He has been on Keppra again exclusively for the past 8 months. His behavior is hard to describe. Before Keppra he was a happy, fun-loving, calm kid. Now he can only be described as disrespectful, disobedient, argumentative, rude and sometimes enraged. Hence ‘Keppra rage.’ He finally being weaned off Keppra and onto Vimpat. We pray that this is the answer. What happened to our silly, fun-loving, laid-back boy? Any idea that this is “just teenage hormones” is completely misguided.
04/12 changed him to Dilatan and keppra more seizures. 05/12 put back on keppra only 3,500 mg. 06/12 seizures moved to keppra 4,000 mg a day! He has had only 1 seizures since been on 4,000, but this is a very high dosage. He is going to see an seizures specialist. Hoping he can get this dosage down.
Continued with Keppra and Di Tan Tang 2X/day each for another 8 days. Then took her Keppra down to 1/day for 2 weeks. Then she went one day with no Keppra and the next day she had a seizure. This seizure was longer, but her disorientation was shorter. Vet then said to go back to giving her Keppra for 30 days and we will re-evaluate. So for the next 30 days she was taking Keppra 1/day and Di Tan Tang 2/day.
TL;DR: I think Keppra makes me dehydrated because alcohol makes me feel super-dehydrated even if I follow the 2:1 water:alcohol ratio, and because I seem to have a hard time staying hydrated in general. But I'm seeing little if any literature to support dehydration as a Keppra side effect. Does anyone else have any ideas?
TL;DR: I think Keppra makes me dehydrated because alcohol makes me feel super-dehydrated even if I follow the 2:1 water:alcohol ratio, and because I seem to have a hard time staying hydrated in general. But I'm seeing little if any literature to support dehydration as a Keppra side effect. Does anyone else have any ideas?
They are like a partial complex seizure. I saw a neurologist and was started on Keppra. I was up to 2,500mg a day and they were not stopping. I began to track them carefully and I believe I saw a pattern of only during the 2nd half of my monthly cycle, days 15 - 28 (and usually between 18 and 21) My neurologist decided to put me in the hospital to do a video EEG monitoring and I told him the dates it needed to be. We hit it right and it was determined that my seizures are NES.
Did you start it after or before keppra? How long were you on Keppra? I wish my daughter could take Lamictal but her rash got the doctor worried, even though it was ringworm. Have you heard of any other anti-seizure meds that might actually work well for moods? I know Lamictal is a very good mood stabilizer. Good luck.
Anyone else on Keppra to prevent myoclonic jerks (JME diagnosed)? I am, and have been on Keppra for almost 5 years. Started at age 23 and I am now 28. At the beginning they made me very sluggish, but after about 2 months I felt wonderful (since it was the first time in my life I wasn't having seizures!!
Starting around two years ago, I noticed that alcohol doesn't get me drunk, or even tipsy -- it just gives me body aches, headaches and fatigue. There's no lowered inhibitions or warm, fuzzy sense of well-being or any of the other things people want from drinking. No matter how small or large the amount.
About a month ago, I had my first seizure. I do remember most of it while it was happening, but I had no control as my arms and legs went out of control. I had two seizures happen, about 5 mins apart. By the time the ambulance drove me to the hospital, 2 miles away, I was unable to respond. I could hear/see them but couldn't move or speak. After 3 days in the hospital, the EEG, EKG and a CATscan came out normal.
once a year my neurologist makes him have a sleep deprived eeg that has been coming abnormal so he has asked us to continue the medication. this year he ahs suddeny asked us to chnage to keppra. i am confused now because this is rather sudden and my son is used to the valparin now and has no side effects as such. the doctor says that this is for better seizure control since eeg is abnormal but the eeg has been abnormal for the past 8 years then why now?
my doc told me tylenol is one otc meds that will lower your level. i can only take ibuprofen , but my level as of llast week was 10. i have took dilantin for many years and this problem has just started for me to. im trying to get my level to stay normal to. i will check out the site that becky found to.
I don't hear very many good reports about keppra with regard to it's side effects. I do hear many complaints about mood swings, aggression, cognition and memory problems, etc.. However, I have read a few comments saying it can actually HELP with mood swings and bipolar disorder (which she doesn't have). Please comment on this. My daughter has just begun this medication for seizure disorder. She has had seizures several years apart from each other.
When I was preg with my fist child my dr kept having me take more and I was up to 800 mg a day but still only got to a level of a 7! Went and had my level taken today and I was at a 12.0 !!!! ok is that what is wrong with me? Cant stand feeling this way anymore. ANy one know anything about this I would appreciate your thoughts!!
my neuro told me dilantin will cause mood swings and cause me to be irritable and was hard on your body after being on them so long. i have started keppra and dropping 1 dilantin a month . i was told my moods will improve and i will start to think more clearly. my neuro told me dilantin does slow your thinking and leaves you in a fog.
It may be the dilantin level. I'd have it checked. there have been cases of
toxicity, myself included, with the new formulation from pzifer.
I also take Keppra but have never had any problems at all. I suffered with depression for 11 years and came of the medicine fully just before I went on Keppra, and yes I have days where I do feel depressed but with any illness you do have days where you feel depressed even suicidal. So my advice is don't necessarily put it down to Keppra. Talk to the doctor who prescribed Keppra to you and see if you can be referred to a Psychiatrist to talk it through and find out if it is the tablets!
I have no health insurance. I was finally got a really basic coverage, but it doesn't cover keppra. i've been taking keppra for a 2 months. I was switched to phenobarbitol for when I run out. since keppra is not on the charity's formulary.
I hope to God that I cant find some source of keppra before I run out. The phenobarb is scary.
So I'm excited about the links here:
http://brain.hastypastry.net/forums/index.php
http://www.needymeds.
A consult with the pediatric cardiologist was set up. Ok so,,, now the neurologist wants her to start on Keppra immediately. I know nothing about seizure activity and/or this medication.
I guess my biggest question is "will/have the seizures had any affect on her learning?" she has a pretty heavy academic load in 9th grade and I want to make sure she can handle it. Also, she works every Saturday and Sunday and plays Volleyball two days a week.
Starting around two years ago, I noticed that alcohol doesn't get me drunk, or even tipsy -- it just gives me body aches, headaches and fatigue. No matter how small the amount. At first I thought this a side effect of the anticonvulsant I take (Keppra) -- the instructions say to avoid alcohol because very serious interactions can occur, although they never specify what those interactions are.
As my DD is in Keppra, and has previously been on other seizure meds, the Keppra, by far has had the least amount of side-effects. You could ask if some of her mood changes, memory loss, etc. are from the stroke vs. the Keppra. Please do not wean her off the medication without a Dr's directive... that could cause withdrawal seizures.
My thoughts are with you that your mother gets well soon.
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