//www.mayoclinic.
There is no shame in this mucus problem, as it is part of pulmonary fibrosis. I will pray for you all. I hoped I helped you some. I am no expert on pulmonary fibrosis as I am no doctor. But i did much research on momma's lung disease and I experienced first hand all she went through. God Bless and much, much luck. Maybe one day they will find cures for all lung diseases.
She had worked around metal dust for 15 yrs. They could not determine, if that caused her pulmonary fibrosis. According to my research, many things could possibly cause pulmonary fibrosis. But, ask this new pulmonologist all the questions that you can. If he cannot provide answers, then seek another doctor. From 2001 to 2004, my mother kept getting misdiagnosed. Doctors said she had asthma. Even possible heart problems. And all the time, it was IPF.
This machine dries up the eyes and nasal passages which causes irritation, burning and sneezing. However pulmonary fibrosis cannot be due to CPAP use. Alternatively uses of CPAP mask in pulmonary fibrosis can cause claustrophobia like symptoms.
Lung scarring occurs due to pathological deposition of fibrous tissue. This is a progressive disease usually and hence needs frequent periodic monitoring.
The Coalition has been trying for several yrs. to get legislation passed, for more research money into pulmonary fibrosis. They ask members to write their senators in their states, in hopes to get this legislation passed. And I have done so each time I have been asked. But, still so far, the legislation has not been passed. Truly upsets me.
Then, on the Today Show they aired a segment on a man with pulmonary fibrosis. First time ever, that this lung disease made national attention that way.
- are other conditions (with better outlooks) ever mistaken for pulmonary fibrosis on x-ray (before ct or biopsy is conducted)?
- what is meant by the term "chronic" in this context? Not sure how something can be chronic if the last x-rays less than a year before were unremarkable. Also, i had visited a med express last week for my bronchitiis and they also took an x-ray.
My questions are,
Can I still be diagnosed with asbestosis, or pulmonary fibrosis without any signs (fibrosis, scaring, damage, inflammation, ect) on my xray or HRCT?
Can my health complaints above be early symptoms of asbestosis or pulmonary fibrosis that cannot be seen on chest x-rays or HRCT?
Can I be diagnosed only by my long term exposure to asbestos, my symptoms, pulmonary function tests? Should I ask for early treatment?
A related discussion, <a href="/posts/Respiratory-Disorders/How-does-pulmonary-fibrosis-differ-idiopathic-pulmonary-fibrosis/show/2332273">How does pulmonary fibrosis differ idiopathic pulmonary fibrosis</a> was started.
Hi there.
It is important to be empathic, and let your brother know that you are always there for him. However, you should not overdo this, since this might lower your brother's self esteem further and cause him to have self-pity. CML is a manageable disease given the appropriate medications. Not all CML's are candidate for Gleevec. Only those who tested positive for the philadelphia chromosome or the bcr-abl gene would be candidates to receive gleevec.
Hi, I don't know the answer -- but since both CML and Gleevec toxicity produce anemia because of marrow suppression, maybe it's not possible to tell the difference. E.g., both would show a low reticulocyte count.
This full text paper on anemia from Gleevec https://onlinelibrary.wiley.com/doi/full/10.1002/ajh.23879 shows that other signs such as red blood cell size can vary, so that doesn't seem to help. Sorry.
My mother has been through many tests. One for Pulmonary Fibrosis which the pulmonologist was pretty sure was the problem, until scans and other tests ruled it out. She has continued to have problems, is on oxygen, and recent xrays showed significant scarring. Could it still be PF even after it was ruled out?
I was diagnosed with CML and given Gleevec 400 ml. After taking gleevec for 2 weeks doctor took additional blood test. My WBC dropped from 36.5 to 7.1 and all other blood counts came down to normal range. I'm wondering if gleevec could give such fast hematological response or I was possibly misdiagnosed originally. I don't and didn't have any symptoms, my spleen and liver weren't enlarged, no enlarged lymph. Should I get second opinion asap? Please, help me.
Breathe-***@**** is my go-to place for pulmonary fibrosis. (I have IPF.) There is also the Pulmonary Fibrosis Foundation; but I find the group setting the most encouraging to learn what is happening, and how others deal with the progression of this horrible disease. Pulmonary hypertension results from this, also.
This group is so encouraging.
I am somewhat involved in the Pulmonary Fibrosis Coalition. Little is known about IPF and there needs to be more research money made available for IPF. The past 2 yrs. legislation has tried to be passed, to provide more research money for IPF. As of yet, legislation has not been passed. Your mother and you are definitely in my prayers. May God help you all get through this very difficult time.
My father passed away at 58 yrs old from Idiopathic Pulmonary Fibrosis. I have heard that this is a fancy way of saying he has a life threatening lung disease but they have no name for it. Through researching online I have seen a few studies published indicating that this may be hereditary. has anyone else gone through this, is anyone going through this? Maybe we can share info? I am scared not only for me but for my two young children.
Thank you.
This is good news. The so-called "normal values" are average values and, as with all averages, there is a range of truly normal values both above and below the "normal value." With pulmonary fibrosis, the crucial values are forced vital capacity (FVC) and, if performed total lung capacity (TLC). You should seek further clarification from the lung specialist about the significance of your values, with special attention to the diagnosis of pulmonary fibrosis.
Hi.
Response to imatinib (gleevec) can be dramatic just like what you experienced. Myelosuppression with neutropenia (decrease in neutrophils) and thrombocytopenia (decrease in platelet count) can be a side effect of treatment. Usually, discontinuation of drug intake is advised until the blood counts increase. You should have your white blood cell count repeated after 1-2 weeks and see if it already improves. You should report to your doctor if you experience any symptoms like fever.
My mom got dx with Pulmonary Fibrosis 5 yrs ago. Besides a chronic cough, she has not experienced remarkable symptoms. Her pulmonologist visits thru this January have not revealed any significant changes or concerns. Her O2 sats were 95% in Jan.
She went on vacation to florida the beginning of March for 3 weeks. She played shuffleboard for hours and went on long walks, no acute SOB.
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