The short answer is no, she's not correct.
I'm not a healthcare professional but in the course of learning more about my own PPTH I've read quite a few scholarly articles, and I have to say that the decision by your endocrinologist to wait and see because of a negative sestamibi scan seems quite absurd. A scan (be it sestamibi or ultrasound) is *never* used to diagnose primary hyperparathyroidism; it's just to aid the surgeon prior to operation. Your blood tests are unequivocal.
Hi Barb, thanks for the reply. I have already read parathyroid.com - lots of information, but that is obviously a site run by the doctor who makes his living doing the surgeries, so he definitely will not recommend wait and watch. The SEO done here is remarkable - there is more than one site and it pops up in search results everywhere. Other protocols do consider waiting and watching for asymptomatic patients, although most recommend getting the surgery if one is younger than 50 (I am 48).
I had already researched three surgeons and he recommended the same surgeons that I had in mind, and in fact had just sent one of his patients to one of these. It feels good to be on the same page with your doctor, know what is going on and know that you have some control. I come from an era where you almost never went to the doctor, only if you were very sick, and so I am just learning the system.
My next app't is at the end of September.
I recently discovered that I had hyperparathyroidism. Had the surgery and while they were performing it they noticed a problem with my thyroid, a small nodule and it was papillary carcinoma. A two for one surgery. I'm a lucky person.
Talking with my ENT he stated that the size of my adenoma indicated a possible problem for years. I've had an occasional kidney stone every few years for FIFTEEN years. My calcium levels were never high enough to warrant further blood tests.
s secondary hyperparathyroidism and they treat people empirically for D deficiency (and presumed secondary hyperparathyroidism) as long as their calcium is within the normal range. In primary hyperparathyroidism Vitamin D and calcium are not indicated I guess until after surgery. I may take a holiday from D supplementation until my results come in -- I think I've taken enough D to hold off for a week.
The laboratory values vary, that is typical of hyperparathyroidism, but in primary HPT, both PTH and calcium or ionized calcium are at the same time high normal or above the upper limit of the ref. range. If one is low and the other high, that is not primary HPT.
I have varying symptoms, but I have many diseases and thus I don't know if the symptoms are caused by the HPT. I have also CFS. My parathyroid hyperplasia will not be cut off.
If I took my calcium that morning it would have been elevated. What a lot of BULL CRAP! My calcium was 9.9, it's fine that I suffer a torchured and cruel life as life passes me by, because nobody knows what's wrong with me!
The calcium of 9.1 is not typical of primary hyperparathyroidism.
Would remeasure vitamin D as 25-OH-D. And repeat blood calcium levels.
Urine Calcium is a bit high.
Usually primary hyperparathyroidism has calcium >10, but not always and the high urine calcium may be a good clue (although it is not that high in your case).
The sestamibi scan is for patients with primary hyperparathyroidism to help locate the source of the problem - it is not used to make or exclude the diagnosis.
This is suspicious for primary hyperparathyroidism but as a young adult, calcium levels can normally run in the mid 10 range. Therefore a second opinion from an endocrinologist may be warranted.
This deficiency is a common finding with hypothyroidism as well as hyperparathyroidism. In general, lymph nodes become swollen either due to an infection, inflammation, or cancer.
Last year, my PCP came to the conclusion that I may have a case of Primary Hyperparathyroidism. After this conclusion, I was referred to an endo. I've since moved on to a second endo, and at this time, she thinks that I just need to have the bloodwork checked every so often. All of the bloodwork conducted by my PCP indicates Primary Hyperparathyroidism, but the bloodwork done by the second endo scares me and makes me wonder if it is multiple myeloma. I have read over Dr.
I posted once before, I found out I had primary hyperparathyroidism. I now found after an us of the thyroid I have a nodule that is isoechoic with a complex cyst. Are these two conditions related? What is an isoechoic nodule with a complex cyst? Does anybody have any ideas? The only thryoid lab study that was out of whack was my elevated t4.
I have recently been experiencing the following symptoms anxiety, fatigue, aching bones, nausea, and tiredness (tiredness especially after eating).
I have had the following lab results:
Ionic Calcium of 1.35 mmol/L (normal upper range to 1.25 mmol/l)
on a seperate day:
Serum calcium of 2.57 mmol/L (normal up to 2.55 mmol/L)
PTH = 3.3 pmol/L (normal range up to 6.4)
Phosphorous = 1.20 mmol/l (range=0.8-1.4)
Chloride = 107 mmol/l (range=98-106)
Is this hyperparathyroidism?
They tell me that the drugs used for secondary hyperparathyroidism are not effective on primary hyperparathyroidism. I do have most of the symptoms of hyperparathyroidism , Very high anxiety issues, depression, bone pain, headaches, heart palpatations, forgetfulness, lack of concentration, low energy, very tired. I am afraid to have them just poke around my chest for these missing glands and yet I don't feel well and am getting worse.
this is early/mild primary hyperparathyroidism - would see an endocrinologist for complete evaluation to see if surgery vs observation is appropriate.
The most common mistake we see from family doctors and endocrinologists regarding the diagnosis of primary hyperparathyroidism is that the low vitamin D confuses them and they think the patient has SECONDARY hyperparathyroidism. In other words, they think the low vitamin D was the CAUSE of the high blood calcium because the low vitamin D caused the parathyroid glands to become over-active. They then think that they can fix the high calcium by giving you high doses of vitamin D.
PTH is concerning for primary hyperparathyroidism with an inappropriately normal PTH. Usually these are 20-30 or higher, but have seen cases like this when PTH is 10-20, calcium is high and the answer is primary hyperparathyroidism. These adenomas do not usually cause a lump or intermittent swelling sensation.
Would recheck PTH and check urine calcium excretion (24hour urine collection). Would also do neck ultrasound (by a good thyroid/parathyroid doc) to see if there is an adenoma.
I am suppose to do another 24 hr urine and a blood panel for the Nephrologist in April, but am in the middle of a spell. My primary care sent me to have my pth and vitamin D checked today. My primary care also had an ultra sound and hidra scan done of my gallbladder because of my upper abdominal pain. Both came back fine, but this spell I am in got worse from the moment they injected me with CCK?
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