Hi, I don't know the answer -- but since both CML and Gleevec toxicity produce anemia because of marrow suppression, maybe it's not possible to tell the difference. E.g., both would show a low reticulocyte count.
This full text paper on anemia from Gleevec https://onlinelibrary.wiley.com/doi/full/10.1002/ajh.23879 shows that other signs such as red blood cell size can vary, so that doesn't seem to help. Sorry.
Is it possible that after taking gleevec for only two weeks WBC droped from 36.7 to 7? All other blood counts are also came back to normal range. Could doctor make mistake in diagnosis of CML? Maybe I should get seg second opinion?
I was diagnosed with CML and given Gleevec 400 ml. After taking gleevec for 2 weeks doctor took additional blood test. My WBC dropped from 36.5 to 7.1 and all other blood counts came down to normal range. I'm wondering if gleevec could give such fast hematological response or I was possibly misdiagnosed originally. I don't and didn't have any symptoms, my spleen and liver weren't enlarged, no enlarged lymph. Should I get second opinion asap? Please, help me.
After two weeks on 400mlg gleevec my WBC droped from 36.5 to 7.1. My doctor told to come for additional test in two weeks. Now my WBC is 1.3 and absolute neutrophils count is 0.04. I was told to stay home on antibiotics. How long it may take for my counts to clime back to safe range. And of course, I'm off gleevec right now. Does it seem that dose of 400mlg is too high for me.
Am on Gleevec 400mg, now having problems with blisters on the palm. What can I do about it?
I was diagnosed last year and was immediatley put on gleevec 400mg/day.At my last consult my metabolic stats had risen,hence blood tests to determine if the gleevec is no longer working.I am still in firstphase and wonder what my options are if the gleevec is no longer an option.Amin pretty good form,just very tired and a lot of bone pain.
I have CML and was treated with Gleevec for 4 years and achieved remission. I have for the past several months been experiencing sudden onset of weakness which last for hours, to days. My blood pressure which has remained under control for several years with atenolol has been running 145/105 and higher for the past three to four months. I have a feeling of fullness in my stomach, and I have sporatic episodes of mild coughing, this occurs maybe once a week.
You might find he starts to be able to tolerate the pill. Gleevec is first choice for treating CML, and if he is doing good in every other way then encourage him that he is doing great.
I hope this helps you. I would be glad to help you with any other questions.
i get my heart checked every 2 weeks now and i am fine with the qt thing. i take the chemo pill called gleevec and have to force myself to eat so i dont get sick when i take it. how long will these withdrawel problems go on? i have xanax to take (1mg) but dont work to good. i should would appreciate any advice from any one on how to deal with these issues, family dr says its anxiety but i think its the withdrawels from the high dose of elavil.
I should mention that I have CML but it has been in remission for the last two years and I am no longer taking Gleevec.
I am scheduled to be looked at by a group that kills the nerve endings in the heart that causes AF but there is an 18 month waiting period.
My question is how many times can I be cardioverted and what is the downside of having it so often?
sometimes the relapse can last quite awhile and when they subside you might not feel total better and have some bad symptoms..
let your Neuro know how you are feeling...
However my question is does PTSD ever truly go away, and even if it does, can I relapse? Also, The only thing I struggle with now is SAD, could that be related in anyway?
Treat this relapse as if your life depends on it for it may.. Get Pro Active in your recovery and get back on track. I wish you well.
Stage 4 patients often have muscle cramps. You are still Stage 4. It is much too soon to have an improvement in liver histology. I don't think this signifies a relapse at all. BTW, most people who relapse do it within 4 weeks of EOT.
Tom thank you . I am not sure about genotype but RNA vol is 700.
Hi there,
When your undiagnosed and under going testing for neurological conditions like MS, it's very easy to assume there is an MS answer for everything but it would not be in your best interest to inadvertently over look any other explanation.....
If what you have been experiencing is caused by MS, to much physical activity and or emotional distress could temporarily cause what's called a 'pseudo relapse' but pseudo's are not true relapses.
m not trying to be mean, but I can tell you that as long as you have access, especially easy access to pills, you will continue to relapse. If you are serious about long term recovery, cut off all access to pills. Whatever that means to you. It's critical. Aftercare, is also critical. There you will get support and tools to help you remain clean.
I wish you the very best. Time to start again. You can do this!
Relapse is not a part of recovery. Relapse is something that can happen during recovery, thats why what cathy said about aftercare is so important. Like any disease addiction can be arrested but to keep it in check changes both physical and mental must be made and if nothing changes then relapse may be a part of your recovery.
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