Sigh...I tried Lialda for a month...the headaches were insane! My doc switched me to Asacol...my body wouldn't absorb them. So, I'm on my third med...Apriso...$248 for a one month supply! I don't see any real difference with anything so far...
I have a NEW G.I. doc who keeps referring me to a colonoscopy and an MRCP before she decides to do anything but I've had a flare-up of UC for a month and need some relief. Today I saw a whole Asacol HD tablet excreted and the G.I.doc said "that's ok--it's still absorbed." Ok--so now I must be reasonable and ask a question as how is it absorbed when NONE OF IT--repeat, NONE OF IT---is degraded at all? This woman doesn't get it. Anyway, what should I do now?
It has now been 8 months of frequent bloody/mucousy stools and no relief. I have been on Asacol, Sulfasalazine, and most recently Lialda which I had a bad reaction to. Nothing has improved my symtoms.
I recently started seeing a new GI and she retested me and I am positive for C diff. She also tested a ANCA-IBD P-ANCA Titer recently that came back negative.
You need to see a gastoenterologist, who will want to confirm this with a colonoscopy. there are specific meds for this, all RX - like Asacol or Lialda that will make life bearable again. In the meantime, try Activia yogurt every day, and a supplement of Aloe Vera gel capsules made by Pharmassure - available at Rite-aid.
I am a 36 year old woman who was just diagnosed with UC. It was a real nightmare to get here though. Over three years ago I started having mild symptoms and female issues but had no idea that this is what it was. My doctor convinced me that I was severely depressed and put me on anti-depressants of which those actually made me a zombie at times and very depressed at others so I stopped taking them and just dealt with my issues on my own.
s similar to Asacol but it made a giant difference for me and once again in a bad flair both ends. For me it made the worlds of difference. I know her GI makes the dosage but tell her not to be afraid to adjust it herself until she gets into remission. if she finds herself running low get more. The only thing to watch is not to get constipated. When her stool seems to be getting hard on larger dose, introduce fibre or stool softner into her diet.
Last November, I had another flare that lasted 4 months (I never lost a pound even though I was eating very little). The doctor quadrupled my dose of Lialda, and again more weight gain around my stomach and nowhere else. This is very frustrating. I have always been a very thin person and do not like looking like I am pregnant when I am not! Has anyone else had this issue with Lialda. How about knee pain? Itching? Any help is greatly appreciated.
I don't know what meds you're taking but often the drug companies have assistance programs and will provide you with discounts and even free medications. Years ago, I was between insurance coverage and couldn't afford Lipitor, and I just had to have my doctor fill out a paper, prove my income, and they covered all the expenses.
There have been a few cases of liver failure possibly related to the use of mesalamine (the active ingredient in Asacol HD), but I haven't read anything about fatty liver as a side effect.
A fatty liver, it takes between 6 months and 2 years to fully reverse. Dr Sandra Cabot's article "Fatty Liver - What Is Fatty Liver And How To Reverse It?
m now back home, taking prednisone (which they are slowly tapering off), Lialda and enemas. I also developed a deep vein clot and am on coumadin to heal.
I guess I'm simply looking for some wisdom and encouraging words. I lost 20 pounds over the last month while being sick, am now anemic and quite weak. I do see very tiny improvements each day and I realize this is going to be a long haul back to health.
I started Asacol almost two weeks ago, and it worked very well after a couple of days, but after almost two weeks, I got very weak, dizzy spells, fatigue, like the flu. It's been five days, and most of the time I need to lay down. I couldn't go to work today. When does it stop? I stopped the medication four days ago. It was for colitis.
Try to stay away from dairy, alcohol, grains (have rice instead). If you can figure out what triggered the flare, that would be helpful so you know to avoid it in the future.
Hello,
Honestly I don't know that much about crohns and of course you would have to go with what your doctors tell you. But, a good book is "Physician, Heal Thyself" by Jordan Rubin. He was diagnosed with Crohns and basically healed himself (pretty much nearly died from it) - and then he became a doctor. He had other books as well. They are at the library. He has one called "The Maker's Diet".
I started taking Lialda in August, 2008, and took it (3-1g tabs once per day) for 5 months before I got better. However, I am not sure whether to credit the Lialda or the Flora-Q I began taking after three months into my treatment.
I have lymphocytic colitis so this may not pertain directly to your diagnosis, but I hope it helps.
diag. with severe UC..2/09...prednisone 80mg..to start weaning would come later..asacol also, but would later switch to lialda...much easier for me....also imurin,75mg..daily...everything pretty good...till I begin the weaning process, once it gets down to the 20mg....I'm only speaking of the pred...all else is same...we "jockey", if you will, around the weaning, back to 2o for extra 2 weeks..then resume weaning......
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