication.
My 16y/o daughter has UC. Has been on Lialda 2.4 g/day for 6 months. She was on prednisone for the first 4 months of the same time period. Has had significant hair loss for the last 5 months. Cortisol AM is normal. My duaghter also has ITP and is considered chronic, it usually manifests during a UC flare up. Is the Lialda a possible culprit.
I was put on lialda when I started having an alergic reaction to sulpha drugs. I main question is that I now have a bad taste in my mouth. Is this from the lialda?
My son looked into it but his disease is not in a really good place and he can only have the surgery if he is in remission, and then when in remission he feels good so no need. It is good to see if you can get things under control. I didn't have a good doctor and we didn't have the options you do now when I was sick.
I started taking Lialda in August, 2008, and took it (3-1g tabs once per day) for 5 months before I got better. However, I am not sure whether to credit the Lialda or the Flora-Q I began taking after three months into my treatment.
I have lymphocytic colitis so this may not pertain directly to your diagnosis, but I hope it helps.
I am a 36 year old woman who was just diagnosed with UC. It was a real nightmare to get here though. Over three years ago I started having mild symptoms and female issues but had no idea that this is what it was. My doctor convinced me that I was severely depressed and put me on anti-depressants of which those actually made me a zombie at times and very depressed at others so I stopped taking them and just dealt with my issues on my own.
hi there yes i have uc and bowel sounds are quite normal for me as soon as i eat? then i have to go on the loo !!
I have been on Asacol in a prophylactic capacity since (800mg tid). Does it keep me in remission. Maybe, but maybe it is the tremendous quantities of fentanyl, diacetylmorphine and morphine I abused as well for all I know :P.
From my somewhat limited research into Asacol, it is tolerated very differently by different people; some sing its praises, others curse it as worsening their condition.
They repeated the colonoscopy and again turned up focal active colitis. The doctor there has been treating me with Lialda and Entocort. The number of bathroom trips has decreased to about 5-6 a day, and things are much more 'solid'. However, the pain is steadily getting worse. It's mostly left side, from under my ribcage down to above my hip. I get it on the upper right side as well, but generally not as severe.
I would appreciate any insight you might have on this.
My questions to you, why is chemotherapy continued after a complete remission is obtained? If the goal is complete remission and it is achieved...why continue with the treatments? I know remission does not mean cured, but it means no clinical signs of cancer in the body. If this is the case, then why is the dog subjected to weeks more chemo and expense if the cancer is in remission?
I tried to do the same thing with getting my Lialda medication but they never replied back to my paperwork or anything. I am going to try again this year to see if I can get it.
No one can possibly tell you ahead of time how well someone will respond to a particular treatment. If the treatment does work well for her, she could have a long remission or something as short as a month or two. Nobody knows...that's just the nature of this disease, unfortunately.
I did Avastin/cytoxan for 6 cycles and it shrunk my tumors by almost half and held them stable for a few months until the tumors began to grow again.
I had hodgkin 20 years ago and have been in complete remission. Last week I went for my yearly checkup and the Dr. discovered a swollen lymp node on the right side of my lower neck. what are the chances that the Hodgkins has made a reapperence? if so what is the prognosis? I am going for a PET CT this week.
I will have a pet scan in May and if it is clean my Onc. will declare me in complete remission. From your post it appears you only have 1 tumor in your liver...which is good. I am not sure with you fighting breast cancer what your prognosis is and how they are treating both...but I wanted to tell you my story to give you hope...liver tumors don't mean you will die. I know I haven't been in remission for long but my doctors at MD Anderson have always been optimistic about my prognosis...
She also has been able to control her sugar this summer with just physical activity. Is it possible for her to go into remission or honeymoon period?
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