cellcept cidp

I have been diagnosed with CIDP, and have gone through the "normal" protocol.. prednisone, IvIG, plasmapheresis, with no real help. My neurologist now suggests therapy with cytoxan or cellcept. He is "saving" the stem cell/bone marrow transplant as a last resort. I have read all of the info on both drugs and the risk/benefit for each.

I have CIDP, and will see a research specialist next week. Has anyone discovered new therapies for CIDP or things that I should cover with this Dr.?

I'm a patient with autoimmune hepatitis type II, and my doctor has just perscribed cellcept in an attempt to reduce or stop use of prednizone. It is really important to me to try and have a child, but I'm afraid if I start cellcept that I shouldn't get pregnant. I know cellcept is a class D drug, and discussed my concern with my doctor.

I had a breakthrough with Avonex so my dr. recommended adding cellcept to the avonex shots. If so can you tell me how you have done with cellcept. Thanks!!!!

Liz - you posted a question about CIDP and pregnancy. I was diagnosed with CIDP almost 6 years ago and have had 1 pregnancy since my diagnosis. I am currently trying for #2. I have met 1 other woman with CIDP that has had 2 children during her course of CIDP. If you are still on here I would love to chat with you about it. I am so interested myself to find other women in this situation.

Is CIDP curable? Also, what about treating pain symptoms. From what I understand there is no sure cure for CIDP. Even IVIG's are not as effective as they once were. What is the patient supposed to do if palliative care is not to be provided? I have had CIDP for 10 to 15 years, as such I would like to know your ideas about not treating the disease and just providing some measure of relief from these debilitating symtons.

The doctor says he proposes to take my mother off CellCept altogether at some point in time and only PanGraaf will be needed for the whole life - in the meantime the doctor may prescribe CellCept in on / off basis.

I have been being treated for CIDP for approx 10 years. IVIG has made life bearable, but not improving my condition. I receive 110 gm of IVIG in bi-weekly treatments. I recently started on 2 gm of Requip XL 1x. That has helped with joint pain. What is known about causes? I was exposed to Agent Orange in Vietnam 66-67. What is a long term prognosis? The lower facial numbness/tingling no longer goes away after treatment as it once did. Thank you.

that affected my legs so my Dr. just prescribed Cellcept. I filled the prescription yesterday and was scared to death after reading the literature on it. What is PPMS? I will be interested in seeing if anyone has used this medication too. Sunnyb.

After a upper respiratory infection last month I have been having someone more weaknesses and even a slight breathing problem at times, so he wants to put me on Cellcept. The problem is Cellcept can cause Lymphoma and other side effects and infection risk,. I want to get off Prednisone due to weight gain and creeping up hypertension and the Mestinin digestive problems are a real pain.

I have CIDP and I am a diabetic because of the Prednisone I took in 2009 for a relapse I had of the CIDP. IN 2007 when I had a relapse I first had swelling in my hands which I was told was tendinitis which got really bad but the meds I tried didn’t help. Five months later I was told I was having a CIDP relapse. One month later I had 5 days of IVIG. Ten days before my IVIG I had sudden hearing lost. I had some hearing lost prior to this but I was going deaf.

Anyone on cellcept having back pain? I've been having back pain for a couple of weeks now, wake up earlier and earlier in the morning with my back aching and when I move it I get these stabbing pains. It all goes away when I get up, and I've managed to sleep a bit in the morning in a half-seated position, so it's really related to lying down. I just read someplace that cellcept can cause back pain, but I haven't been able to find any info on what kind of pain. Could this be it?

my doctors have reduced my cellcept in half. 1000 mg 2x day to 500 mg 2x day. they said my symptoms are common and reducing the cellcept should help. any comment?

Hi everyone. I am being evaluated for CIDP (chronic inflammatory demyelinating polyneuropathy) and recently had an MRI/MRA of the cervical spine. It showed, among other things, hypertrophic changes, of C 3-7, but it didn't say where. Does one assume that the changes are in the nerve roots, which would then point to CIDP, OR are the changes elsewhere and only mean degenerative changes? My appointment with the neuro isn't for about another month.

s time to hang my arm to rest).....I learned on line about CIDP, Does anyone know anything about this disorder? Any suggestions? any experiences?????? please help.

Okay hears the deal I was put on prednison when I was 17yrs old along with imuran, now i know the effects of prednison obviouly, it being a steroid there usually are some weight gain and moon face etc as common side effects. Now I'm 19yrs old and they have me on cellcept. I have always been extremely active even to due to my fatigue but I cannot loose a pound, I will work out 24-7 and change my diets often to see if anything changes and...nothing.

Hi. I was just diagnosed with CIDP and low parathyroid hormone in June of 08. My symptoms: burning, stabbing, tingling, numbness in arms hands face neck legs and feet began Decemeber 0f 06. I also lost a good part of my sight in april of 07 and now have cochlear nerve damage. I also have tonic-clonic seizures and daily migraines. IIs there a link between CIDP and migranes and seizures. Also been on a month of 60mg prednisone and have seen no improvemen.

when you say adding some cellcept might be a good idea,does that include trying to lower my prograf some?

My son 5,5 years old has been diag with CIDP on summer 2007, and has since that date many relapse (boots). and has been treated with imminoglobuline, and oral prednisone for 6 month and 2 cure of hight dose of IV solumedrole but that make his situation worse. the only treatment witch works was cure IV of imminoglobuline for 5 days. I would like to get maximum of informations of this desease.( Pronostics, general outcome, does the relapse stop???

Thank you for the link/suggestion. I will go to it and see if I can find any info about glucose metabolism & CIDP. CIDP is an odd rare neuropathy - so little is known how it may interact with other disorders.

I take Cellcept for 2 and a half year. How long will last taking of this medicine because my hair and stomack can't stand it any more?

Does anyone one know of anyone who was dx with cidp (peripheral neuropathy) along with hep c. An then after being teated for the hep c have the neuropathy improve, are go away? This is what I have been dx with,I have been taking prednisone an ivig infusions for the cidp with little to no improvement really feel as if the hep c is at the root of my neuropathy problems.

Are there other ways to treat CIDP other than IVIG and cancer drugs? Also is it true that once you start IVIG you have to get it for the rest of your life in order to continue your daily life as best as you can?

I am not seeking another opinion and wondering if I could have CIDP. It all started a year and a half ago with numbness and tingling in my feet then slowly spread up to my lower back. I have had balance issues but always able to walk until I started to lose power in my right leg. I had a LP which showed oligoclonal bands and slightly increased protein in CSF. My MRI of brain is clear and spinal cord was questioning inflammation in thorasic cord but non conclusive.

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