For someone who was diagnosed with M.S., is it best to be on a med. (such as Avonex) even when symptom-free? I don't feel that I need med. but also don't want progression to be taking place when med. can stop it. I would very much appreciate any feedback! Thank you!
ve been given info on copaxone, avonex, and betaseron. The info is all from their respective manufacturers and seems pretty bias. I'm having trouble deciding which course to take. So my question is... which do I take? What's the best? Thanks guys!
Hello I'm just curious what kind of medication those with ms are taking? What some feel is best and why and for those that choose to go un medicated why they have decided that? I'm really not sure how to approach this and I've done a lot of researching on the internet but I'd prefer to get feedback from people first hand.
Hi guys hav'nt checked in lately, I've been having quite a few flair ups since I last checked in. Question for my MS family; I would like to try avonex hope I'm spelling it right any feed back good /bad just the expierence of people who has tried it before or is currently on.....presently using copaxone...
After 7 years I have finally was dx today with MS. I will be going on Avonex. I'm some what worried about the possible side effects that come with it. I also found out why I started losing my hair. It is a rare side effect of solumedrol infusion and it will grow back! =) Incase you are reading this an you were curious how my doctors made my diagnosis it was from a history of optic neuritis, clinical symptoms, positive Anti-GaGa test, atrophy of corpus callosum, and spinal lesions.
Hi there,
I also agree that the reason you are most likely feeling so well and having few symtpoms is because of the medication. I wouldn't stop the medication now if it has been working so well for you. Who knows how the MS may progress once you stop taking the medication? And if the MS does progress you cannot take back the progression it has made only slow down the further progression by starting back on avonex.
I would stick with it and look for other ways to help your finances.
I am an MS patient and I have recently started taking Avonex, (I have had two injections so far) and I have been having problems sleeping.Does anyone know if Avonex causes insomnia, at all?
I have read all the possible side effects Avonex may bring, but sleeplessness doesn't seem to be in the list.
First, contrary to what maxthecat wrote, this is from the Avonex medication guide: "AVONEX PEN should only be injected into the muscle of your upper, outer thigh."
Anyway, I hate the shots too, so I completely know how you feel … although I’ve been taking them only half as long as you have.
I would get the opinion of other neurologists before starting Avonex. Once you begin a medication like Avonex, it is taken for life, not just for a year. I'm sure you are confused, but it has only been 10 days. You can ask if they have "ruled out" (excluded) all of the other diseases that mimic MS.
I have to change my medication and I'm not sure what medicine I should go on. I'm left with 4choices Rebif, Betaseron, Tecfidera, and tysabri.
weakness,tired,confused,non tolerance of exercise,muscle weakness,sleep disturbance.center of headache, Taking only Metformin . You can please guide.
Hi anuj,
I read ur question. I also diagnosed ms just few days ago, nd I also prescribed injection avonex. But I wish I could give u exact answer but I don't have any personally experience about avonex coz I don't start avonex yet but I know I will.Just m saying that i found on google that when ever u inject just relax, don't take any stress, u may get flu like symptom so take ibruphen, take rest how much u can, then of course, u can manage it.
Hi I am new to MS. My doctor prescribed Avonex. I have little to no drug insurance. I went to a site which offered discount coupons. I called them to ask them if this is a come on price or is this within reason the price every month. They would not give me an ansewr. Does someone here have any experience with this?
It is very difficult to know anything based on what you posted.
First, lab ranges even for the different labs in the US differ so without ranges - have no idea if you are low, high or normal.
Second - no idea if you are sick or how you are sick. The tests run are not really run for adrenal except DHEA (and that is really more of an adrogen - e.g. it converts to testosterone and estrogen) so not sure why it belongs in this forum.
I have been on Avonex for the last 15 years and have finally reached my limit. I am taking a 6 week break from the Avonex and will be starting Copaxone at the end of April. I actually have two questions: 1) Has anyone taken a break from their medication for that long (and if so, any consequences) and 2) Has anyone switched from Avonex to Copaxone, and if so, how did you do?
After that I was on Avonex for 8 months and tolerated the medication fairly well, but had hard time injecting long needle into the muscle (I used the injectors for both copaxone and avonex). I'm now on Tecfidera almost 6 months and still have GI issues so in addition to Tecfidera I'm taking Omeprazole (Prilosec) for my stomach. I'm also wondering about Plegridy and how does the new injector works.
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