Please review the following NSF Clinicopathological-Definition. There are pictures of NSF caused yellow plaque which appears very similar to pinguecula. I also have a study which showed that gadolinium breaks through the blood brain barrier and goes into the eyes, which I will look for and post once I find it. It would be very helpful if you would stop the drug manufacturer mantra and read the studies. There are many of us who need help, not denials. Thank you.
Hi, I don't know the answer -- but since both CML and Gleevec toxicity produce anemia because of marrow suppression, maybe it's not possible to tell the difference. E.g., both would show a low reticulocyte count.
This full text paper on anemia from Gleevec https://onlinelibrary.wiley.com/doi/full/10.1002/ajh.23879 shows that other signs such as red blood cell size can vary, so that doesn't seem to help. Sorry.
Is it possible that after taking gleevec for only two weeks WBC droped from 36.7 to 7? All other blood counts are also came back to normal range. Could doctor make mistake in diagnosis of CML? Maybe I should get seg second opinion?
I was diagnosed with CML and given Gleevec 400 ml. After taking gleevec for 2 weeks doctor took additional blood test. My WBC dropped from 36.5 to 7.1 and all other blood counts came down to normal range. I'm wondering if gleevec could give such fast hematological response or I was possibly misdiagnosed originally. I don't and didn't have any symptoms, my spleen and liver weren't enlarged, no enlarged lymph. Should I get second opinion asap? Please, help me.
After two weeks on 400mlg gleevec my WBC droped from 36.5 to 7.1. My doctor told to come for additional test in two weeks. Now my WBC is 1.3 and absolute neutrophils count is 0.04. I was told to stay home on antibiotics. How long it may take for my counts to clime back to safe range. And of course, I'm off gleevec right now. Does it seem that dose of 400mlg is too high for me.
Am on Gleevec 400mg, now having problems with blisters on the palm. What can I do about it?
I was diagnosed last year and was immediatley put on gleevec 400mg/day.At my last consult my metabolic stats had risen,hence blood tests to determine if the gleevec is no longer working.I am still in firstphase and wonder what my options are if the gleevec is no longer an option.Amin pretty good form,just very tired and a lot of bone pain.
I have CML and was treated with Gleevec for 4 years and achieved remission. I have for the past several months been experiencing sudden onset of weakness which last for hours, to days. My blood pressure which has remained under control for several years with atenolol has been running 145/105 and higher for the past three to four months. I have a feeling of fullness in my stomach, and I have sporatic episodes of mild coughing, this occurs maybe once a week.
These warnings were a result of well-documented cases linking nephrogenic systemic fibrosis / nephrogenic fibrosing dermopathy (NSF/NFD) to gadolinium exposure patients who suffer from severe kidney disorders and have been exposed to gadolinium-based contrast agents.
You know with all honesty...It is hard to say that all of your sx are being caused by the Gandolinium. Could you be in a possible relapse? IS this chronic for you or a new symptom?? AND..
Therefore, the risks of toxicity from the Gadolinium are greater and may develop nephrogenic systemic fibrosis or NSF. the time it remains may be dependent on the kidney function of the individual.
Gadolinium toxicity causes fibrosis of the skin and connective tissues throughout the body. Patients develop skin thickening that may prevent bending and extending joints, resulting in a person's decreased ability to move their joints.
t take case unless NSF diagnosis by skin doc, but you can have retained metal that dechelates or is retained if told to take iron, zinc , copper, etc, read rsna org, auntminnie com and fiercebiotech com sites, see fda gov and nyas org, free registration, Fourth Annual NSF conference, e briefing 13 Sept 2010. I have skin sx began July 2011 till now, prior, and concurrent , R arm pain, diff walking, balance, fatigue, dec appetite, diff sleeping, irritable, etc.
S. National Science Foundation (NSF) runs in Antarctica, although otherwise conditions were described as "perfect," The Australian reported.
Marianne Okal / AFP - Getty Images, file
An Australian A319 Airbus sits in the U.S.'s McMurdo Station on the southern tip of Ross Island in Antarctica. An Australian government A319 carrying a medical team made a successful landing on the station's ice runway on Thursday to rescue a sick American scientist.
You might find he starts to be able to tolerate the pill. Gleevec is first choice for treating CML, and if he is doing good in every other way then encourage him that he is doing great.
I hope this helps you. I would be glad to help you with any other questions.
i get my heart checked every 2 weeks now and i am fine with the qt thing. i take the chemo pill called gleevec and have to force myself to eat so i dont get sick when i take it. how long will these withdrawel problems go on? i have xanax to take (1mg) but dont work to good. i should would appreciate any advice from any one on how to deal with these issues, family dr says its anxiety but i think its the withdrawels from the high dose of elavil.
My husband is having problems with large spots of skin peeling off his hands. This is not a dry skin condition. He had a contrast dye MRI about four months ago and shoulder surgery following. The skin condition started approximately six week later. At first I thought it might be a fungus infection but it is non responsive to fungal creams. It doesn't itch and is wide spread on both hands. I was concerned about the dye but his hands aren't tight and shiny like nsf.
I'm guessing you've been given GADOLINIUM MRI METAL:, need metal for the magnets, you can have sx up to 18 months that are progressive.
Gadolinium metal has fda gov blackbox warning, see mfgrs what it does, you don't need to have kidney decline, of any type to have this condition, they do not want the public to know they are being given metal for the MRI dye.
I should mention that I have CML but it has been in remission for the last two years and I am no longer taking Gleevec.
I am scheduled to be looked at by a group that kills the nerve endings in the heart that causes AF but there is an 18 month waiting period.
My question is how many times can I be cardioverted and what is the downside of having it so often?
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