I have headaches that cause blurry vision. I see these color blobs that move in my vision that shouldn’t be there, they don’t show any connection to stimuli so I don’t have synesthesia. I’m on levetiracetam aka keppra and clobazam aka onfi. When I was on oxcarbazepine (trileptal) and levetiracetam (keppra) I started having these weird headaches where I would lose my vision, hearing, smell, and coordination, but I could still speak and feel. The doctors are pretty much stumped.
Anyone else on Keppra to prevent myoclonic jerks (JME diagnosed)? I am, and have been on Keppra for almost 5 years. Started at age 23 and I am now 28. At the beginning they made me very sluggish, but after about 2 months I felt wonderful (since it was the first time in my life I wasn't having seizures!!
They are like a partial complex seizure. I saw a neurologist and was started on Keppra. I was up to 2,500mg a day and they were not stopping. I began to track them carefully and I believe I saw a pattern of only during the 2nd half of my monthly cycle, days 15 - 28 (and usually between 18 and 21) My neurologist decided to put me in the hospital to do a video EEG monitoring and I told him the dates it needed to be. We hit it right and it was determined that my seizures are NES.
But with two normal examinations, the most likely causes are 1) postural hypotension, where your blood pressure drops when you go from sitting to standing and temporarily your occipital cortex is deprived of blood and stops processing vision signals, or 2) migraine, which can cause vision loss without headache, although not usually for just a few seconds.
The first one started off as my background vision not focusing in as quick as the rest. then I would get double vision for a short time after sleeping, and basicly felt off balance all day, everyday for 3 months. I was told it was probably an inner ear virus that threw off my balance and vision a little. They sent me for vision therapy. Im not sure it did anything, but in 3 months, it was just gone as suddenly as it appeared. I was tested for everything at the time...
i suffer from uncontrolled epilepsy i take keppra & toppramax, iv had slight symnptons of ms for many years but never disscussed them for the last 3months things have got worse with numbing,tingling my balance blured vision.
I also take Keppra but have never had any problems at all. I suffered with depression for 11 years and came of the medicine fully just before I went on Keppra, and yes I have days where I do feel depressed but with any illness you do have days where you feel depressed even suicidal. So my advice is don't necessarily put it down to Keppra. Talk to the doctor who prescribed Keppra to you and see if you can be referred to a Psychiatrist to talk it through and find out if it is the tablets!
I have no health insurance. I was finally got a really basic coverage, but it doesn't cover keppra. i've been taking keppra for a 2 months. I was switched to phenobarbitol for when I run out. since keppra is not on the charity's formulary.
I hope to God that I cant find some source of keppra before I run out. The phenobarb is scary.
So I'm excited about the links here:
http://brain.hastypastry.net/forums/index.php
http://www.needymeds.
Dilantin,carbamezapine,valproate can be used in temporal lobe seizures.Topamax,keppra,lamotrigine can be used as add on drugs with medications mentioned above.Dilantin doesn’t cause depression but can cause decrease in renal function,headache,dizziness,confusion,double vision etc.It is best to discuss your concerns with your doctor before initiation of an alternative antiepileptic drug. Do keep us posted.
Regards!
Did you start it after or before keppra? How long were you on Keppra? I wish my daughter could take Lamictal but her rash got the doctor worried, even though it was ringworm. Have you heard of any other anti-seizure meds that might actually work well for moods? I know Lamictal is a very good mood stabilizer. Good luck.
04/12 changed him to Dilatan and keppra more seizures. 05/12 put back on keppra only 3,500 mg. 06/12 seizures moved to keppra 4,000 mg a day! He has had only 1 seizures since been on 4,000, but this is a very high dosage. He is going to see an seizures specialist. Hoping he can get this dosage down.
I read something on rxlist about moodswings and irritibility related to Keppra. It's believed that Keppra makes your brain "dump" Vitamin B6 at times which lowers dopamine or seratonin levels and makes you feel horrible.
Does your daughter take vitamins? I'd try some Vitamin B6 if her multivitamin doesn't contain it. I started taking Trader Joe's High Potency vitamins and feel much, much better since starting.
Good luck.
Continued with Keppra and Di Tan Tang 2X/day each for another 8 days. Then took her Keppra down to 1/day for 2 weeks. Then she went one day with no Keppra and the next day she had a seizure. This seizure was longer, but her disorientation was shorter. Vet then said to go back to giving her Keppra for 30 days and we will re-evaluate. So for the next 30 days she was taking Keppra 1/day and Di Tan Tang 2/day.
How much Keppra do you take, and how long did it take before you seizures completely stopped?
Thank you for reading!
She has prescribed Lyrica for me for some of the nerve pain. Has anyone else tried this? Has it worked for you? I have been losing my peripheral vision on and off, and it is almost impossible for me to move my head without excruciating pain. I had an LP performed quite recently and as a result, I have a CSF leak. Can LP's make chiari symptoms worse? I read that on a web-site and didn't know whether to dismiss it or not.
AFTER BEING RELEASED FROM THE HOSPITAL AND GETTING INTO THERAPY SHE WAS PUT ON KEPPRA. IT HAS WORKED REALLY WELL WITH HER. SHE IS 90% BACK TO HER NORMAL SELF. WITH THE KEPPRA IT HAD TO BE ADJUSTED A FEW TIMES BUT WHEN IN THE SYSTEM IT WORKS REALLY WELL. DON'T GIVE UP JUST PRAY TO GOD AND DO AS THE DOCTORS TELL YOU CONCERNING YOUR DAD & EVERYTHING WILL WORK OUT. I HPRAY THAT THIS HELP YOU IN SOME FORM.
I am on the off brand of keppra and I was wondering if anyone uses adderal to help with the side effects of this medication. I find myself to be out of it most days and not have a drive to do anything.
its been 8 months since my mothers TBI- she had a seizure yesterday-she has been off keppra for 1 1/2 months-the side effects of keppra are aweful-they ask her questions and wonder why she is out of it and doesn't know her last name-(after they gave her keppra in the hospital) what can she take that is less evasive to her health and recovery??
Her neurologist recommends the medication, Trileptal, but I am very concerned about the rare, but life threatening side effects, TENS, cardiotoxicity, etc. Keppra is alternate possible drug which seems to have a better safety profile. My question is: Are the possible psychological side effects of Keppra (psychosis is worst case senario) totally reversible if the drug is stopped?? Any insight would be appreciated!
TL;DR: I think Keppra makes me dehydrated because alcohol makes me feel super-dehydrated even if I follow the 2:1 water:alcohol ratio, and because I seem to have a hard time staying hydrated in general. But I'm seeing little if any literature to support dehydration as a Keppra side effect. Does anyone else have any ideas?
TL;DR: I think Keppra makes me dehydrated because alcohol makes me feel super-dehydrated even if I follow the 2:1 water:alcohol ratio, and because I seem to have a hard time staying hydrated in general. But I'm seeing little if any literature to support dehydration as a Keppra side effect. Does anyone else have any ideas?
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