Hi, I don't know the answer -- but since both CML and Gleevec toxicity produce anemia because of marrow suppression, maybe it's not possible to tell the difference. E.g., both would show a low reticulocyte count.
This full text paper on anemia from Gleevec https://onlinelibrary.wiley.com/doi/full/10.1002/ajh.23879 shows that other signs such as red blood cell size can vary, so that doesn't seem to help. Sorry.
I was diagnosed with CML and given Gleevec 400 ml. After taking gleevec for 2 weeks doctor took additional blood test. My WBC dropped from 36.5 to 7.1 and all other blood counts came down to normal range. I'm wondering if gleevec could give such fast hematological response or I was possibly misdiagnosed originally. I don't and didn't have any symptoms, my spleen and liver weren't enlarged, no enlarged lymph. Should I get second opinion asap? Please, help me.
t want to see me, that fever was not from gleevec, and that I needed to monitor myself by myself by simply taken ibuprofen. This is what I did all last week and only this Monday he did a blood work.
For now, what can I do to help my body to build my immune system back? Any vitamins? I'll appriciate any advice.
I was diagnosed last year and was immediatley put on gleevec 400mg/day.At my last consult my metabolic stats had risen,hence blood tests to determine if the gleevec is no longer working.I am still in firstphase and wonder what my options are if the gleevec is no longer an option.Amin pretty good form,just very tired and a lot of bone pain.
I have CML and was treated with Gleevec for 4 years and achieved remission. I have for the past several months been experiencing sudden onset of weakness which last for hours, to days. My blood pressure which has remained under control for several years with atenolol has been running 145/105 and higher for the past three to four months. I have a feeling of fullness in my stomach, and I have sporatic episodes of mild coughing, this occurs maybe once a week.
i get my heart checked every 2 weeks now and i am fine with the qt thing. i take the chemo pill called gleevec and have to force myself to eat so i dont get sick when i take it. how long will these withdrawel problems go on? i have xanax to take (1mg) but dont work to good. i should would appreciate any advice from any one on how to deal with these issues, family dr says its anxiety but i think its the withdrawels from the high dose of elavil.
Yes I have been worked up by a neurologist, I have seen many doctors and received several diagnosis, some conflicting, but neuropathy is what seems to match my symptoms the most. I have been checked for diabetes and MANY other things, all normal. I do not drink alcohol at all, or take drugs.
Please get your vitamin B levels done and try some vitamin B tablets or shots. There are other causes for neuropathy, to read about it do visit website
http://en.wikipedia.
There are several causes of small fiber neuropathy, including diabetes, vitamin deficiencies, autoimmune problems
The other type of sensory neuropathy is called a large fiber neuropathy. There are several categories of this type of neuropathy, and there are many many causes. Sensory neuropathies can involve just one nerve or several nerves in the body. Some types of sensory neuropathies occur and progress very slowly, others sort of wax and wane (with flare-ups) and some are progressive.
I have MS and Neuropathy. I am currently on Tysabri. Previously I was on Betaseron and IVIG. When I went to Tysabri my doctor took me off IVIG and now my Neuropathy is worse, my feet and legs are on fire. Does any one know if it is safe to be on Tysabri and IVIG at the same time? My doctor said she would need to consult with other doctors before she would add IVIG to my treatment.
I have burning feet and tingling legs, feet and hands. My neurologist says i have ideopathic neuropathy and nerve damage ( i have had two spinal fusions) as well as radiculopathy. He suggested I might have diabetes but the blood work showed Vit d deficiency. Can this cause neuropathy? I also have stiff joints and have had calcific tendonitis this year. Is this all connected? Thanks for your help.
I am a Leukemia Survivor also. What type of Leukemia did you have, and what was your treatment. I have CML, and have achieved a major molecular response through a oral chemo drug called Gleevec.
It does not sound like these patches have anything to do with the Leukemia. I would see a Dermatologist to have them evaluated. I hope that helps you a little bit.
Been told by a neuro Dr that what made me think I had neuropathy she has never diagnosed me with it and neuropathy cannot come and go. My internal med Dr has had me on Lyrica for a year and it helps allot with the shooting burning stabbing pains at night. But sometimes it gets real bad.
ACE inhibitors are widely used, specially in diabetic patients who usually have a higher prevalence of peripheral neuropathy, and worsening of neuropathy on patients caused by these medications is not common.
The fact that the side effect is not common does not mean that what you feel is not related to the medication. I cannot really say if the medication is causing you the problem or not.
t know for sure if this is the cause of the burning, but both Hep C and Interferon can cause peripheral neuropathy. One of the signs of peripheral neuropathy is burning of the feet.
These symptoms are something you should discuss with your doctor. They could be from Hep C, from the interferon, or both. They may disappear after treatment but they may not. Plus they may or may not be from peripheral neuropathy. They could be from something else. So best to get it checked out.
I know many patients along with friends and acquaintances family members with over 20-30-40 years of diabetes who never experienced any signs of neuropathy. All these folks manage and control their glucose levels accordingly to prevent neuropathy onset.
some people get neuropathy easily, and it might not be neuropathy at all. what I thought was neuropathy turned out to be a pinched nerve in my back. The A1c is not the only test or in my opinion the best test for BG compliance. A1c is an *average* BG of the last 3 months and in some people not that accurate of a test.
Do you test your BG?
fasting?
PP? (post eating)
testing your BG 1 hour after eating will tell you how well your body processes carbohydrates.
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