I had UC for ten years until I perforated and had my colon removed and a J-pouch built 16 years ago. My son has UC and moved onto the Imuran last year. He did have some acne with the prednisone too. He has been in a wonderful remission this past year and is so enjoying feeling healthy. The only change he continues to make is to leave dairy alone as he realizes he is lacto intolerant. I hope you will get the same success. How I wish this was available to me back when I was ill.
My son (12 yrs old) has was on Remicade for about a year and then we moved on to Humira. Neither were able to control his Crohn's, BUT he did not suffer any of the "worst case" side effects either. They were both good at controlling his pain and clinically he looked really good. Crohn's has been a very sneaky adversary for us...difficult to identify, find and control. We are looking at Tysabri now.
I wish you much success!
Hi just making inquires about the treatment inflaximab treatment for ulcertative colitis if it has helped you and how long before you notice a difference I have only had one infusion and ready for the next one this friday.... I am also on azithroprine and prednosolone and lots of minerals and vitamins and other drugs for gerd etc.
statistically 1 out of every 2-3 of us has hsv1 and 1 out of every 4-5 has hsv2 - a lot of folks who take humira, are already going to have herpes whether they know it or not! Of course you also can contract herpes simplex, either orally or genitally, while taking humira too.
It also can cause shingles to occur - you'd have to have had chicken pox in the past before starting humira in order to have a shingles reactivation.
13 years ago I was diagnosed with genital herpes which I contracted from my now ex. I married 8 years ago to a good man with a bad case of Psoriasis. About 6 months ago he was diagnosed with Psoriatic arthritis after having his hands and body start crippling his abailities in daily living, and began taking Humira as treatment. Recently he has decided that we can no longer be intimate and we need to separate.
There are enough other sites and posts of the same complaint and also in the first 6 months on Humira. It was about my 3rd injection I think when I started having tooth pain in my upper front teeth. Within a couple of days, my bottom front teeth stated hurting. I skipped a week of Humira under Dr advice incase I was fighting a sinus infection. Symptoms got better. Then I started back on my Humira last night and my teeth are killing me again.
I have been treated for rheumatoid arthritis with Humira for 7 months including a combination of Humira and methotrexate for the past 2 months. I also take 5mg of prednisone, and 6 Azulfadine tablets each day. I was taking Humira once every fourteen days and I am on 15mg of methotrexate a week. About a month ago, I started experiencing numbness in my toes and feet. I mentioned it to my rheumatologist but she wasn't concerned and simply told me it wasn't rheumatoid arthritis.
So, Monday morning I went to the GI and Tuesday they did a colonoscopy and confirmed it was UC. The doctor told me, as well as many doctors since, that nothing in my life caused the UC, that it is autoimmune and is not triggered by lifestyle. Although, at the time I was diganosed I was under a lot of stress. I had just moved to a new city, and I was trying to find a job. At my current job I was working 40-80 weeks to try and open a new store.
At first Humira worked completely, but for the last 3 month I now have got again explosive Diarrhoea and bleeding. I spent a minimum of 10 times running to the toilet a day, and get anxious going out and that causes stress and then more flare ups.
I had a SeHCAT Scan for suspected bile acid malabsorption which I have not got and is not my cause for my Diarrhoea.
I also take 60mg and 16mg Loperamide a day but Diarrhoea will not stop, only with Prednisolone Steroids.
Anyone taking humira and feel like they are sick coming down with a cold for a week after injection? Not a full blown cold but the start of one. I feel like this always and this is my 3rd dosage ( counting the starter kit), so I'm new to humira. I've noticed if I'm stressed, I'll even get a sore throat. I know humira suppresses your immune system but are you supposed to feel like you're coming down with something every injection or will this go away with time?
I have ankylosing spondylitis and just had my first Humira shot 2 days ago. Today I woke up feeling very achy, my nose is stuffy and my throat is scratchy. I don't know if it's allergies, an infection, or a side effect from the Humira. Has anyone else had this happen shortly after starting this drug? I am planning to call my doctor on Monday but just trying to figure out what's going on.
I'm 33 and have psoriatic arthritis and was recently started on Humira. Within a day of starting I had pain in my fingers, toes, shines and forearms (none of which I had before). Has anyone else experienced new joint pain after starting Humira?
Hi beelady,
Atopy is due to hypersensitivity and not due to immunodeficiency. Likewise UC is due to inflammatory process and immune activation and not immunodeficiency.
Atopy is due to Type I hypersensitivity and UC does not come under this group.
So atopy and UC are not related.
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The information provided is for patients’ education only and is not a medical advice.
Hi Jaynbe,
thank you for responding to my comment to troubled cd - it is rare that anyone responds to me!
I don't understand your advice - how can I have a reaction to Remicade, if Humira doesn't work? Seeems illogical. As remicade is not bringing my Crohn's into remission (hence my high CRP - 53 and rising) I don't feel I have any other option than Humira. They have stopped using Ciclosporin here due to mortality stats).
I've been on Humira for about 6 months and I have been messing with my injection times a lot over the past couple months. Humira is the only thing that keeps me going, but I have to do it weekly.
I noticed when I missed my dose, when I was doing it bimonthly, my symptoms would just keep getting worse.
We did a few psychological tests to see if my symptoms were coming back due to an emotional connection. That was quickly proven otherwise as I started to vomit and have bloody stool.
Its the worst its ever been and I am miserable. I was on Azathioprine, Canasa, and a taper of Prednisone with no relief. Just started Humira yesterday. Four shots to the stomach....ouch! Today along with my flare symptoms (lots of bleeding, constipation, bloating, abdominal pain, fatigue, dry mouth, occasional nausea) I have the chills with a very low grade fever and my fatigue is worse than normal. Is this normal after starting Humira? What do others do to manage all of these symptoms?
I just started Humira (2 shots so far) and have had a worsening of symptoms since the first shot. My hands/feet have become swollen and my joints hurt more than before I started taking the Humira. I also have systemic vasculitis (Churg-Strauss Syndrome) and am on Cytoxan and Prednisone, but I have been taking both for more than a year and know the side-effects from each.
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