Desmopressin for haemophilia
Common Questions and Answers about Desmopressin for haemophilia
ddavp
My father had a brain tumor removed and now has to take a nasal spray called Desmopressin. His endocranologist only wants him to use it one time a day, but the problem is he goes to the bathroom sometimes every 15 minutes!!!! He is also on 1/2 mg of Dexamethasone and that's part of the problem. Sometimes he takes two puffs a day but the doctor doesn't want him to do that daily.
t mention in your question what medication you were taking. Commonly central DI is treated with desmopressin. Desmopressin works by limiting the amount of water passed in the urine.
I don't know why you would suddenly notice a decrease in your symptoms after 34 years. I would recommend making an appointment with your regular doctor to see what might be causing this. Until you can be seen, it is important that you remain aware of your fluid intake and output.
Hello,
I am 20 years old female and I wet my bed (urinate) at night sometimes. Can you suggest any logical explanation for this problem? I do not have any other health problems.
today the consultant gave me tablets called desmopressin acetate. i understand they reduce urine amounts. will try but cant see them working well.
Any new ideas or anyone with same prob please help.
Like doctornee medical, I would recommend telling his parents to go to their gp and rule out anything like leukemia. If his frequent bloody noses take a while to stop bleedin and he bruises easily, it could be haemophilia (I don't know if this could cause petechiae), which it just as dangerous as leukemia if not treated. Get his parents to get him checked out.
Is there a medication for Diabetes Insipidus other than Desmopressin? The headaches as a side affect are dibilitating.
This discussion is related to <a href='/posts/show/557217'>peuatrygland diabetts</a>.
ve been on coumadin for a blood clot (that is now gone) and according to my doctor I will have to remain on coumadin forever. He admits to having no idea what is causing the blood clots but seems to have closed the door on finding out. Could the elevated factor VIII mean anything else? I tested negative for all the other 'factors' and the other usual suspects.
Every time I have given blood (three times), I experienced a hematoma at the needle injection site, which lasted for a few weeks following donation. I experience very heavy menstrual cycles which can last over a week non-stop and unrelenting. My cycles range from every 28 to every 20 to every 34 days. Sometimes I experience two a month. (I have had them since I was 10). I bruise very easily and for extended periods and my scabs are always very thin.
DDAVP, Stimate, Minirin) is a synthetic replacement for vasopressin, the hormone that reduces urine production. It may be taken nasally, or as a tablet. Lack of the hormone vasopressin is more common in men than in women. Typically, those that do not produce enough will "correct" by the end of puberty (19-25 years old for men). Check with your urologist about the possibility of this treatment. Best of luck.
Our son is 4 yrs old, diagnosed with severe haemophilia A at 7 months. he suffered many bleeding episodes, mainly to ankles and bottom (from learning to walk) when he was a baby. At this time, his behaviour took a down ward turn, and at the age of one he would throw toys, pull cars apart, and scratch his play friends... this led to not a lot of socializing at that age as it was a constant struggle.
I tried Effexor for only three days when it was given to me to treat migraines and I couldn't tolerate the side effects. Don't remember now what all they were- just that it was intolerable for me. It wasn't given to me for POTS- it was before I was diagnosed with POTS I tried it.
To be diagnosed, you need to have a pelvic exam and then they might do an ultrasound or mri or maybe even a look see laparoscopy. They treat in a variety of ways, often with medication for someone so young as yourself. Pain medication and hormone therapy are often used. Sometimes they do surgery to help. If or when you want to have a baby, then they work on fertility issues surrounding endo. Some women down the road may opt for a hysterectomy but later on.
If still the symptoms persist then medical treatment with desmopressin, imipramine and anticholinergics can be tried.
Hope it helps. Take care and please do keep me posted on how you are doing. Kind regards.
I was wondering if anyone else has experienced diabetes insipidus? The reason for the test is because I have been extremely thirsty and urinating almost every 1.5 hours a day. I received a copy of the test results. They tested my ADH level (arginine vasopressin) The results are L<1.0 Range:1.0-13.3
They say there are different types of diabetes insipidus, basically that the kidneys are not doing what they are supposed to do or a pituitary issue.
I have took her to the doctors, she prescribed mas been taking which she has been on for a year now. No improvement! When I first took her in, I was concerned because of the large amounts and the very strong odor it causes along with inflammation to the surrounding skin. All urine test came back fine ( urine sample). However she had no reason why the odor was so bad. I even had our well water tested and it was fine.
My Endo wants me to do a biopsy, but I am concerned as I have Von Willenbrands Factor VIII deficiency, and had a bleeding problem in July from a deep tooth scaling (which probably was made worse by going to a dental surgeoun after who probably dug deeper) and I ended up on Amacar for 10 days and two rounds of Desmopressin IVs. In the past, I have had a couple of needle biopsies in the breast with no problems. I will contact my hemotologist, but was also looking for another opinion.
I have testing lab for my thyroid since 1995 and all results have come in " normal" range. meanwhile i was diagnosed 10yrs ago with pituitary microadenoma on CT- Scan with high blood levels of FSH LH TESTO. I was taking cabergoline for 10 yrs but I still feel bad. I have a swinging mood some times hyperexcited but mostly tired, constipation, right rib and colon pain and pimples on my back. my skin is dried since childhood with recurrent hair folliculitis and athlete foot for 25 years.
We have a 7 year old colllie just diagnosed with Diabetes Insipetes (nephrogenic). Vet recommends treatment with ddavp eye drop. All the information we can find says that this is "very expensive". Can you give us a ballpark of what this actually means for annual cost of care? What are the implications of leaving this untreated if she has on going access to fresh clean water?
It would have been better to start a new thread but... why are they not treating him for the high prolactin? Is he on dostinex or parlodel?
The pituitary tumor would impact his personality - it needs to be treated. A neuro-endo is better so glad you are going that route. Once you have a pit tumor, TSH is usually invalid - often it drops so it seems he may also have a thyroid issue. T4 I find is rather useless. I like free T3 and Free T4 as they reflect what the thyroid is doing.
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