I am scheduled this Friday (the 19th of Feb) for a cystoscope/with dmso...which is how I was diagnosed with IC to beging after this procedure back 06 I had some pain for the first couple of days....but, it helped a great deal...but, I am uncertain as rather the Vesicare and/or the Elmiron is causing my blood pressure to raise....or if it is the combination of the two medications....
I have tried Detrol and Detrol LA and, neither of those help me....
Hi,
I'm a 20 yr old college student and as of a year, I have been experiencing frequent bladder problems. When I use the restroom, I never feel as though my bladder is empty. I constantly feel the urge to urinate even though I've spent about 5 minutes on the toilet trying to empty out my bladder (sometimes, it can take 20min). When I first get the urge to urinate, the flow is fine. However, a pinch starts to come out then it stops, then another pinch, then another stop and so forth.
Of course, ours, which though it is mainly to network patients in Missouri and Arkansas it does also have a lot of information for any one with IC; MOARK IC
The ICA is great and work hard to raise funds for research etc.
The IC-Network has a lot of resources and information too.
I hope that helps you, however if you have any other questions I can help you with just let me know.
On celexa, tried oxybutinin and myrbetriq. Gave me anxiety. Is enablex a good choice? Side effect of celexa was frequent urination. Eneblex only one that didn't cause anxiety, but side effects are bad. Anybody?
I'm not sure how to describe what I'm feeling or even if it's real or imagined from nervousness. My left side only...leg from about knee down, not feet and my left lower arm/hand feels "weird"...mostly at night when I get in bed and lay to watch t.v. I think my left hand feels weird when I'm typing, not fingers. I have no "pain" , numbness, tingling...just a weird, mild feeling. Sometimes a small shakiness.
Now that I have a new doctor I do feel confident by her doing this it will give her an idea as where the next step should be. All the IC meds have not worked for me at all. They did the IC coctail with made thingsa million times worse, and then elmiron, aterax, and amatriptalin (sorry about the spelling). After she takes a look and see's what her results are then that's when we'll decide to go next.
Hi Vanessa. I ws sent to the urologist because of pain and blood in my urine. They did a series of tests including since antiobiotics didn't work, ct scan, ivp, rinalysis, cystoscopy at the urologist. Stones, cancer everything urological wise has been ruled out. The only test the urologist didn't do was the potassium test for ic, and he never even mentioned it to me. My gynecologist tested me for it, and I could definitely tell the difference between the two solutions.
Hi Guys,
This is my next try to help with burning and bladder and urethral spasms which are painful and sometimes cause urinary loss. After this next try is the Botox.
I was just wondering if anyone on this forum has had experience with this drug and if it helped them. I know we are all different and our reactions are different, I am just hoping it works without too many side affects.
frequency, urgency and PAIN.The pain with IC is horrible. If you think you have IC, I would suggest to you, adhear to the strict IC diet and see if you start feeling better.
It is possible that you have chronic cystitis or Interstitial Cystitis. I have IC and am an IC support group Leader for Missouri and Arkansas. I just posted to someone else
with very similiar issue so will copy and post here as well. I hope we will try find good he
Chronic cystitis does not always show on standard UA's or cultures since those test are designed to find low level bacteria.
I have IC and it is painful. I'm lucky in the fact that I only have a mild case. I just went for my 6 month check up. I had noticed that in the mornings I wasn't urinating much. And sometimes I would even have to learn forward and strain to urinate. My uro did another Dilation on urinary tract and drained my bladder. He drained about 8-10 oz and I had just gone to the restroom right before the procedure.
I'm not a dr and can't advise if you have IC or not.
Its done as an outpatient under local anesthesia and a temporary stimulator lead can be inserted first for a trial prior to placing a permanent one. It was not designed for pain but some patient's pain improves anyhow. Your Urologist would need to be trained in this procedure to do it. If your bladder is very small and scarred (holds less than 200 cc with distention under anesthesia) you may benefit from having your bladder removed as an ultimate last resort.
t have to pay for any treatments. IC is a neurological pain disorder. I have read artcles of women who have had help with long term anti biotics b/c most women with IC have 1 or 2 of these 2 antibiotic resistant bacterias. i do notice sometimes when i am on antibiotics it does calm down my pain sometimes. I hope they do come up with something. I want to have children one day and I am scared b/c of my IC and bladder.
I’ve been suffering from IC for 5 years now and for some odd reason Nitrofurantoin/Macrobid seems to work well for me, even when my urine culture comes back negative. I take it (100 mg X 2 for 10 days) when my IC flares and within a few days the symptoms are essentially gone. They often come back 3-5 months later, but at least it works temporarily.
My doctors have no idea why this medication works, but it’s been working pretty consistently for the past 3-4 years now.
Lerbea,
I have done it all with IC. Yes, I have been on Elimron for IC. It made me very very sick. My joints and muscles were hurting. It felt, I had a very bad fever but did not. This was given to me by an idiot of a Urologist. I later discover a specialist in Philadelphia, she said, Was that Urologist trying to kill you. My reaction was but its Elimron, the medicine for IC. She said, because there is a drug on the market for IC, does not mean its for everyone.
//www.medhelp.org/forums/Interstitial-Cystitis-IC--Pelvic-Pain-Support-Forum/show/412
The expert forum where you can actually ask the doctor here on Medhelp is here also:
http://www.medhelp.org/forums/Interstitial-Cystitis-/show/264
Hope this helps!
And usually I test it is really high in WBC.....Why would I keep testing postive for WBC? Is this common for IC patients? Thanks for any light anyone can shed on this for me.....And would this also explain why it is so painful? Thanks again for any help you can shine my way!!!
This discussion is related to <a href='/posts/show/722405'>Similar symptoms to IC, but results are negative?</a>.
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