humira for hidradenitis

Hi I hope to get some info and help I have Crohn’s Disease and Ankylosing spondylitis for over ten 15 years now and have taken steroids and Mezavant XL 4800mg which always have worked, but have caused a cataract. I am now on Mezavant XL 4800mg and weekly Humira injections for 6 month. At first Humira worked completely, but for the last 3 month I now have got again explosive Diarrhoea and bleeding.

I would like to suggest a category, possibly under dermatology, for Hidradenitis Suppurativa (also known as H.S.,, Verneuil's disease, etc). This is a skin disease that is painful an can be debilitating, affecting up to 4% of the population. It causes painful abscesses/cysts/boils in the underarm, breast, buttocks, and groin areas. It is often misdiagnosed and often goes undiagnosed for years (for example, I've had it for 14 years and was just formally diagnosed 2 years ago).

Anyone taking humira and feel like they are sick coming down with a cold for a week after injection? Not a full blown cold but the start of one. I feel like this always and this is my 3rd dosage ( counting the starter kit), so I'm new to humira. I've noticed if I'm stressed, I'll even get a sore throat. I know humira suppresses your immune system but are you supposed to feel like you're coming down with something every injection or will this go away with time?

I hve hsv1&2 for over 6 yrs nw ,no flare up for two yrs.I just started humira then out the blue I flared up,nw I'm due for my 15th day injection but hve to wait for my Doc to call to let me know if I'm able to continue the humira injection wth this active virus.I think the humira reactivated the virus,wow! What u suspect she'll say?

I do get muscle twitches, not as often now as before MTX, but they are there. Had my dr appt last week and have put off Humira/Enbrel for another 8 weeks. It's looming out there, but so far I am avoiding them. MTX is enough!

I am in stage 3 hidradenitis and I was approved the first time I tried for SS benefits, as well as private disability insurance. The main key that I have found is documentation. Even when I didn't need a boil lanced by the doctor, I went in and had them chart it, sometimes take pictures, etc. It helped a lot.

Hi monicaroni, I have been taking Humira almost 8 months. I take humira for Crohns Althougth reap the benefit for the AS. I am thinking that you probably had a concurrent infection brewing when you Started Humira. Good Luck managing your AS, I appreciate how difficult it can be with mobility issues, and treating pain.

Just out of curiosity, does anyone here suffer from hidradenitis? I have heard that some people with Chiari also suffer from certain skin disorders and just wondering if anyone else has this?

As you well know Humira is an immuno-suppressive drug , which mainly inhibits TNF (tumor necrosis factor). There's a growing amount of evidence of the development of Autoimmune conditions, related to TNF inhibitors, such as Remicade, Humira and other biologics.

My wife has been on Humira for about 4-5 months and it hasn't helped! she just had a blood test and her inflammation is very high. her Gastro. Dr. wants to see her in another month and take another blood test. Have you an opinion on the drug Naltrexone and vedolizumab.

Remicade is a biologic injection, in the same class of drugs as Humira, Enbrel and Orencia. I have been taking Humira for rhematoid arthritis and it seems to be doing it's job as my rheumy says. It keeps me out of the emergency room with serious flares which had become a habit for me. These drugs are usually reserved for "rheumatoid" type arthritis and getting insurance companies to approve them is not normally easy.

25% aluminum chloride hexahydrate in absolute ethanol) •Application of warm compresses with sodium chloride solution or Burow solution •Wearing of loose-fitting clothing •Medical anti-inflammatory or antiantiandrogen therapy such as tetracycline, intralesional triamcinolone, or finasteride •Biologic therapy In one series, radiation therapy by irradiation with single doses of 0.5-1.5 Gy to total doses of 3.0-8.0 Gy was given as a treatment option for hidradenitis suppurativa.

I have been on Humira for psoriasis for approx. 9 mos. now. In the beginning I noticed that I as well had some swelling. I got reading alot about reactions etc. It did say that your body does contain more water which in turn would cause swelling. I myself found that after about 3mos. I had gained weight, not that I couldn't afford to but all the same I did find it a little odd. After reading so much on Humira, I dont' think I've missed a page, it is one of those side effects.

Hi I am also on Humira. What would you sugjest for the flu vaccine? Some say its ok to get it. Some say no.

I've been on Humira for about 6 months and I have been messing with my injection times a lot over the past couple months. Humira is the only thing that keeps me going, but I have to do it weekly. I noticed when I missed my dose, when I was doing it bimonthly, my symptoms would just keep getting worse. We did a few psychological tests to see if my symptoms were coming back due to an emotional connection. That was quickly proven otherwise as I started to vomit and have bloody stool.

I changed to Humira recently and was wondering if anybody has had success with humira who has ankylosing spondylitis. Any feedback would be appreciated.

I have had POTS for many years and also Hidradenitis Suppurativa for about 12 years. I am just wondering if anyone else that has any form of Dysautonomia has HS also. Both are so frustrating(to say the least). I can't help but to think that they have to be related in some way. Both my POTS and HS are believed to be genetic. Any help or comments would be GREATLY appreciated.

hey out there! i have had crohns for 10 years now. i just started humira yesterday. anyway, what do all of you do for pain management. narcotics are the only thing that kills the pain, but i don't know if thats the right course to go.. if anyone could tell me what they do, or what kind of narcotics work best for crohns, or if i have to live with this pain.

i have been taking humira for 4 months it makes me feel REALLY bad for about 3 to 5 days. i will have headaches, chills, weakness in my intire body. i hurt all over. my joints are toture rifht now. but there was one time a doc had me take dilaudid during a injection week. WOW i felt good. and i had hoped this time would be good to. but WRONG i have struggled so bad from the shot. just like all the times b4. so what made that one time better was dilaudid.

Any body else taking humira? I have Ulcerative colitis and thats the meds they put me on. My condition is pretty bad because all three of my doctors told me not to come off the meds. That it could cause problems and early delivery. Any one?

I have been on humira, remicade, multi stem cells transplant/infusion, and tofacinitib and my doctors have told me that any pregnancy will be a risk for the child as I am consider toxic even if I have been off these medications for 20 years.

Hi I know this post is old but I have to tell u that I took humira for one year. I was told by my doctor that side effects are rare bc I was concerned bc many people have had dangerous reactions from it. I took it and it helped almost immediately and was able to walk without a cane. The fatigue from arthritis was gone. Fast forward six months and I became ill....very ill. I contracted klebsiella bacterium and resulted in severe pneumonia.

Humira for hidradenitis

Common Questions and Answers about Humira for hidradenitis

humira