04/12 changed him to Dilatan and keppra more seizures. 05/12 put back on keppra only 3,500 mg. 06/12 seizures moved to keppra 4,000 mg a day! He has had only 1 seizures since been on 4,000, but this is a very high dosage. He is going to see an seizures specialist. Hoping he can get this dosage down.
Ask your doc about adding Keppra or Tegretol and weaning off of Dilatin. Another reason he may have put your husband indefinetly on Dilatin is because it is available via IV.
Take your doc to a neurologist who is familiar with Brain tumors (ask how many of his patients have tumors). It is the neurologist's job to manage medications. She/he is most familiar with medications your husband will need. Neurosurgeon focus is not medication management. I hope this helps.
I forgot to tell everyone that when my doctor took me off of Dilantin and put me on Keppra, I'm also on diamox and carbratrol..........
IT SOUNDS VERY POSSIBLE, i SUFFERED with seizures for 20 years every med on the market did not help, Topomax did very little IF anything for me...Keppra with a small dose of dilantin controlled them best....I just had 2 crainiotomies at Mt Sinai to fix the issue very entailed operation something you want as a LAST resort only......See about Vimpat along with the Keppra it is a good drug...issue with dilantin is the long term side effects....causes teeth problems GI issues and a list of others...
My new neurologist is switching me to keppra, which I am excited about but very concerned because I have been on Dilantin so long I am worried what if it does not work. She took me down to 300 mg of Dilantin and next month will take me down to 200 mg and so on until I am no longer taking it. I am on 1000 mg of keppra with the dilanitn right now and am super tired but almost feel better. I did not expect to feel better already so not sure what is going on.
The vet did blood work and diagnosed him with idiopathic epilepsy. She put him on 500 mg of keppra ER twice a day. He had a seizure every two weeks for the next month. When we went back to the vet she put him on 64.8 mg twice a day phenobarbital as well as adding another 500 mg keppra to what he was taking. He has been very drowsy and started stumbling and falling into walls. He is also dragging his back feet like he's not picking up his feet. I'm very worried about my baby.
I'm a 48 yr old black female who began having seizures 7-8 yrs ago. they have increased to about 1 time a week. I'm taking 750 mg of Keppra and Dilantin 100mg 2 x a day.
did you still keep him on Keppra or change medications? I am almost at the point of requesting another med. They want to up her Keppra again, but warned me that the irritability will get worse. I cannot take much more...she will bite your head off for just touching her and her younger sister gets the most of her mood swings!!
he was so sedated yesterday I think it was the synergistic effect of dilantin and valproic acid.
The neurologist figured the Topamax just was not working and then put him on Keppra. (He was still taking 1 dilantin and weaned off that dilantin just before going on Keppra) I had him wean off the Topamax really slow, much slower than the neurologist wanted at first but neuro. gave us his ok to wean off slow. He also weaned on Keppra at a slow dosage. The Keppra worked ok and then he had a few other seizures, one he actually ended up w/ a compression fracture in his back.
I recently started taking a cocktail of 3 AEDs---Dilantin,Lamictal,and Keppra.I've noticed that recently my urine has a very strong and foul odor.Does anyone know why? Has anyone else noticed a similar side effect? Is this something to be alarmed at?
I do have very sensitive skin. I get a bit of acne occassionally, but didn't have a big problem on Dilantin or Keppra. I recently switched over from Keppra to Lamictal. Lamictal is supposed to have rashes as a side effect. Ironically, my skin has never been smoother. Even the melasma I had on my forehead has disappeared. I didn't think I had a problem before taking it, but definitely notice my skin looks nicer now.
Good luck. There has to be something else you can try.
MRI showed plaques near ventricles in brain, tested for MS, negative spinal tap.Said my brain was indicative of MS or someone much older or have been living a hard life, not me.
Symptoms of night spasms and daytime muscle twitching in thigh and constant toe twitching remain, severe contortions subsided, until next attacknearly 6 mos later, again at work. Knocked me off my feet and was even more severe, again lasted about a week and same residual twitching is ongoing.
Hey guys I have had seizures for about a year now. I have only had about 3 so far but I did have my license taken away and I have been seizure free for over 3 1/2 months now and I'm soon to get my license back in a few months, I'm happy they did take it away because I did not feel right or safe to drive with only having 3 full blown out episodes in a year.
I also have been on Depakote for many years. I'm 39 & went on it about 20 or 25 yrs. ago. Had my 1st seizure when I was 2 y.o. Since have been diagnosed w/Epilepsy & have had episodes of all kinds...over past 20 years have been mostly Grand Mal & maybe a couple partial-complex..but usually Grand Mal. Dilantin, Tegretol, Topamax, Neurontin, Lamictal & recently Keppra have not worked for me. I am now back full-force on Depakote & doing better.
how was dilantin for you re: side effects and adjusting to it? How old were you when you began dilantin. My daughter is having a hard time with keppra. I've been wondering about adding antidepressents to her regiments if the doctor says it's OK. Very tough to know what to do with our new diagnosis of generalized seizure disorder. She's 20.
I hate you are experiencing this, as I am on Dilantin as well.
Which came first? Your fears or your hives? Think about it, I know nerve problems can cause people to have the hives. Have you been going through some traumatic times or had problems arise?
You are in a difficult prediciment with no insurance, so you will have to figure this out on your own.
That gives you cerebellar (shirnks the one side of your brain) put him on Keppra. My doctor put me on Keppra instead of Dilantin....I was already on diamox and tegratol. Now I'm taking keppra,diamox and tegertol and my seizers are under control, they will never be gone for good. I have had them since I was 12 and now I'm 54 but I'm down to about 3 every month or two and they were not under conrol that much until I started taking Keppra.
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