gleevec ohsu

Hi, I don't know the answer -- but since both CML and Gleevec toxicity produce anemia because of marrow suppression, maybe it's not possible to tell the difference. E.g., both would show a low reticulocyte count. This full text paper on anemia from Gleevec https://onlinelibrary.wiley.com/doi/full/10.1002/ajh.23879 shows that other signs such as red blood cell size can vary, so that doesn't seem to help. Sorry.

Is it possible that after taking gleevec for only two weeks WBC droped from 36.7 to 7? All other blood counts are also came back to normal range. Could doctor make mistake in diagnosis of CML? Maybe I should get seg second opinion?

I was diagnosed with CML and given Gleevec 400 ml. After taking gleevec for 2 weeks doctor took additional blood test. My WBC dropped from 36.5 to 7.1 and all other blood counts came down to normal range. I'm wondering if gleevec could give such fast hematological response or I was possibly misdiagnosed originally. I don't and didn't have any symptoms, my spleen and liver weren't enlarged, no enlarged lymph. Should I get second opinion asap? Please, help me.

After two weeks on 400mlg gleevec my WBC droped from 36.5 to 7.1. My doctor told to come for additional test in two weeks. Now my WBC is 1.3 and absolute neutrophils count is 0.04. I was told to stay home on antibiotics. How long it may take for my counts to clime back to safe range. And of course, I'm off gleevec right now. Does it seem that dose of 400mlg is too high for me.

Am on Gleevec 400mg, now having problems with blisters on the palm. What can I do about it?

I was diagnosed last year and was immediatley put on gleevec 400mg/day.At my last consult my metabolic stats had risen,hence blood tests to determine if the gleevec is no longer working.I am still in firstphase and wonder what my options are if the gleevec is no longer an option.Amin pretty good form,just very tired and a lot of bone pain.

I have CML and was treated with Gleevec for 4 years and achieved remission. I have for the past several months been experiencing sudden onset of weakness which last for hours, to days. My blood pressure which has remained under control for several years with atenolol has been running 145/105 and higher for the past three to four months. I have a feeling of fullness in my stomach, and I have sporatic episodes of mild coughing, this occurs maybe once a week.

You might find he starts to be able to tolerate the pill. Gleevec is first choice for treating CML, and if he is doing good in every other way then encourage him that he is doing great. I hope this helps you. I would be glad to help you with any other questions.

They are headed to OHSU in Oregon. Please pray that its not cancerous and that they can figure out what is going on soon. Thanks all!!

Otherwise, you can always come up north to Oregon and go to OHSU in Portland. Both are very good. Check out their web pages and you can find out who the top docs are. Good luck. If you need a name at OHSU, I can certainly give you that, too.

My friend was informed at OHSU in Oregon in 2/2017 that she would need a liver transplant. After her 1 month follow-up appt with OHSU they informed her that her MELD score was better and no longer needed a liver transplant. Then in 10/2018 her Salem, Oregon doctors informed her she had a blood clot in her portal vein. Her doctors put her on Eliquis to treat the blood clot. Then in 6/2019 she was informed that the blood clot was gone. She stopped her Eliquis as directed.

i get my heart checked every 2 weeks now and i am fine with the qt thing. i take the chemo pill called gleevec and have to force myself to eat so i dont get sick when i take it. how long will these withdrawel problems go on? i have xanax to take (1mg) but dont work to good. i should would appreciate any advice from any one on how to deal with these issues, family dr says its anxiety but i think its the withdrawels from the high dose of elavil.

I just called and tried to make an appointment with a new neurologist at OHSU, and they want my history and chart notes for the last 6 months, including the two bad neuros. They need a referral from my PCP although my insurance doesn't require one. They review my information and decide whether or not they want to see me. They will calll me and let me know if I have been chosen. Is this worth the trouble? Will a good neuro discount the bad stuff written by egotistical dismissive neuros?

Thanks, her question was about a knee MRI, was work related. I found a chart that listed a range for various body parts. I didn't know, though I've had dozens of various MRIs, because my insurance covers them totally, so I don't get EOBs. Hmm, OHSU may have sent one, but they just did the 3T of my brain, c and t spine, and that wouldn't have helped her anyway.

Have you tried OHSU? I believe there is a thoracic surgeon there who is known for doing them as well. -I'm sorry, but I do not recall his name...I was the one who posted about Dr. John Ryan at Virginia Mason. He gives lectures all over the nation, and his office may be able to help you locate someone who is skilled in this technique. I hope this helps!

I think he is going to turn it over to OHSU (Oregon Health Science University) here in Portland. I think they have a new approach.

Hi Kathy, Maybe you should find a female urologist in network and get some things done before your next neuro appt. I think it would do you good to start getting answers sooner than later. OHSU is not the only good place in Oregon. I am sure you would find just as good a urologist if you ask around. Hopefully if you get some answers you will feel as though something is going on. I don't know how good the radiologists are in OHSU.

I posted last night, and being sleepy, I posted that OHSU has a 3 tesla; not the most exciting news. The 5 tesla is, though, since I will be making an appointment with my new neuro there very soon. I sure would like to have a new MRI done on the 5 T. Of my spine, too, not just my brain. I hope the new neuro will actively pursue a diagnosis for me, and that there aren't too strict of rules about who gets to get in the powerful new machine!

Sounds promising. Thanks for sharing.

I try to ask questions to understand what is happening or what the doctors are doing - but many doctors dismiss the questions with a look like something akin to "idiot for asking" and that just makes me wonder what planet they came from. I mean after all - doctors go to a trade school to learn how to burn um, cut um, and poison us to health - now really - they do not know everything but they sure act like they do.

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