Ketogenic diet and infantile spasms
Common Questions and Answers about Ketogenic diet and infantile spasms
ketogenic-diet
just checked what a ketogenic diet is, this type of diet is extremely unhealthy and damages livers of any person hbver or not
The ketogenic diet is a high-fat, adequate-protein, low-carbohydrate diet:
high fat damages the liver
adequate-protein is ok but from vegetable or little white meat, no red meat, no diaries
low-carbohydrate leads nowhere, it is processed and refined carbohydrates to increase blood glucose which makes damage, so the problems is refined cereals not not carbohydrates
the a
re with a doctor you trust and be careful with the meds, the side effects can be devastating. Infantile spasms can cause severe developmental delays and doctors work hard at trying to stop them because of it. Seizures are very complex and what works for one may not for another. What I have found is that all of the cases are so different, each child may have the same "type" of seizure but won't respond to the same med. They have never found a cause for his seizures.
Here at Duke, we use mainly the low-carbohydrate, ketogenic diet to treat diabetes and obesity. Hypertension gets better, heartburn gets better, fatty liver. The list goes on and on.""
Excerpt from Diabetes UK - Low Carb High Fat Diet..
"The diet, because of its low requirement for insulin, has been recognised by the Swedish government as being suitable for people with type 2 diabetes and as helpful to individuals looking to lose weight or maintain a healthy weight.
She is on a ketogenic diet to help with the Lyme, so she gets low carbs, no sugar or processed foods, no dyed foods, no grains.
I have called her pediatrician and scheduled an appointment to evaluate her, but thought I would ask here as well, because it'll be two weeks before they can see her.
Thoughts, insights? Anything specific ringing a belly that I should look deeper into? Is there a connection to children's emotions and lyme, or is this two separate issues?
Nathan was started on a diet for Seizure control...Ketogenic Diet. He had his last grand mal seizure the 3 day on the diet. His muscle and drop seizures ended 2 months later completely, but we noticed they were less harsh with each one he had til they just stopped." - excerpt from KetoGenic Diet for Seizures.
My child has had a g-tube for 6 years because of the ketogenic diet in which she is coming off now, she eats everything, no problem with swallowing, she drinks a whole can of pop at times but how do I get her to drink her whole fluid alotment of 1500ml a day? Or will she pick it up once I can offer her a variety of drinks?
May I suggest you do some research on the Ketogenic Diet. It is a huge lifestyle change, but is totally worth it. Ketogenic lifestyle requires that you cut out almost all carbs. You eat less than 20g of carbs a day, moderate amount of protein 50-100g/day (60-75 is ideal for most people), and 100-150g fat/day. It is a high fat diet that switches your body from using carbs for energy to using fat for energy.
I too am not a doctor, but have had 18 years experience with my daughters seizures. My daughter was diagnosed with infantile spasms with intractable myoclonic seizures ( uncontrolled) I am not in Any way saying this is what's going on with your little one, what you describe is what I see in my daughter. Her seizures are all in her eyes now but when younger involved arms, or shoulders, or legs. Her eyes roll up, flutter ( many quick rapid blinks ) also going to the left.
I started a ketogenic diet on Saturday and the last few days I've been feeling gassy and have slight "cramps", around the belly button area. Why is that?
Hello,
Several antiepileptic drugs and a hormonal therapy can be used to treat infantile spasms and valproate is tried as first line drug. Sometimes doctors start withv igabatrin (Sabril) which is often used as the initial therapy because it is relatively safe (especially for short-term use) and effective. If vigabatrin does not control the seizures in 3 or 4 days, adrenocorticotropic hormone (ACTH) is usually used next. ACTH stops seizures in more than half of children with infantile spasms.
s movements are manifestations of a seizure disorder known as infantile spasms (AKA hypsarrhythmia). The classical description of these spells are similar to what you describe: brief, jerking of the child, oftentimes with the hands flipping back and frequently occurring multiple times in clusters. Infantile spasms are generally divided into 2 broad categories: symptomatic and idiopathic/cryptogenic, the latter category a wastebasket for all of the cases that have no attributable etiology.
Given your current situation and your extremely high blood sugars, if you want to reduce then using diet, then a very low carb diet / ketogenic diet would be the way to go. This diet however, may still not be enough to get your sugars down and you may still need insulin / other meds.
Please know that if you eat a ketogenic diet you need to follow it strictly.
My Neurologist changed my script to Lyrica believing that the symptoms would improve however they are not any better. The jerks and spasms exacerbate the pain i have with Ankylosing Spondylitis. painful neck back hip leg foot. excruciating at times. the symptoms get much worse when I have auras caused from migraines. the fast light flashes terminate with a total body jerk. it's exhausting. Ive been off Lyrica for two years and still no improvement.
key words will be low-carb, and keto. If you do look into ketogenic diet, do not use it as an excuse to eat too much fat; if you want to lose weight fat has to be limited to fats that come naturally with the foods that you eat, rather than lots of extra fats being added.
There are now many cases where this has happened (you can look up Virta Health a company that tries to guide patients to do this), and there are also many online supportive communities.
Think you should talk to someone familiar with the Ketogenic diet and see if there could be a relationship. I understand there are a number of hospitals which except this now as a treatment for epilespy. Maybe you could google it on line and find one close to you so you could talk to the people more about this procedure. From what I read it is important to address the problem earily in order to prevent brain damage.
Hi, my son had infantile spasms which started at approx 3 months old, his eyes would squint and roll up, not fully but as if he was straining, both arms would raise up at the same time, this typically happened on waking or before sleep, I was told for weeks it wasnt anything serious or it was colic.. I video taped him doing theses movements and pushed and pushed to see a neurologist, when they saw it they did say it looked like a fit, prescribed him phenobarbitone* and sent us home...
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