humira for sarcoidosis

m finding that even my doctors need prompting sometimes and I wanted to start a support group for those suffering from sarcoidosis. Please check out my sarcoidosis support group under user groups and join me in the fight to educate others about this little known, though sometimes tragic disease.

Hi I hope to get some info and help I have Crohn’s Disease and Ankylosing spondylitis for over ten 15 years now and have taken steroids and Mezavant XL 4800mg which always have worked, but have caused a cataract. I am now on Mezavant XL 4800mg and weekly Humira injections for 6 month. At first Humira worked completely, but for the last 3 month I now have got again explosive Diarrhoea and bleeding.

My wife is 36 and diagnosed with Uveitis and on steroid eye-drops now. After lot of tests our doc suggested two reasons for it either TB or Sarcoidosis. She had no symptoms of TB so far but MT was 17mm and CT guided FNAC shows granulomatous inflammation and the chest X-ray indicated a possibility of sarcoidosis but later a board of doctors ruled out sarcoidosis. Having started the TB medication for a week we now wish to continue her treatment for UVEITIS .

Anyone taking humira and feel like they are sick coming down with a cold for a week after injection? Not a full blown cold but the start of one. I feel like this always and this is my 3rd dosage ( counting the starter kit), so I'm new to humira. I've noticed if I'm stressed, I'll even get a sore throat. I know humira suppresses your immune system but are you supposed to feel like you're coming down with something every injection or will this go away with time?

I hve hsv1&2 for over 6 yrs nw ,no flare up for two yrs.I just started humira then out the blue I flared up,nw I'm due for my 15th day injection but hve to wait for my Doc to call to let me know if I'm able to continue the humira injection wth this active virus.I think the humira reactivated the virus,wow! What u suspect she'll say?

I do get muscle twitches, not as often now as before MTX, but they are there. Had my dr appt last week and have put off Humira/Enbrel for another 8 weeks. It's looming out there, but so far I am avoiding them. MTX is enough!

Hi monicaroni, I have been taking Humira almost 8 months. I take humira for Crohns Althougth reap the benefit for the AS. I am thinking that you probably had a concurrent infection brewing when you Started Humira. Good Luck managing your AS, I appreciate how difficult it can be with mobility issues, and treating pain.

As you well know Humira is an immuno-suppressive drug , which mainly inhibits TNF (tumor necrosis factor). There's a growing amount of evidence of the development of Autoimmune conditions, related to TNF inhibitors, such as Remicade, Humira and other biologics.

My wife has been on Humira for about 4-5 months and it hasn't helped! she just had a blood test and her inflammation is very high. her Gastro. Dr. wants to see her in another month and take another blood test. Have you an opinion on the drug Naltrexone and vedolizumab.

Remicade is a biologic injection, in the same class of drugs as Humira, Enbrel and Orencia. I have been taking Humira for rhematoid arthritis and it seems to be doing it's job as my rheumy says. It keeps me out of the emergency room with serious flares which had become a habit for me. These drugs are usually reserved for "rheumatoid" type arthritis and getting insurance companies to approve them is not normally easy.

I have been on Humira for psoriasis for approx. 9 mos. now. In the beginning I noticed that I as well had some swelling. I got reading alot about reactions etc. It did say that your body does contain more water which in turn would cause swelling. I myself found that after about 3mos. I had gained weight, not that I couldn't afford to but all the same I did find it a little odd. After reading so much on Humira, I dont' think I've missed a page, it is one of those side effects.

Hi I am also on Humira. What would you sugjest for the flu vaccine? Some say its ok to get it. Some say no.

I've been on Humira for about 6 months and I have been messing with my injection times a lot over the past couple months. Humira is the only thing that keeps me going, but I have to do it weekly. I noticed when I missed my dose, when I was doing it bimonthly, my symptoms would just keep getting worse. We did a few psychological tests to see if my symptoms were coming back due to an emotional connection. That was quickly proven otherwise as I started to vomit and have bloody stool.

I changed to Humira recently and was wondering if anybody has had success with humira who has ankylosing spondylitis. Any feedback would be appreciated.

hey out there! i have had crohns for 10 years now. i just started humira yesterday. anyway, what do all of you do for pain management. narcotics are the only thing that kills the pain, but i don't know if thats the right course to go.. if anyone could tell me what they do, or what kind of narcotics work best for crohns, or if i have to live with this pain.

i have been taking humira for 4 months it makes me feel REALLY bad for about 3 to 5 days. i will have headaches, chills, weakness in my intire body. i hurt all over. my joints are toture rifht now. but there was one time a doc had me take dilaudid during a injection week. WOW i felt good. and i had hoped this time would be good to. but WRONG i have struggled so bad from the shot. just like all the times b4. so what made that one time better was dilaudid.

Any body else taking humira? I have Ulcerative colitis and thats the meds they put me on. My condition is pretty bad because all three of my doctors told me not to come off the meds. That it could cause problems and early delivery. Any one?

I have been on humira, remicade, multi stem cells transplant/infusion, and tofacinitib and my doctors have told me that any pregnancy will be a risk for the child as I am consider toxic even if I have been off these medications for 20 years.

Hi I know this post is old but I have to tell u that I took humira for one year. I was told by my doctor that side effects are rare bc I was concerned bc many people have had dangerous reactions from it. I took it and it helped almost immediately and was able to walk without a cane. The fatigue from arthritis was gone. Fast forward six months and I became ill....very ill. I contracted klebsiella bacterium and resulted in severe pneumonia.

Definite diagnosis to check for antibodies to the bacteria such as ELISA for Lyme disease test and western blot test can also be done to confirm ELISA results. Pain medications may also help. Take care and best regards.

i have done searches but only find info on humira induced lupus, nothing about treating lupus with humira. is anyone on here taking humira for lupus? any advise would be greatly appreciated. thanks!!

Do you think this could be sarcoidosis? and Can you have both lupus and Sarcoidosis? My father has some sx also seem to fit. Would either parent have to have it for me to have it? Seems like all females in my family have health issues. Aunt with sever Rheumatoid Arthritis. Is there any genetic testing that can be done to see if this could be my health issues? Both my parents are still living but are 79 and 80yo. Any suggestions??

Humira for sarcoidosis

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